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KFry

@KFryKC

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Following
867
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733

https://t.co/ox1Vjug6HB

Joined July 2017
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@KFryKC
KFry
11 months
Save the Date for our 5th Annual A Cure for Charlie Pickleball Tournament. Registration and sponsorship details coming soon. #ACureforCharlie #RareDisease #kansascity #giveback #pickleball @ChickenNPickle @SLC6A1_Connect
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@KFryKC
KFry
1 year
This right here sends me into a deep state of hopelessness. The last week I have been searching for educational options for Charlie. And let me tell you, they are already bleak. The system is already telling me it’s time to give up on my 7 year old. He’s 7, this is cruel!!!
@ABC
ABC News
1 year
NEW: The White House has pulled the expected Thursday signing of the executive order to dismantle the Department of Education, sources told ABC News.
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@KFryKC
KFry
1 year
.@repcleaver @senhawleypress @SenEricSchmitt Medicaid is a lifeline! People with disabilities rely on Medicaid services to support them in their daily lives. But about 711k people are waiting for Medicaid services. We need MORE funding, not less. #ProtectMedicaid and save lives!
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@KFryKC
KFry
1 year
1 MINUTE AGO: Travis kelce & GF Taylor Swift ENJOY BIRTHDAY PARTY in Kan... https://t.co/HouStVx7BN via @YouTube @taylorswift13 @taylornation13 that’s my house!!! #acureforcharlie
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@KFryKC
KFry
1 year
Amazing to see our house getting some love. Addie would flip if @taylorswift13 saw this.
@christinakeen89
Christina Keen⸆⸉ ❤️‍🔥
1 year
oh tayvis is so beloved by kansas city 🫶🏻😭
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@KFryKC
KFry
2 years
Charlie was just 4 mo old when we knew something was wrong. It took a 1.5 yrs to finally get answers on what was wrong w/ our little boy. Today is 5 years from receiving Charlie’s diagnosis of #SLC6A1. I didn’t come this far to only come this far. #rare #cure #kids
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@KFryKC
KFry
2 years
#TurningLemonsIntoLemonade 1. Post a video of yourself sucking on a lemon slice trying not to make a funny face, if you make a face, you donate $10. 2. Donate here: https://t.co/QzhIAhMTl6 3. Challenge: Tag 2 friends in your post @LNEagleVB you’re up!!!
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@KFryKC
KFry
2 years
AFC Championship Squares Time. $20 per square and a chance to win one of these amazing prizes from @kendrascott, @TitosVodka, @overlandparkscheels, Dots Tee’s and @kellyswestportinn! https://t.co/kIo30mygTs All proceeds go directly to #acureforcharlie Let’s go @chiefs.
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@KFryKC
KFry
2 years
Don’t forgot today and tomorrow anyone who shops online at @KendraScott & uses this code will benefit #acureforcharlie. SLC6A1 Connect gets 20% back. We are also hosting an in person event tonight at the KC plaza store from 5-7. Please join us - https://t.co/LPMVqs9K0i
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@KFryKC
KFry
2 years
Two things at once?!? @tkelce Now you can finish that shopping list and help us out. Come in to the @KendraScott location on the plaza in #KC this Thursday or shop online Thursday & Friday and 20% of sales will be donated back to #ACureforCharlie and #SLC6A1 research.
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@KFryKC
KFry
2 years
Come see our house @tkelce and @taylorswift13. Our worlds collided when you two started dating so we had to spice up our lights for you. #Swifties live here! #kansascity #brookside
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@KFryKC
KFry
2 years
Cheering on our @Chiefs, meanwhile Charlie’s odds are on the black and white team. @NFL @nflnetwork @kcwolf #germany #nflgermany #ACureforCharlie
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@KFryKC
KFry
3 years
Mother + chiefs + Travis Kelce = best day ever!!!! @taylorswift13 @tkelce @KansasCity @TheChiefsWire @Chiefs
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@KFryKC
KFry
3 years
Our auction trips this year are incredible, truly some of the most gorgeous places on earth. https://t.co/xM6VsX1Vdn Trips are sold through charity booster, they have amazing reviews and give back to nonprofits like ours. #ACureforCharlie #Iphone15 #Travel
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@KFryKC
KFry
3 years
A Cure for Charlie Pickleball Tournament 2023 Auction is live. Lots of trips, #KC staycations, gift certificates and more available here.
charityauctionstoday.com
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