National Down Syndrome Society
@NDSS
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NDSS empowers individuals with Down syndrome and their families.
Washington, D.C.
Joined May 2010
🏆 The Dan Piper Award nominations are open at Winner receives:. ✔️ Trip to NYC Buddy Walk. ✔️ Photo in Times Square Video Presentation . ✔️ National recognition
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The NDSS office is closed in honor of the 4th of July. 🎆 We will reopen Monday, July 7.
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& countless calls have been made to the offices of elected officials. While this is not the outcome we hoped for, we want to thank you for your advocacy & assure you that we remain committed to advocating for a better world for all individuals with Down syndrome & their families.
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and will communicate with our local affiliate partners on next steps to provide the greatest support possible. Throughout this process, our community has made their voices heard loud and clear. More than 13,000 messages have been sent through our Action Alert system. .
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NDSS will continue to evaluate the impact on our community, who is affected, and what we can do next as changes take effect. We are accelerating our state-level work to ensure that states continue to provide critical services. .
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Unfortunately, the legislation includes substantial cuts and changes to the Medicaid program and imposes additional barriers to access for individuals with Down syndrome and other disabilities and their caregivers.
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Congress has officially passed the budget reconciliation bill, and the president is expected to sign it into law soon.
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Important update! Advocates are encouraged to CALL their House offices and urge them to vote no on proposals that place individuals with disabilities at risk of losing Medicaid coverage or result in a degradation of the program. Take digital action at
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Join us in welcoming Madison Essig as the Administrative Coordinator at NDSS, where she provides operational support to the President and CEO and all departments within NDSS. Welcome, Madison! We're so excited to have you on the team! 💙💛
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RT @KidneyPatients: Charlotte Woodward gives the Policy Summit an update on the Charlotte Woodward Organ Transplant Discrimination Preventi….
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A huge THANK YOU to @kidneyadvocacy for their tireless advocacy and leadership and for giving a voice to patients and transplant recipients. Together, we’re building a better world for all transplant patients! Take action on Charlotte's Bil at
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Today at the @KidneyPatients Public Policy Summit, Charlotte spoke passionately about the Charlotte Woodward Organ Transplant Discrimination Prevention Act, which is a critical step toward ending discrimination against people with disabilities in the organ transplant system.
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June is Alzheimer's disease and Brain Awareness Month. 🧠Did you know adults with Down syndrome are at increased risk of Alzheimer’s disease as they grow older? NDSS has a webpage on the topic and a free Alzheimer's disease and Down syndrome guidebook!
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A huge step toward ending discrimination against people with disabilities in the organ transplant system!🎉 This bipartisan win wouldn’t have been possible without the leadership of Reps Kat Cammack (R-FL) & Debbie Dingell (D-MI), and the advocacy of thousands across the country.
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🚨 Charlotte's Bill is heading to the House floor for a vote THIS WEEK! This is a critical step forward in protecting the rights of people with Down syndrome and other disabilities in the organ transplant process. Ask your reps to vote YES at
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The Dan Piper Award is given to an adult with Down syndrome who brings about greater public awareness and understanding of individuals with Down syndrome through everyday activities. đź‘Ź Does that sound like someone you know? Nominate them by July 21st at
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NDSS is closed Thursday, June 19 in recognition of Juneteenth. We will reopen Friday, June 20.
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