
LGS Foundation
@LGS_Foundation
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The LGS Foundation is dedicated to improving the lives of individuals impacted by LGS through advancing research, awareness, education, and family support.
San Diego, CA
Joined October 2009
We're offering a limited number of #scholarships for healthcare providers to take part in the Meeting of the Minds. If you're passionate about improving outcomes for those with LGS, we want to hear from you. 🧠 Email us @ Research@LGSFoundation.org by June 24 to learn more!
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RT @sandi_lam: Excited to see our @PCORI sponsored comparative effectiveness research on #epilepsy #LGS study protocol published @Frontiers….
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📣 A limited number of scholarships are still available for LGS healthcare providers to participate in a unique opportunity to help shape the future of LGS care. Don’t miss out—email us at Research@LGSFoundation.org by June 16 to learn more. 🔗
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A couple of LGS Foundation team members are headed to BIO International Convention this week!🧬✨. We’re excited to be part of the action — learning from industry leaders, exploring emerging trends, and representing the important work we do every day. 👏. #LennoxGastautSyndrome
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#WhereIsSavannahRaineToday She’s at -#BIO2025 with our Executive Director @TracyDixonSalaz. Let’s find better treatments and cures!.
The world can’t wait! #BIO2025 We couldn’t save our sweet #SavannahRaine from #LennoxGastautSyndrome but we will fight on for better treatments and cures. #RareDisease #Epilepsy #WhereIsSavannahRaineToday @LGS_Foundation
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RT @IridiumContEd: You’re not alone. 💜. If LGS is part of your world, join a virtual session created in collaboration with the @LGS_Foundat….
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RT @cmeoutfitters: Caring for patients with hashtag#LennoxGastautSyndrome and hashtag#DEEs requires up-to-date knowledge and a team-based a….
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Save the Date for the 10th International Family & Professional Conference!. 📆 July 9-11, 2026.📍Orlando, FL. This powerful event is designed to better understand the causes, treatments, and everyday challenges of living with #LennoxGastautSyndrome. 🔗
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📣 Limited number of scholarships for LGS healthcare providers to participate in a unique opportunity! Be part of shaping the future of LGS care. Email us at Research@LGSFoundation.org by June 16th for more information. 🔗 View Agenda & Learn More at
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Our Epilepsy Surgery page offers comprehensive information on various epilepsy surgeries to help individuals and families understand their options. 👉 Learn more at #LennoxGastautSydrome #Epilepsy #EpilepsySurgery
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"Nonseizure- and Seizure-Related Benefits of Cannabidiol Treatment in the Real World" highlights not just the reduction in seizures, but also improvements in cognition, communication, emotional well-being, and quality of life. 👉 #LennoxGastautSyndrome
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This bi-annual Conference pushes the conversation about research beyond only treating the symptom of seizures but also finding treatments that target the whole syndrome. Registration is by invite only. If you are interested in attending, email us at Research@LGSFoundation.org
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