UPenn Million Dollar Bike Ride by ODC
@MDBRide4Rare
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Riding for rare disease research since 2014! Check us out! https://t.co/KmHVtNwzXA
Philadelphia, PA
Joined March 2015
🚨 Early Bib Pickup for Cyclists & Walkers!.📍 Penn Ice Rink - 1 Jones Way, Philadelphia, PA 19104.📅 June 11–13:.🕚 Wed/Thu 11–3PM.🕖 Fri 11–7PM.✅ Skip the $10 fee & Saturday rush. 🙌 You can grab bibs for teammates too!.#BibPickup #MDBR #PennMedMDBR2025
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RT @ODC_UPenn: 🧬 Researchers: Apply now for the 2025 Wiedemann-Steiner Syndrome grant!. 🔹 3 grants @ $90K.🔹 Focus: iPSC/cell models & natur….
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🚴♀️ Last chance! Online registration for the Million Dollar Bike Ride closes TONIGHT (June 8) at midnight!.Register now to skip the lines 👉 🚨 Miss it? Same-day registration available on June 14 — arrive early!.#MillionDollarBikeRide #PennMedMDBR2025
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RT @ODC_UPenn: Today on #GM1AwarenessDay, we stand with the GM1 community in raising awareness for this rare, devastating disease. At the….
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RT @ODC_UPenn: Congratulations to the #CDKL5Program of Excellence Pilot Grant 2025 awardees! These grants, awarded by the Loulou Foundation….
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RT @ODC_UPenn: 🚨 GeneReviews is at risk. This vital resource helps diagnose & manage inherited conditions. Call (202) 224-3121 to urge your….
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🚨 Hurry, Time's Running Out! 🚨. Get 15% OFF MDBR registrations until tomorrow, April 1st! Plus, April 1st is the final day to secure your preferred jersey size—act fast! ⏳. Use Promo Code: MDBRJERSEY15. Register now and save! 🏃♂️💨 #MDBR2025 #DontMissOut #JerseySale
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RT @ODC_UPenn: Don't miss session 2: Cast Studies #1 - Proactive Data Sharing taking place Monday, March 24 @ 11am-1pm ET. See you there!….
www.orphandiseasecenter.med.upenn.edu
Lysosomal Storage Disease Data Sharing Workshop, Webinar Series The Orphan Disease Center (ODC) in collaboration with the Critical Path for Lysosomal Diseases (CPLD) are putting on a Lysosomal...
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🚨🚨20% OFF MDBR REGISTRATION - TODAY ONLY! 🚨🚨.Join us Saturday, June 14th to ride (or walk) for rare diseases! Register here: and take advantage of the #FirstDayOfSpring promo! #PennMedMDBR2025 #Raredisease #ride4rare
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RT @ODC_UPenn: 📷 SAVE THE DATE 📷 04/09/25.The @ChildrensPhila Neuroscience Center & Research Institute are holding a private screening of t….
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RT @ODC_UPenn: The Jack Bear Foundation, in collab with the ODC, will provide a 1-yr grant to support several critical components of basic,….
orphandiseasecenter.squarespace.com
JACK BEAR FOUNDATION 2025 GRANT PROGRAM The Jack Bear Foundation, in collaboration with the Orphan Disease Center, will provide a 1-year grant to support several critical components of basic,...
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🚴♂️🌟 Join us for the 12th Annual Million Dollar Bike Ride on June 14, 2025! Ride, walk, or volunteer to help raise funds for rare diseases. Registration is NOW OPEN! Let's make a lasting impact! 👉 Register today!.#PennMedMDBR2025
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RT @ODC_UPenn: 🚨 Make an Impact: 5 Calls for Rare Disease 🚨. It’s Rare Disease Day! 💪 Take action now! Speak up for your community by makin….
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Mark those calendars! June 14th MDBR 2025! Registration will be opening VERY soon! #pennmedmdbr2025 #mdbr #raredisease #bikeride
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RT @ODC_UPenn: The ODC and Loulou Foundation are pleased to announce the 2025 CDKL5 Program of Excellence Pilot Grant Program. This funding….
orphandiseasecenter.squarespace.com
The ODC and Loulou Foundation CDKL5 Pilot Grant Program provides a one‐year grant for $150,000.00 (total cost) to support research related to CDKL5 Deficiency Disorder (CDD). The number of awards is...
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RT @elizabethmgon: The Uplifting Athletes Young Investigator Draft is an inspiring event that highlights the invaluable role of research in….
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Deadline approaching! Apply today!.
MDBR 2025 is now accepting new team applications! Want to participate in the ride as a way to fundraise for and generate interest in your disease area? Join us on June 14th to ride and raise money for your rare disease! Apply today: #raredisease
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RT @ODC_UPenn: Calling all Rare Disease Supporters! .Win tickets to the Uplifting Athletes Young Investigator Draft on February 1, 2025! De….
www.linkedin.com
Calling all Rare Disease Supporters! Win tickets to the Uplifting Athletes Young Investigator Draft! The Orphan Disease Center is excited to partner with Uplifting Athletes during this year’s Young...
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Congrats to the 2024 #MDBR grant awardees! Thirty-eight projects were funded with $2.6M raised for 34 #rarediseases. Thank you to our MDBR community for their fundraising & commitment to the cause. See the complete list of projects here:
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