NEEMO Profile
NEEMO

@NEEMOcf

Followers
114
Following
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Statuses
19

National Efficacy-Effectiveness CFTR Modulator Optimisation Programme. Aiming to understand inhaled therapy for people with cystic fibrosis taking modulators.

Yorkshire and The Humber
Joined November 2021
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@NEEMOcf
NEEMO
3 years
1/4 NEEMO a 🧵. You may be wondering what NEEMO is. NEEMO is the National Efficacy effectiveness CFTR Modulator Optimisation programme.
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@NEEMOcf
NEEMO
2 years
Thanks to Karen Bon Berg for highlighting @NEEMOcf as one of the studies working to answer the question of how much inhaled therapy is needed alongside CFTR modulators. Find out more #NACFC2023 on Saturday in session W53 or at poster 613.
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@NEEMOcf
NEEMO
2 years
RT @thecfphysio: #Adherence to inhaled therapies remains an important issue in the post CFTRm era. The @NEEMOcf research programme is desig….
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@NEEMOcf
NEEMO
2 years
RT @thecfphysio: ā€œThe lung function is still higher than beforeā€. Using a framework to help pwCF & clinicians to pay attention to drops in….
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@NEEMOcf
NEEMO
2 years
Come and chat to us about @Neemocf at poster 147 tomorrow at 2pm. #ECFS2023.
@thecfphysio
Tracey Daniels
2 years
#Adherence to inhaled therapies remains an important issue in the post CFTRm era. The @NEEMOcf research programme is designed to better understand the impacts of the choices of pwCF to stop or continue nebs when taking CFTRm. #ECFS2023
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@NEEMOcf
NEEMO
3 years
RT @cfhealthhub: We’ve made a few changes to our website recently like adding our recent #Awards and some new #Team members. We’ve also upd….
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@NEEMOcf
NEEMO
3 years
Attending #NACFC2022 and want to know more about @NEEMOcf @cfhealthhub? Have a look at our pinned tweet for info:
@thecfphysio
Tracey Daniels
3 years
Morning #nacfc2022. Interested in impacts of preventative inhaled therapy on outcomes with #ETI #Trikafta? Visit @NEEMOcf at poster 301, follow @NEEMOcf @cfhealthhub, visit our website or dm me if you’d like to chat or retweet to let your colleagues know.
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@NEEMOcf
NEEMO
3 years
RT @thecfphysio: Morning #nacfc2022. Interested in impacts of preventative inhaled therapy on outcomes with #ETI #Trikafta? Visit @NEEMOcf….
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@NEEMOcf
NEEMO
3 years
RT @thecfphysio: Exciting developments in mRNA therapies for #CysticFibrosis and a reminder that understanding and supporting adherence to….
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@NEEMOcf
NEEMO
3 years
RT @thecfphysio: Fantastic to see @NEEMOcf highlighted as part of the discussion around the need for preventative inhaled therapies alongsi….
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@NEEMOcf
NEEMO
3 years
RT @TheCFLN: This is fantastic @cfhealthhub Congratulations #CFHealthHub team! Sharing with our a few of U.S. learning network colleagues @….
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@NEEMOcf
NEEMO
3 years
The #LearningHealthSystem makes our @NEEMOcf research possible. Have a look at this accessible & quick to read @HealthFdn report to understand more about @cfhealthhub and learning health systems.
@cfhealthhub
CFHealthHub
3 years
Proud that the #CFHealthHub #learninghealthsystem has been recognised as a "full learning health system" in the @HealthFdn report: ā€˜Developing learning health systems in the UK: Priorities for action’. 1/3
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@NEEMOcf
NEEMO
3 years
RT @cfhealthhub: Being part of a #learninghealthsystem means that data gathered by technology is built into routine CF care. This enables t….
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@NEEMOcf
NEEMO
3 years
NEEMO is part of @cfhealthhub #LearningHealthSystem. The 19-centre, 607-patient RCT to support treatment-taking in adults with #cysticfibrosis is published in May @ThoraxBMJ. Fantastic to find ways to increase #Adherence while decreasing perceived #TreatmentBurden. Linkā¬‡ļø.
@cfhealthhub
CFHealthHub
3 years
Delighted to see the results of the #CFHealthHub multi-component self-management intervention trial published in the May issue of @ThoraxBMJ #cysticfibrosis #learninghealthsystem #habitformation Link šŸ‘‰
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@NEEMOcf
NEEMO
3 years
4/4 We'll be tweeting more information about NEEMO so, if you are interested in the real-world outcomes of #CFTRmodulators for people with CF and in the effects of inhaled therapy on outcomes, please give us a follow or retweet.
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@NEEMOcf
NEEMO
3 years
3/4 NEEMO is part of the @cfhealthhub #LearningHealthSystem. You can read about CFHealthHub here: Why not take less that five minutes to watch two videos about CFHealthHub: and
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@NEEMOcf
NEEMO
3 years
2/4 NEEMO aims to understand if there is a gap between outcomes of #Kaftrio #Trikafta for people with #CysticFibrosis in clinical studies and outcomes in the real-world data. It will look at whether #Adherence to preventative inhaled therapy affects outcomes to modulator therapy.
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@NEEMOcf
NEEMO
3 years
RT @cfhealthhub: Welcome to Twitter @NEEMOcf! šŸ‘‹ šŸ‘‹ . šŸ‘†Definitely worth a follow for updates on understanding the role of inhaled therapies f….
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