📢Pat is riding 125,000 miles in 125 days across 48 states on his 2025 Indian Pursuit motorcycle—honoring families impacted by #myotonicDystrophy (DM). 💚🏍️ Join Pat’s ride for families living with DM—make a donation today:

💚🏍️ Virginia is ready to welcome home Navy veteran and 9/11 first responder, & DM advocate Pat Cornell as he reaches the 125,000-mile milestone—continuing his record ride for #myotonicDystrophy awareness! Join the Newport News celebration Tuesday, Sept 2:

Join millions who have switched to Grok.

💬 Living with #myotonicDystrophy (DM1 or DM2) or a #Caregiver for someone who is? This July–August, follow our weekly prompts to #ShareYourStory!💚 Your experiences can improve care, coverage & understanding.✍️ This week’s topic: Family Dynamics 👉

💬 “I had to reconstruct my home to meet my needs.” 💬 “I spend hours acquiring special shoes.” 💬 “AFOs could prevent falls, but cost thousands without insurance.” How do accessible devices affect your life with #MyotonicDystrophy? 💚 ✍️ #ShareYourStory:

RT @myotonica_info: 2025年7月末日現在、筋強直性ジストロフィー患者登録依頼数は1,330名、協力施設数は405施設、協力医師数は838名となりました。. リンク先は神経・筋疾患患者登録「Remudy」です。..

RT @myotonica_info: 9月15日(月・祝)に筋強直性ジストロフィー患者会（DM-Family）が開催する「国際筋強直性ジストロフィー啓発の日 in 大阪」がOSAKA DAYSで紹介されました。.

💬 Living with #myotonicDystrophy (DM1 or DM2) or a #Caregiver for someone who is? This July–August, follow our weekly prompts to #ShareYourStory!💚 Your experiences can improve care, coverage & understanding.✍️ This week’s topic: the Accessible Equipment👉

💬 “Every appointment brings expenses.” 💬 “It’s been expensive to reconfigure our house.”💬 "We’ve had to take out loans to make our house more accessible." How does #MyotonicDystrophy affect your life? 💚 ✍️ #ShareYourStory

RT @RareDiseases: Tomorrow is #NationalNonprofitDay! We’re proud to celebrate with our 350+ #nonprofit Member organizations representing 30….

💬 Living with #myotonicDystrophy (DM1 or DM2) or a #Caregiver for someone who is? This July–August, follow our weekly prompts to #ShareYourStory!💚 Your experiences can improve care, coverage & understanding.✍️ This week’s topic: the Cost of DM👉

Thank you @RareDiseases CEO Pamela Gavin for bringing together @MyotonicStrong, @TESSResearch, @CureCoats, and @CFRI_CureCF. Great conversations on strengthening #RareDisease and #MyotonicDystrophy advocacy and building connections to help move our communities forward!

💬 “I wouldn’t have to overthink basic movements or conversations.” 💬 “I’m strong and a feminist, but my myotonia means my husband often orders for me. It helps, but it’s demeaning.” How does #MyotonicDystrophy affect your life? 💚 ✍️ #ShareYourStory

RT @Dyne_tx: Our Dynamos joined the DM community for Myotonic Dystrophy in Motion Awareness Month to show support for individuals and famil….

Join Dr. Andy Rohrwasser live on 🗓️ Friday, August 22nd at 12:00 PM Pacific / 3:00 PM Eastern for MDF's Ask the Expert: Genetics and #myotonicDystrophy! 👁️🧬.📝 Register to join 👉

🧠 Have questions about #myotonicDystrophy? Check out MDF's series of “Ask-the-Expert” webinars with DM experts in diverse specialties! Register once for all the 2025 sessions and get early access to recordings!.💬🔗

RT @myotonica_info: 2025年9月15日に筋強直性ジストロフィー患者会（DM-Family）が開催する「国際筋強直性ジストロフィー啓発の日 ティーパーティin大阪」にて、アビディティ・バイオサイエンスから参加者に向けたビデオメッセージを見ることができます。….

RT @PepGenTx: Today, we shared our financial results for the second quarter and recent corporate highlights. Learn more: .

💬 Living with #myotonicDystrophy (DM1 or DM2) or a #Caregiver for someone who is? This July–August, follow our weekly prompts to #ShareYourStory!💚 Your experiences can improve care, coverage & understanding.✍️ This week’s topic: Myotonia👉Get started:

💬 “Even when help exists, it may be unaffordable or unattainable.” 💬 “We use telemedicine.” 💬"It's frustrating to seek the care I need." How does accessing specialty care affect your life with #MyotonicDystrophy? ✍️💚🔗 #ShareYourStory at:

Our amazing community members living with with juvenile-onset #myotonicDystrophy are having an incredible time at MDF's #CampJOA! This week, they are fishing 🎣 ziplining, honing archery skills 🏹 & enjoying a great summer camp experience! 🌞 Learn more about Camp JOA:

🌍September 15th is International #MyotonicDystrophy Awareness Day! 📢 Raising awareness can be as easy as wearing green. 💚 Learn how your voice can help improve care and change the future of DM: