JillyaneMarie Profile Banner
Jillian Profile
Jillian

@JillyaneMarie

Followers
4K
Following
21K
Media
201
Statuses
4K

Caregiver for my amazing mom living with dementia | I believe in the power of kindness ๐Ÿ’œ

Arizona, USA
Joined July 2008
Don't wanna be here? Send us removal request.
@JillyaneMarie
Jillian
3 years
Soโ€ฆ I quit my job to become a full time caregiver for my mom ๐ŸŽ‰ it has been a long time coming and Iโ€™m thrilled! Iโ€™ll still need to find ways to make money, but I hope yโ€™all will come along on this journey with me! ๐Ÿ’œ #caregiver #ENDALZ
88
53
1K
@JillyaneMarie
Jillian
3 years
It was a seemingly small question, but I could feel tears welling up immediately. I had no idea what that meant to me until it happened. If any of my followers are in the medical field, please consider asking caregivers how they are doing. It may be exactly what they need.
12
4
122
@JillyaneMarie
Jillian
3 years
An incredible thing happened this week. A doctor looked at me directly and asked, โ€œHow are you doing?โ€ It was the first time anyone in the medical field has ever asked me how I am doing in my 6+ years as a caregiver. โฌ‡๏ธ
15
9
140
@JillyaneMarie
Jillian
3 years
Another moment of joy! Little ducklings walked right by us yesterday ๐Ÿฅ๐Ÿฆ†๐Ÿฅ #dementia #caregiver
10
7
146
@JillyaneMarie
Jillian
3 years
Happy National Chocolate Ice Cream Day from mom and me! When the local news mentioned what day it was, we decided weโ€™d go to the store and pick some up. Always find a reason to celebrate, right? ๐Ÿ˜†๐ŸŽ‰
8
3
75
@JillyaneMarie
Jillian
3 years
Quick update - the company ended up allowing me to verify by telling them the date the POA was signed. It took me a second to look it up, but I was able to do that. All a bit of a hassle, but at least it got resolved ๐Ÿ‘
0
1
22
@JillyaneMarie
Jillian
3 years
I told them I couldn't answer that either because mom can't even remember working there, let alone the date she retired. So now I'm waiting for it to be escalated and have someone call me back. Sometimes I can only laugh at how much our systems are NOT ready for dementia.
6
3
53
@JillyaneMarie
Jillian
3 years
WTH?! Is this a common question? I have no idea when I mailed them the POA. Mom signed it in 2018 when she had Mild Cognitive Impairment and I've sent it multiple places since then. They said the other option was to give the month & year mom retired from the company. (2/3)
2
1
19
@JillyaneMarie
Jillian
3 years
I made a call on behalf of my mom (who is living with dementia) today. Years ago, I sent the Power of Attorney to the company so theyโ€™d have it on file. The verification they needed to talk to me on the phone? โ€œWhat was the month & year you sent us a copy of the POA?โ€ (1/3)
9
3
45
@JillyaneMarie
Jillian
3 years
Thanks for all the support I received with my last post ๐Ÿ’œ Mom and I found many of moments of joy this last week, despite the tough moments. Hugs to all! #dementia #endalz
9
2
119
@JillyaneMarie
Jillian
3 years
Thanks for the kind comments ๐Ÿ’œ they are coming in too fast for me to keep up. I love my mom more than anything, and we have wonderful days together. But that doesn't mean there aren't moments that are tough ๐Ÿ’œ as with all things, there is bitter with the sweet. Hugs to all
18
5
212
@JillyaneMarie
Jillian
3 years
Iโ€™m struggling today. This morning when mom asked me, โ€œWhatโ€™s your name?โ€ it felt like it broke me. This isnโ€™t new. Heck, yesterday she thought my name was Mary. But each little moment adds up and it wears you down. Loving someone living with dementia is so fโ€™ing hard.
564
230
4K
@JillyaneMarie
Jillian
3 years
The way I feel when my friends greet my mom the same way they would greet anyone ๐Ÿ’œ๐Ÿ’œ๐Ÿ’œ๐Ÿ’œ #alzheimers #dementia #endalz
6
4
72
@JillyaneMarie
Jillian
3 years
Their best suggestion? I was told I could โ€œwait in the lobby.โ€ For anyone creating programs for older adults, please don't exclude people who need caregivers. You're missing out on a wonderful group of people ๐Ÿ’œ (3/3)
19
8
105
@JillyaneMarie
Jillian
3 years
I offered to pay the membership fee for both of us, but since I'm not at least 50 years old, I was told there wasn't an option for me. Itโ€™s incredibly unfortunate to exclude individuals whose caregivers are under 50! All I wanted was to sit next to mom while she played Bingo.
5
1
51
@JillyaneMarie
Jillian
3 years
I'm annoyed. My city has a membership program for older adults. It gives access to fun activities like bingo, potlucks, and line dancing. I called today to sign my mom up, but I quickly learned I can't come along with her as her caregiver. (1/3)
10
3
60
@JillyaneMarie
Jillian
3 years
Pool day!! Getting in water helps mom have pain-free movement โ€” plus fun and relaxation ๐Ÿ’œ To quote mom: โ€œThis is heaven!!โ€ #caregiver #dementia #endalz
18
7
150
@JillyaneMarie
Jillian
3 years
To the dog owner at the store: You made my momโ€™s day. Thank you, thank you, thank you for taking the time out of your day ๐Ÿ’œ #itsthelittlethings
9
5
152
@JillyaneMarie
Jillian
3 years
My mom canโ€™t remember what city she lives in. She canโ€™t remember the steps to make a cup of coffee. But she can still play her favorite card game! โ™ ๏ธโ™ฅ๏ธ Never assume you know what someone is capable of ๐Ÿ˜Š People may just surprise you! #endalz #Alzheimers
29
46
439
@JillyaneMarie
Jillian
3 years
Is there such a thing as a vulnerability hangover? Every time I let my guard down and let myself be vulnerable, it takes a day or two for the resulting anxiety/overthinking to subside. Just me?
11
0
40
@JillyaneMarie
Jillian
3 years
PS - our local library gives out free museum tickets using your library card. I'm not sure how common this is, but itโ€™s a great program
0
1
15