LGDA_EU Profile Banner
LGD Alliance Europe Profile
LGD Alliance Europe

@LGDA_EU

Followers
102
Following
28
Media
75
Statuses
295

The LGD Alliance Europe is dedicated to patient support, advocacy and research to find treatments and cures for lymphangiomatosis and Gorham's disease.

Joined March 2016
Don't wanna be here? Send us removal request.
@LGDAlliance
LGDAlliance
3 years
DISH A friendly reminder! Our monthly The DISH (Drop in and Share) support group will meet on Saturday, August 13 at 10:00 am Eastern Time! Join here: https://t.co/2wN5bXeOCo @LGDA_EU
1
1
2
@makinenlab
vascular development lab
3 years
Looking forward to this conference on Vascular Anomalies in Brussels from 31 Jan to 3 Feb 2023, organized by the @VACure1 network! Deadline for abstract submission 15 Nov 2022. https://t.co/giPk05C98G
0
9
13
@LGDAlliance
LGDAlliance
3 years
Join Taylor and Liz, moderators for LGDA’s support groups, on their @NotSoRarePodcast as they share their experiences. · https://t.co/YthR3atV8f · https://t.co/CoRZyylSVn... @LGDA_EU @NotSoRarePodcast
0
1
0
@Mikekel67699536
Mike kelly
3 years
Big THANK YOU to all who made the Million Dollar Bike Ride such a special experience. @LGDAlliance @LGDA_EU
0
1
2
@Mikekel67699536
Mike kelly
3 years
CLA warriors riding in the MDBR last Saturday in Philly. Thank you for all you do for our CLA community😀🙏 @LGDAlliance @LGDA_EU
0
1
3
@Mikekel67699536
Mike kelly
3 years
https://t.co/n64YBUFP7J Sophie Ferry explains how research funded by Million Dollar Bike Ride has changed her life. Please help team LGDA, LMI and LGDA Europe raise funds for life changing research for those living with complex lymphatic anomalies @LGDAlliance @LGDA_EU
0
1
0
@LGDAlliance
LGDAlliance
3 years
Dr. Michael Dellinger to present "New Diagnostic Tools and Treatment for Central Lymphatic Abnormalities". A webinar series on complex lymphatic anomalies. Watch the recorded webinar. (link to https://t.co/Sg2SRbrnxG) @LGDA_EU #rarediseases #czinitiative #RareAsOne #CZIscience
0
3
3
@LGDAlliance
LGDAlliance
3 years
Bikers Wanted! Plan on attending UPenn’s 2022 Million Dollar Bike Ride on June 11th. Don’t forget to register at https://t.co/HhABiFWIi7 Can’t attend in person, there is a virtual spin class on June 6th at 7:00 pm. @LGDA_EU #MBDR2022
0
1
0
@LGDA_EU
LGD Alliance Europe
3 years
Today is #LGDAwarenessDay! Join our celebration! Become a member and make a small monthly contribution that will enable us to keep working to support, educate and give hope to patients with CLA's and their families. Become a member here: https://t.co/aGmE9PGLPw
0
1
0
@LGDAlliance
LGDAlliance
3 years
EXTRA! EXTRA! READ ALL ABOUT IT! May 26 is Awareness Day and LAUNCH DAY for special initiatives that honor our origins and patient community! @LGDA_EU
0
1
0
@LGDAlliance
LGDAlliance
3 years
The Orphan Disease Center’s MDBR Young Investigator grant is a $25,000 award that supports early career researchers pursuing research ideas related to lymphatic anomalies. https://t.co/tPBTLfB0N3 #MDBR2022 #UPENN #research #rarediseases @LGDA_EU
0
2
1
@LGDA_EU
LGD Alliance Europe
3 years
You can also support Team CLA Warriors in the 2022 Million Dollar Bike Ride event. Want to know how? Download the Team CLA Warriors toolkit here: ​ https://t.co/iC43CbaBwC
0
0
0
@LGDAlliance
LGDAlliance
3 years
Share your experiences finding medical care for vascular anomalies in a study being conducted by Bryan Sisk, MD and Anna Kerr, PhD. Must be over 18 years of age or older. Open to US and non-US participants. Questions – Contact (link https://t.co/PQLFt1NW1r) @LGDA_EU
0
1
1
@LGDA_EU
LGD Alliance Europe
3 years
We are gearing up to better treatments and cures: The LGDA Europe is joining forces with LGDA USA and LMI to support Team CLA Warriors in the 2022 Million Dollar Bike Ride event. Get involved and be part of the MDBR here: https://t.co/Vv3PY5pBpQ
0
0
1
@LGDAlliance
LGDAlliance
4 years
Special Topic Support Group May 28 at 11:00 am Eastern Time Sponsored by the Young Adults and Millennial Support Groups. This special support session is dedicated to family planning and reproductive health. Register Today! https://t.co/EVCss2irvV @LGDA_EU #rarediseases
0
2
1
@LGDAlliance
LGDAlliance
4 years
Share your experiences finding medical care for vascular anomalies in a study being conducted by @Sisk_MD and @DrAnnaKerr Must be over 18 years of age or older. Open to US and non-US participants. https://t.co/PQLFt1wl9T @LGDA_EU #rarediseases #WUSTL
0
2
2
@LGDA_EU
LGD Alliance Europe
4 years
Thank you @ISSVA_org for the great conference in Vancouver. @vascern was well represented at the conference. See you soon again and keep up the good work for our CLA patients. #networking for #lymphatic and #vascularanomalies #issva22 @CMTCOVM @hevas_nl
0
2
12
@LGDAlliance
LGDAlliance
4 years
Worldwide LGD Awareness Day in on May 26. Join us in sharing our CLA story. Share your stories using #lgdawareness. https://t.co/7MNZddha0Y #LGDAwareness @LGDA_EU #rarediseases
0
1
1
@vascern
VASCERN
4 years
We're proud of the work our patient advocates are doing for the patient community, and we're looking forward to hearing about the #ISSVA conference. @hevas_nl @CMTCOVM @LGDA_EU
@hevas_nl
HEVAS
4 years
Patient advocates unite at ISSVA @CLOVESSyndrome @projectfava @CMTCOVM @LGDA_EU 🧬
1
4
10
@LGDAlliance
LGDAlliance
4 years
Come, ask questions, and share your experiences! Join us for our DISH monthly support group on Saturday, May 14 at 10:00 am ET. Open to our global CLA community of both patients and parents. https://t.co/2aiALuy9HN @LGDA_EU #rarediseases #supportgroups
0
1
1