NeuroEndocrine Cancer Australia
@NECancerAus
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Formerly the Unicorn Foundation, NeuroEndocrine Cancer Australia provides support, advocacy, awareness, funding & research for Neuroendocrine cancer patients.
Australia
Joined February 2010
Rare cancers are often misdiagnosed for years. NECA CEO Meredith Cummins has spent 40+ years supporting patients and helped lead a campaign to reduce a life-saving drug from $12,000/month to just over $30 on the PBS. Listen to the ABC Radio National I/V
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Join us for the Will Norman Nurse Online Webinar on Neuroendocrine Cancer, a free 1.5 hour education session and .5 hour live round table for questions and discussions to follow. 🔗Register now:
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We're pleased to see Mark Butler MP continuing as Minister for Health and Aged Care. It has been a pleasure to work with Minister Butler in recent years. His understanding of NETs has made a real difference to our community. 📷: MarkButlerMP
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NECA is seeking corporate sponsors to help fund vital projects like March4NETs, Patient Forums, NET Nurses and printed resources so we can create more support, more awareness, and better outcomes for everyone living with NETs. For further information:
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📣 Registrations are now open for the Adelaide NET Patient Forum This is a fantastic opportunity to hear directly from leading NET clinicians, ask questions, and learn more about the latest treatments and Clinical Trials. 🔗 To register, go to
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Omico’s recent ‘Cancer and Genomics Webinar’ saw 80+ participants join on 6 February 2025 to explore how precision oncology and comprehensive genomic profiling (CGP) can help match patients to targeted treatments and clinical trials. Watch here 👉🏽
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Today is #WorldCancerDay. United in our message, unique in our stories. Let's come together to rewrite the future of cancer care - one where the needs of people and communities come first.
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This #WorldCancerDay on Tuesday 4th February, let's come together to rewrite the future of cancer care - one where the needs of people and communities come first. #UnitedByUnique
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🎄NECA will be closed 24/12/24 to 3/1/25👉🏽During our closure time if you need support, you can contact the Cancer Council on 13 11 20. 💙We wish everyone a safe, happy and healthy holiday season.
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🎥 It’s here! If you missed our recent Melbourne NET Patient Forum, you can now watch it on demand! #NETs #LetsTalkAboutNETs
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📢NEWS: MedNews announce “MSD leads PBS Christmas gift list” Advocating alongside VHL patients is the very heart of what NECA do, we are absolutely thrilled with yesterday’s inclusion of Belzutifan on the PBS listing effective 1 December 2024. 👉🏽More:
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We support the release of a national consensus statement for bridging funding that would provide earlier, faster, and fairer access to new medicines, bridging the gap between TGA registration and PBS funding. 👉🏽 #wesupportbridgingfunding
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From 13–15 November, NECA CEO Meredith Cummins joined leading healthcare professionals at the 2024 COSA ASM. This year’s theme, was"Bridging Gaps, Building Progress, Breaking Down Disparities" Read more: @COSAoncology
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On average, it takes 466 days for a new medicine to be added to the Pharmaceutical Benefits Scheme (PBS) after approval in Australia. Australians deserve quicker access to life-saving treatments. 👉🏽Show your support for a #StrongerPBS
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Neuroendocrine cancer frequently camouflages itself. Symptoms can be misdiagnosed with conditions like IBS, asthma, or menopause. Symptoms include: 👉🏽 Flushing👉🏽 Wheezing👉🏽 Palpitations👉🏽 Diarrhoea👉🏽 Fatigue👉🏽 Rashes. Know the symptoms. #LetsTalkAboutNETS #NETCancerDay
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📣 PSA Neuroendocrine Cancer Day is tomorrow. Huge thanks to our Ambassador, Michael Usher for this reminder and his unwavering support. m #NETCancerDay
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"Australia needs a Stronger PBS to give Aussies a better chance at life with serious diseases," says Meredith Cummins, CEO - NECA. Faster access to new treatments is essential for the 29,350+ Australians with neuroendocrine cancer. Pledge support at
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Meet Speaker #1 for the Melb NET Patient Forum, 28 Nov. 👉🏽Prof. Michael Michael,.With over 25 years of experience, Prof. Michael leads clinical research on NETs, focusing on biomarkers, chemoradiation therapies, and personalized medicine. 🔗 Register:
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Attending the COSA ASM on the Gold Coast? Don’t miss the COSA NET Support Care Breakfast on 15th November - a valuable opportunity to gain insights into the latest research, guidelines, and supportive care updates specifically for NETs. 👉🏽More info: #COSA
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