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LGS Foundation Profile
LGS Foundation

@LGS_Foundation

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The LGS Foundation is dedicated to improving the lives of individuals impacted by LGS through advancing research, awareness, education, and family support.

San Diego, CA
Joined October 2009
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@LGS_Foundation
LGS Foundation
17 hours
Our Adults with LGS section is designed to guide families and caregivers through the transition to adulthood. No matter where you are in the process, we have tools to help you plan for what’s ahead. 👉 Explore now:
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@LGS_Foundation
LGS Foundation
15 days
We're offering a limited number of #scholarships for healthcare providers to take part in the Meeting of the Minds. If you're passionate about improving outcomes for those with LGS, we want to hear from you. 🧠 Email us @ Research@LGSFoundation.org by June 24 to learn more!
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@LGS_Foundation
LGS Foundation
17 days
RT @sandi_lam: Excited to see our @PCORI sponsored comparative effectiveness research on #epilepsy #LGS study protocol published @Frontiers….
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@LGS_Foundation
LGS Foundation
17 days
📣 A limited number of scholarships are still available for LGS healthcare providers to participate in a unique opportunity to help shape the future of LGS care. Don’t miss out—email us at Research@LGSFoundation.org by June 16 to learn more. 🔗
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@LGS_Foundation
LGS Foundation
20 days
A couple of LGS Foundation team members are headed to BIO International Convention this week!🧬✨. We’re excited to be part of the action — learning from industry leaders, exploring emerging trends, and representing the important work we do every day. 👏. #LennoxGastautSyndrome
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@LGS_Foundation
LGS Foundation
20 days
#WhereIsSavannahRaineToday She’s at -#BIO2025 with our Executive Director @TracyDixonSalaz. Let’s find better treatments and cures!.
@TracyDixonSalaz
Tracy Dixon-Salazar
20 days
The world can’t wait! #BIO2025 We couldn’t save our sweet #SavannahRaine from #LennoxGastautSyndrome but we will fight on for better treatments and cures. #RareDisease #Epilepsy #WhereIsSavannahRaineToday @LGS_Foundation
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@LGS_Foundation
LGS Foundation
20 days
Looking forward to attending #BIO2025 in Boston this week. Hope to see you there!
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@LGS_Foundation
LGS Foundation
20 days
RT @TheNotoriousEEG: This is going to be a great meeting - hope to see you there!!.
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@LGS_Foundation
LGS Foundation
21 days
RT @IridiumContEd: You’re not alone. 💜. If LGS is part of your world, join a virtual session created in collaboration with the @LGS_Foundat….
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@LGS_Foundation
LGS Foundation
21 days
RT @cmeoutfitters: Caring for patients with hashtag#LennoxGastautSyndrome and hashtag#DEEs requires up-to-date knowledge and a team-based a….
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@LGS_Foundation
LGS Foundation
22 days
Save the Date for the 10th International Family & Professional Conference!. 📆 July 9-11, 2026.📍Orlando, FL. This powerful event is designed to better understand the causes, treatments, and everyday challenges of living with #LennoxGastautSyndrome. 🔗
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@LGS_Foundation
LGS Foundation
26 days
📣 Limited number of scholarships for LGS healthcare providers to participate in a unique opportunity! Be part of shaping the future of LGS care. Email us at Research@LGSFoundation.org by June 16th for more information. 🔗 View Agenda & Learn More at
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@LGS_Foundation
LGS Foundation
29 days
Our Epilepsy Surgery page offers comprehensive information on various epilepsy surgeries to help individuals and families understand their options. 👉 Learn more at #LennoxGastautSydrome #Epilepsy #EpilepsySurgery
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@LGS_Foundation
LGS Foundation
1 month
Pediatric neurologist Dr. Shafali Jeste will explain neurodevelopmental disorders: what they are, how they’re diagnosed, how they can overlap with epilepsy, and how the correct diagnosis can help unlock proper supports and services for your child.
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@LGS_Foundation
LGS Foundation
1 month
"Nonseizure- and Seizure-Related Benefits of Cannabidiol Treatment in the Real World" highlights not just the reduction in seizures, but also improvements in cognition, communication, emotional well-being, and quality of life. 👉 #LennoxGastautSyndrome
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@LGS_Foundation
LGS Foundation
2 months
This bi-annual Conference pushes the conversation about research beyond only treating the symptom of seizures but also finding treatments that target the whole syndrome. Registration is by invite only. If you are interested in attending, email us at Research@LGSFoundation.org
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@LGS_Foundation
LGS Foundation
2 months
🚨 New Publication Alert 🚨. "Neuromodulation Strategies in Lennox‐Gastaut Syndrome: Practical Clinical Guidance from the Pediatric Epilepsy Research Consortium" offers essential insights into using VNS, DBS, and RNS to manage the challenges of LGS. 📖
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@LGS_Foundation
LGS Foundation
2 months
Pediatric neurologist Dr. Shafali Jeste will explain neurodevelopmental disorders: what they are, how they’re diagnosed, how they can overlap with epilepsy, and how the correct diagnosis can help unlock proper supports and services for your child.
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@LGS_Foundation
LGS Foundation
2 months
RT @TracyDixonSalaz: 2025 Savannah Salazar Celebration of Life Video via @YouTube.
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@LGS_Foundation
LGS Foundation
2 months
The LGS Foundation is dedicated to providing a comprehensive LGS Learning and Resource Center for all! . Safety is a constant concern for those with LGS. Children and adults with LGS have frequent seizures and are at high risk of injury. 👉 Learn more:
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