Loeys-Dietz Syndrome
@LDSFoundation
Followers
906
Following
14
Media
3K
Statuses
6K
Encouraging education, fostering research, and providing support for the Loeys-Dietz community.
Canada & United States
Joined June 2011
"It makes us part of something." Marta of Lisbon, Portugal -- who lives with #Loeysdietzsyndrome -- shares how our 2024 Global Virtual Conference is helping her and her family access expert knowledge and community. Register now:
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Congratulations and THANK YOU from the bottom of our hearts! Our community REALLY showed up yesterday for LDS Day of Giving. We raised over $16K and counting. do we want to try to get to $20K by the weekend? There is still time to make a gift:
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Today's the big day! Support our 2024 Loeys-Dietz Day of Giving. There are just 8 hours left to make a big difference! 81 cents of every dollar you give supports the mission you love! Thank you! #loeysdietz
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Download this free Kids Activity Booklet to celebrate Loeys-Dietz Awareness Month 2024. #loeysdietzawarenessmonth #loeysdietz #loeysdietzsyndrome #kids
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"You should always trust your instincts. The doctors did not believe that I had anything. I knew something was wrong." That's Nicole's real about life with LDS. #loeysdietzrealreels #loeysdietzawarenessmonth #loeysdietzsyndrome.
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Congratulations to the adult and child community artwork contest winners, Stephanie Morales and Ariele Damaa. Their unique, creative designs are featured on select LDS Awareness Month merchandise. Get yours!
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Share your story! What's your real? What do you want people to know about life with LDS? It's easy to spread awareness, just click. #loeysdietzsyndrome #loeysdietzawareness #loeysdietz #rareconditions #loeysdietzawarenessmont
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Thinking about participating in a research study? Check out current studies: #loeysdietz #loeysdietzsyndrome.
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Want to teach your patient about their Loeys-Dietz diagnosis? Use our resources: #loeysdietz #loeysdietzsyndrome #medtwitter.
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Who has an emergency alert card? Did you know we have one you can download? #loeysdietz #loeysdietzsyndrome.
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Raise your hand if you have registered for our Global Virtual Conference.
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Get to know your treatment options for Loeys-Dietz syndrome: #loeysdietz #loeysdietzsyndrome #raredisease.
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Will we see your family at one of our upcoming Loeys-Dietz events? #loeysdietz #loeysdietzsyndrome.
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Have you shared the main characteristics of Loeys-Dietz syndrome with your colleagues? #loeysdietz #loeysdietzsyndrome #medtwitter.
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