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Lily Mae Foundation

@LilyMae_UK

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Supporting Parents and Families after a Stillbirth, Neonatal Death, Miscarriage or Medical Termination.

Joined November 2010
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@LilyMae_UK
Lily Mae Foundation
5 years
Still Parents Podcast. 'Talking all things babyloss from a male perspective.'👼 Listen and download now on a range of platforms:
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@GillianRudd
Gillian Rudd
1 month
@CMidOEngland @CuddleCot @worstgirlgang @MichelleWelshMP @AchingArms One of the lead authors of Pregnancy Loss Review stands up to highlight the fact that their recommendations have not been actioned. @MichelleWelshMP praises the report and says she & @AndyMacNaeMP are "absolutely 100% committed to action". APPG on Baby Loss & Maternity
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@GillianRudd
Gillian Rudd
1 month
@CMidOEngland @CuddleCot @worstgirlgang @MichelleWelshMP Leanne Turner @AchingArms makes a moving and well-received contribution highlighting the lack of progress over the last 15 years. "Please, can we please get on with it". APPG on Baby Loss & Maternity - 20 October 25
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@GillianRudd
Gillian Rudd
1 month
@CMidOEngland @CuddleCot @worstgirlgang Michelle Welsh @MichelleWelshMP says that whilst the theory is good, "it's not happening". And that "the NHS feels like it can be a closed shop". She praises the work of organisations like Ebony Bonds. APPG on Baby Loss & Maternity - 20 October 25
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@GillianRudd
Gillian Rudd
1 month
@CMidOEngland @CuddleCot @worstgirlgang Rachel from Ebony Bonds ( https://t.co/GLW6Ezkly2) highlights lack of trust from black families and the lack of engagement from local NHS organisations. APPG on Baby Loss & Maternity - 20 October 25
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@GillianRudd
Gillian Rudd
1 month
@CMidOEngland @CuddleCot Laura from the @worstgirlgang ever has asked about separate waiting areas for scans. Consensus is that this is important. Chris Binnie highlights that it's more than having the room - it's a cultural shift & about how staff operate. APPG on Baby Loss & Maternity - 20 October 25
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@GillianRudd
Gillian Rudd
1 month
@CMidOEngland Now onto questions from the room. Sian from @CuddleCot asks about high turnover in bereavement midwives and actions that can be taken. Bex Walsh highlights the need for adequate staffing, training and seeing the difference being made. APPG on Baby Loss and Maternity Event
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@GillianRudd
Gillian Rudd
1 month
Kate Brintworth @CMidOEngland: "Everyone knows the saying that no-one should have to bury a child. But many of you in this room have had to do just that. And that has a deep impact." APPG on Baby Loss and Maternity Event - 20 October 2025
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@GillianRudd
Gillian Rudd
1 month
"Our services are not perfect vessels. They are tired and cracked." High-quality bereavement care is transformative. "It's not only the golden thread but the gold itself." Chris Binnie at the APPG on Baby Loss and Maternity Event - 20 October 2025
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@GillianRudd
Gillian Rudd
1 month
Chris Binnie, bereaved parent: "When bereavement care is done well, they are met with compassion, time and continuity." He discusses the relationship between experiences, trust between families & clinicians and service improvement. APPG on Baby Loss & Maternity Event - 20 Oct 25
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@GillianRudd
Gillian Rudd
1 month
@RUHBath "We need to train in a way that is psychologically safe". Bex also highlights the need for adequate funding, clearly directed to bereavement care. Bex Walsh, Bereavement Lead Midwife at @RUHBath at the APPG on Baby Loss and Maternity Event - 20 October 2025
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@GillianRudd
Gillian Rudd
1 month
Bex Walsh, Bereavement Lead Midwife at @RUHBath is now speaking, highlighting the need for "up-to-date mandated care" in order to deliver high quality bereavement care. This should be both specific and flexible. APPG on Baby Loss and Maternity Event - 20 October 2025
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@GillianRudd
Gillian Rudd
1 month
@CHarmerSands @SandsUK @AliciaBurnettUK @MichelleWelshMP Ayesha Anandji Demetriou shares the experience of losing her twins and the poor care she received after. "No parent should sit lost in answers because no-one has time to talk to them about what's happened" APPG on Baby Loss and Maternity Event - 20 October 2025
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@GillianRudd
Gillian Rudd
1 month
@CHarmerSands @SandsUK @AliciaBurnettUK @MichelleWelshMP Good to hear @MichelleWelshMP talk about the need to focus on wider issues beyond the NBCP - we need system change, including consideration of staffing levels and training. APPG on Baby Loss and Maternity event - 20 October 2025
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@GillianRudd
Gillian Rudd
1 month
@CHarmerSands @SandsUK @AliciaBurnettUK @MichelleWelshMP Whilst it's good that Trusts have signed up to the NBCP, signing up doesn't mean anything on its own. @MichelleWelshMP compares it to gym membership - you can sign up and not go. That's not enough. APPG on Baby Loss and Maternity - 20 October 2025
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@GillianRudd
Gillian Rudd
1 month
@CHarmerSands @SandsUK @AliciaBurnettUK "Why is it that families have to keep telling the story of the most horrendous thing that's ever happened to them before they get answers?" Michelle Welsh @MichelleWelshMP at the APPG on Baby Loss and Maternity event on 20 October 2025
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@GillianRudd
Gillian Rudd
1 month
@CHarmerSands @SandsUK Alicia Burnett @AliciaBurnettUK is now speaking. She acknowledges the progress but says we need to talk more about what is being done. "Stop telling black women that we are more likely to die." "We're exhausted...and it's compounding our trauma". APPG on Baby Loss and Maternity
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@GillianRudd
Gillian Rudd
1 month
"We need to change the culture of how we react when a baby dies." We need openness and compassion. The difference that good bereavement care can make is immeasurable, as evidenced by the testimonies shared by @CHarmerSands from @SandsUK (APPG on baby loss and maternity event)
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@GillianRudd
Gillian Rudd
1 month
We're now moving onto the panel discussion. @CHarmerSands opens by acknowledging the progress made but the distance still to go in bereavement care post-baby loss. (APPG on Baby Loss and Maternity event - 20 October 2025)
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@GillianRudd
Gillian Rudd
1 month
Michelle Welsh @MichelleWelshMP further reflects on the recent baby loss debate, recognising the courage of families she has spoken to, as well as the long-awaited and much-needed changes that are required.
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@GillianRudd
Gillian Rudd
1 month
Baroness Gillian Merron highlights the need to support fathers, partners and siblings too. So proud to be a Trustee for the Lily Mae Foundation @LilyMae_UK who offer this as standard and have supported my own family post-loss. (APPG on Baby Loss and Maternity event - 20 Oct 2025)
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