NEEMO
@NEEMOcf
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National Efficacy-Effectiveness CFTR Modulator Optimisation Programme. Aiming to understand inhaled therapy for people with cystic fibrosis taking modulators.
Yorkshire and The Humber
Joined November 2021
1/4 NEEMO a š§µ. You may be wondering what NEEMO is. NEEMO is the National Efficacy effectiveness CFTR Modulator Optimisation programme.
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Thanks to Karen Bon Berg for highlighting @NEEMOcf as one of the studies working to answer the question of how much inhaled therapy is needed alongside CFTR modulators. Find out more #NACFC2023 on Saturday in session W53 or at poster 613.
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RT @thecfphysio: #Adherence to inhaled therapies remains an important issue in the post CFTRm era. The @NEEMOcf research programme is desigā¦.
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RT @thecfphysio: āThe lung function is still higher than beforeā. Using a framework to help pwCF & clinicians to pay attention to drops inā¦.
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#Adherence to inhaled therapies remains an important issue in the post CFTRm era. The @NEEMOcf research programme is designed to better understand the impacts of the choices of pwCF to stop or continue nebs when taking CFTRm. #ECFS2023
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RT @cfhealthhub: Weāve made a few changes to our website recently like adding our recent #Awards and some new #Team members. Weāve also updā¦.
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Attending #NACFC2022 and want to know more about @NEEMOcf @cfhealthhub? Have a look at our pinned tweet for info:
Morning #nacfc2022. Interested in impacts of preventative inhaled therapy on outcomes with #ETI #Trikafta? Visit @NEEMOcf at poster 301, follow @NEEMOcf @cfhealthhub, visit our website or dm me if youād like to chat or retweet to let your colleagues know.
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RT @thecfphysio: Morning #nacfc2022. Interested in impacts of preventative inhaled therapy on outcomes with #ETI #Trikafta? Visit @NEEMOcfā¦.
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RT @thecfphysio: Exciting developments in mRNA therapies for #CysticFibrosis and a reminder that understanding and supporting adherence toā¦.
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RT @thecfphysio: Fantastic to see @NEEMOcf highlighted as part of the discussion around the need for preventative inhaled therapies alongsiā¦.
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RT @TheCFLN: This is fantastic @cfhealthhub Congratulations #CFHealthHub team! Sharing with our a few of U.S. learning network colleagues @ā¦.
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The #LearningHealthSystem makes our @NEEMOcf research possible. Have a look at this accessible & quick to read @HealthFdn report to understand more about @cfhealthhub and learning health systems.
Proud that the #CFHealthHub #learninghealthsystem has been recognised as a "full learning health system" in the @HealthFdn report: āDeveloping learning health systems in the UK: Priorities for actionā. 1/3
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RT @cfhealthhub: Being part of a #learninghealthsystem means that data gathered by technology is built into routine CF care. This enables tā¦.
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NEEMO is part of @cfhealthhub #LearningHealthSystem. The 19-centre, 607-patient RCT to support treatment-taking in adults with #cysticfibrosis is published in May @ThoraxBMJ. Fantastic to find ways to increase #Adherence while decreasing perceived #TreatmentBurden. Linkā¬ļø.
Delighted to see the results of the #CFHealthHub multi-component self-management intervention trial published in the May issue of @ThoraxBMJ #cysticfibrosis #learninghealthsystem #habitformation Link š
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4/4 We'll be tweeting more information about NEEMO so, if you are interested in the real-world outcomes of #CFTRmodulators for people with CF and in the effects of inhaled therapy on outcomes, please give us a follow or retweet.
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3/4 NEEMO is part of the @cfhealthhub #LearningHealthSystem. You can read about CFHealthHub here: Why not take less that five minutes to watch two videos about CFHealthHub: and
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2/4 NEEMO aims to understand if there is a gap between outcomes of #Kaftrio #Trikafta for people with #CysticFibrosis in clinical studies and outcomes in the real-world data. It will look at whether #Adherence to preventative inhaled therapy affects outcomes to modulator therapy.
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RT @cfhealthhub: Welcome to Twitter @NEEMOcf! š š . šDefinitely worth a follow for updates on understanding the role of inhaled therapies fā¦.
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