Lymphoma and Related Diseases Registry
@LaRDRregistry
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Real world data to improve patient care and clinical outcomes
Joined November 2022
Dear lymphoma colleagues and collaborators, we will see you on Bluesky. This account will no longer be monitored.
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Eliza Chung, Project Manager @LaRDRregistry and Dr Tesfahun Eshetie @tesfuc, Research Fellow @ROSA_Project co-chaired the oral presentation session at the @ACTA_org Registries Symposium 🎤.#ACTA2024
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The 2024 @LaRDRregistry annual report is now available!. Check it out on our website or contact us for a printed copy.
lardr.org
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Thank you to all the investigators who presented posters at #BLOOD2024 on behalf of the @LaRDRregistry!. And thanks to those that stopped by!.
lardr.org
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RT @chanyooncheah: @AustralasianLy1 @LaRDRregistry @lymphomaOz @AustralasianLy1 chair @prp_diciaccio presenting on the wonderful achievemen….
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RT @chanyooncheah: @LaRDRregistry chair @OpatStephen summarising the major wins of the Lymphoma registry at #BLOOD24 .-now>8000 cases cover….
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Another breakfast meeting together! @AustralasianLy1 @lymphomaOz 🥐🍈🍉☕️.
Thank you to everyone that joined us, both in person and online 👏.
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Thanks for speaking @prp_diciaccio !.
Thanks everyone who attended the Lymphoma Breakfast this morning at Blood 2024. An honour to share the stage with incredible colleagues and inspirational consumer advocates @AustralasianLy1 @lymphomaOz
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@LaRDRregistry is co-hosting a breakfast meeting in 20 mins at 7am (AEST) with @AustralasianLy1 & @lymphomaOz!. Walk-ins to the Sky Room at the Brisbane Convention Centre and online attendance (link below) are welcome!
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@LaRDRregistry is presenting 4 posters at @hsanz_org_au #BLOOD2024 at 5:30 PM (AEST)! Come to chat with us at HP084 (DHAC in RR NHL), 085 (bulky disease analysis), 107 (aaIPI in DLCBL), 112 (bulky disease literature review)!.@DrElizaHawkes @erica_m_wood @ZoeMcquilten @OpatStephen.
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RT @WomenInLymphoma: ⏰ Time now to register for WiL's upcoming #webinar #indolentlymphoma .➡️ @SRoulland #KarinTart….
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The Project Manager of @LaRDRregistry talked about how the registry engages with consumers and the community in real-world research at the @Monash_SPHPM showcase seminar today.
lardr.org
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RT @ACTA_org: The ACTA 2024 Clinical Trials and Registries Symposium is fast approaching, and we would like to remind you that early bird r….
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@LaRDRregistry generates real-world evidence to improve lymphoma diagnosis & care, and inform optimal treatment strategies for patients outside of trials. We proudly partner with consumer representatives @lymphomaOz to address patients’ needs. @BloodSynergy #WorldPatientSafetyDay.
On #WorldPatientSafetyDay, check out these five tips to help you get an accurate diagnosis:. ✅ Share your medical history.✅ Ask questions.✅ Follow up on test results.✅ Track appointments & treatments.✅ Get a second opinion, when needed. Let’s get it right, make it safe!.
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Confirmed program for the Lymphoma Breakfast Meeting 2024! .Chairs: @AllisonBarra1, Joel Wight.@AustralasianLy1, @LaRDRregistry & @lymphomaOz: @prp_diciaccio, @OpatStephen, Sharon Winton.Consumer engagement in research: Janne Williams.Panel discussion.
eventbrite.com.au
Please join us for breakfast during BLOOD 2024
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Register now for the hybrid Lymphoma Breakfast Meeting to hear project updates on improving lymphoma patient outcomes! Breakfast will be served for in-person attendees ➡️🥑🍞. @AustralasianLy1 @LaRDRregistry @lymphomaOz .
eventbrite.com.au
Please join us for breakfast during BLOOD 2024
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⭐️⭐️⭐️ The 8000th participant ⭐️⭐️⭐️was recruited to the Lymphoma and Related Diseases Registry today! .Congratulations and thanks to all participants, site and project staff, investigators and supporters.
lardr.org
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Here's our new LaRDR publication on the outcomes of relapsed/refractory CLL patients. Many thanks to all the patients, sites and investigators who contributed to the registry study. @The_IMJ @Diva_Baggio @erica_m_wood @DrElizaHawkes @OpatStephen .
onlinelibrary.wiley.com
Population-based studies have demonstrated a high risk of second cancers, especially of the skin, among patients with chronic lymphocytic leukaemia (CLL). We describe age-standardised incidence...
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Huge thanks to LaRDR investigators for supporting our registry study and those who stopped by to hear about our work. Here are some of us at EHA: @erica_m_wood, Luke Wang, Eliza Chung @LaRDRregistry, @ZoeMcquilten, @OpatStephen
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