Know CF
@KnowCF
Followers
5K
Following
410
Media
310
Statuses
16K
A place to connect with those who are impacted by cystic fibrosis.
United States
Joined January 2010
We encourage you to continue engaging with us here, where we can still share resources, stories, and updates. Thank you for being a part of the cysticfibrosis . com community! Wishing you all the best in health and happiness, From all of us at cysticfibrosis . com
0
0
0
In good news, as of now, this isn’t the end of our community! Our social media pages will remain open as a space for connection, support, and sharing among individuals impacted by cystic fibrosis.
0
0
0
While it’s bittersweet to say goodbye to the forums that brought us together, we are thankful for the connections, support, and shared experiences along the way.
0
0
0
Important Update: Website and Forum Closure To our valued community, We wanted to let you know that https://t.co/vrJvSCv7g5 is no longer active & has been closed.
0
0
0
Dr. Bonnie W. Ramsey, Professor and Senior Advisor to the CFF Therapeutics Development Network, receives the prestigious 2025 American Pediatric Society John Howland Award! To read more, click here: https://t.co/0SV68TL76T
0
0
1
Watch the recording here: https://t.co/6u01K31zj5
#CureCF #CF #cysticfibrosis #65Roses #Health #Educate #Spoonie #NACFC
0
0
0
From the archives of the 1990's - Oh how far we've come! Do you have interesting articles to share?! Let us know! . . . #CureCF #cysticfibrosis #65Roses #CF #Support #Educate #Hope #Fromthearchives
0
0
0
In addition to oral food and supplements, sometimes extra help is needed by tube feedings . . . #CureCF #CF #cysticfibrosis #sixtyfiveroses #65roses #comorbidities #Support #Educate #Hope
0
0
0
People with CF can get a unique type of #diabetes, cystic fibrosis related diabetes or #CFRD . . . #CureCF #CF #cysticfibrosis #sixtyfiveroses #65roses #comorbidities #Support #Educate #Hope
0
0
0
Vitamins, minerals, and supplements are important . . . #CureCF #CF #cysticfibrosis #sixtyfiveroses #65roses #comorbidities #Support #Educate #Hope
0
0
0
Caring for bone health . . . #CureCF #CF #cysticfibrosis #sixtyfiveroses #65roses #comorbidities #Support #Educate #Hope #boneHealth
0
0
0
Food is fuel! . . . #CureCF #CF #cysticfibrosis #sixtyfiveroses #65roses #comorbidities #Support #Educate #Hope
0
0
0
Supplemental oxygen may be necessary as CF progresses. . . . #CureCF #CF #cysticfibrosis #sixtyfiveroses #65roses #comorbidities #Support #Educate #Hope
0
0
0
Sometimes it is necessary for someone with CF to get a lung transplant. . . . #CureCF #CF #cysticfibrosis #sixtyfiveroses #65roses #comorbidities #Support #Educate #Hope #Transplant #LungTransplant #DonateLife #OrganDonation
0
0
0
Chronic illness takes its toll. . . . #CureCF #CF #cysticfibrosis #sixtyfiveroses #65roses #comorbidities #Support #Educate #Hope
0
0
0
Hospitals are associated with getting healthy, but sometimes an infection can actually come from the others at the hospital! . . . #CureCF #CF #cysticfibrosis #sixtyfiveroses #65roses #comorbidities #Support #Educate #Hope
0
0
0
CF does not impact only one system. There are several comorbidities associated with it. . . . #CureCF #CF #cysticfibrosis #sixtyfiveroses #65roses #comorbidities #Support #Educate #Hope
0
0
0