While scans are critical for staying ahead of #LiFraumeni syndrome-related cancers, the emotional toll of routine screenings can be heavy. Next up in the LFSA Legacy of Hope webinar series, Dr. Rowan Forbes-Shepherd of @theNCI will share an insightful look at new research on

Relatively resistant to cancer development, elephants carry multiple copies of p53, indicating a potential strategy against cancer predisposition inspired by nature. Learn more about recently published research out of the National Cancer Centre Singapore based on the hypothesis.

Climb for a Cure is going strong this summer to raise funds for the LFSA Youth Workshop in August at @DanaFarber and @BostonChildrens. Erica's team climbed the 199 steps of the Cape May Lighthouse this month and currently is at 98% of their $10,000 fundraising goal:

The @AACR has published its 2025 update on screening recommendations for individuals with Li-Fraumeni syndrome. Please visit and share the details, available at The LFSA Genetic Counseling Advisory Group helped provide clear descriptions of the changes

The Fitzgerald family and the inspiring legacy of Cole Fitzgerald are helping to bring new light to Li-Fraumeni syndrome and how early detection can save lives and improve outcomes. Research on new screening and treatment options remains promising. Dr. David Malkin, LFSA Medical.

We're inspired by Climb for a Cure 2025 efforts underway - join the movement!. Erica is climbing the 199 stairs of the Cape May Lighthouse next month and already raised nearly $8,000!. Hope Hunters for Cody has rallied their network to raise more than $3,800 walking in hope and

Seeking participants 18-29 years old for @theNCI research study that is developing a mental health resource for young adults with Li-Fraumeni syndrome. Learn more about what is involved, study eligibility and compensation for time at #lifraumeni

Presented at @ASCO this week, @DanaFarber researchers shared findings on whole-body MRI as a crucial test modality for individuals with Li-Fraumeni syndrome. The prospective cohort study found annual whole-body MRIs contribute substantially to detection of asymptomatic localized

Climb for a Cure 2025 is open! Run, walk, hike, bike or organize an activity to rally support anywhere, anytime this summer. There are many ways to participate. Create a team, host an event in-person or virtually, or join others in fundraising to support the 2025 LFSA Youth.

Highly informative and interactive, the 2025 LFSA 5th International Youth Workshop is complimentary for LFS youth and their caregivers. Submit an interest form today at This unique experience empowers youth with #LiFraumeni syndrome to make lifelong peer

Families with Li-Fraumeni syndrome face challenges with incredible hope, strength and dignity. The LFS community inspires Dr. Jane Churpek, Physician Scientist @UWMadison, who remains dedicated to prevention and to a future without cancer diagnosis. Share her message — and

Improving the quality of life for those in the Li-Fraumeni syndrome community is at the heart of the groundbreaking work computational biologist David Hoyos is leading at @MSKCancerCenter. Research on therapies unprecedented in LFS, such as immunotherapies and mRNA vaccines, aim

In 1969, @NIH scientists Drs. Li and Fraumeni first reported a rare familial syndrome involving multiple cancers. Today, the NIH is the single largest public funder of biomedical research in the world. Recent funding cuts impacting NIH and @theNCI  have far-reaching implications.

The Toronto Protocol provides a surveillance tool to help those with #LiFraumeni syndrome identify tumors at the earliest stage #earlydetection is at the heart of effective intervention. Hear from the protocol’s lead investigator, David Malkin, MD, @SickKidsNews , Toronto, as

RT @DanaFarber: While most cancers happen by chance, some are passed down through family genes. Understanding cancer genetics can lead to e….

Today is International Li-Fraumeni Syndrome (LFS) Awareness Day. Join LFSA to spread lifesaving resources about the importance of #genetictesting and early detection. Share powerful stories and join upcoming webinars to connect directly with #lifraumeni experts. Please amplify

In partnership with @BostonChildrens and @DanaFarber, the LFSA 5th International Youth Workshop will be held August 15-17, 2025. A cornerstone of Legacy of Hope, this unique experience for youth with Li-Fraumeni syndrome (LFS) empowers them to make lifelong peer connections.

An important update on new Li-Fraumeni syndrome screening recommendations is available for the LFSA community to share, part of impactful new programming launching this month. Early cancer detection contributes to increased survival. Every few years, an expert panel of LFS.

Women with Li-Fraumeni syndrome have a higher risk of developing breast cancer - early detection saves lives. This LFSA Legacy of Hope webinar will focus on breast cancer screening, including why it's important, how it works, risks, who should get screened and types of tests

Seeking research study participants, @DanaFarber is leading an IRB-approved INFORM study utilizing a blood test to screen for cancers with goal to help guide the next steps for diagnosis. Learn more today #lifraumeni.