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Jett Foundation

@JettFoundation

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Empowering families. Fighting Duchenne muscular dystrophy.

Norwell, MA
Joined August 2013
Don't wanna be here? Send us removal request.
@JettFoundation
Jett Foundation
9 hours
💙 Our campers are counting down the days to Camp Promise - Arizona and you can help make the magic happen! Check out our Amazon Wishlist and send a little joy our way:
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@JettFoundation
Jett Foundation
6 days
🌤️💪 Team Jett proudly participated in the annual Cohasset Triathlon last Sunday and we couldn’t be more grateful for all who showed up to support families impacted by Duchenne!. Read about how these athletes supported our mission:
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@JettFoundation
Jett Foundation
6 days
Camp Promise - Rockies kicks off soon, and we need your help to make it unforgettable! 🎉 Your support today can help bring joy, comfort, and connection to campers living with neuromuscular disorders. 💙. 🛒 Shop now:
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@JettFoundation
Jett Foundation
9 days
Please help us send a huge congratulations to the Olsen family out in Arizona who recently celebrated the arrival of safe, accessible transportation with help from the Jett Giving Fund! ❤️🚘. 🔗
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@JettFoundation
Jett Foundation
10 days
🐽 Camp Promise - West was nothing short of monumental! From epic adventures to heartfelt connections, our campers and volunteers created memories that will last a lifetime. ❤️🏕️ . Read all about the unforgettable week in our latest blog recap:.👉
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@JettFoundation
Jett Foundation
10 days
Jett Foundation is heading to Rochester, NY! Registration is open for our upcoming Family Workshop in October, designed for families impacted by Duchenne to connect, learn, and find support. 💙. 🔗 Reserve your spot today:
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@JettFoundation
Jett Foundation
11 days
📣 Happening this afternoon: Join us for our Community Webinar: Pressure Ulcer Prevention and Treatment, an important conversation for individuals and families impacted by Duchenne. 🕓 Don’t miss it!.📅 Today at 1pm ET.🔗 Register here:
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@JettFoundation
Jett Foundation
11 days
🎒 Camp Promise - Arizona needs your help! Our Amazon Wish List is full of essentials that will help make this summer unforgettable for our campers. If you’re able, please consider sending a gift our way. 💛. 📦 Shop the list:
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@JettFoundation
Jett Foundation
14 days
Tune in to Jett Foundation’s Community Webinar Series this Thursday at 1pm ET to hear from Dr. David German and Danielle Dwiggins, RN, BSN and mom to a son living with Duchenne, who will speak on pressure ulcer prevention and treatment. 🔗Join us:
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@JettFoundation
Jett Foundation
14 days
Disney or Pixar - what’s your pick? Join us for Camp Promise Game Night this Thursday at 7pm ET for fun, trivia, and friendly competition from home! 🎮🎥. 🔗 Sign up:
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@JettFoundation
Jett Foundation
17 days
Help us get ready for the start of camp by shopping our Camp Promise- Rockies Amazon Wishlist ✨ 🏕️. Use this link to guarantee this is a Camp Promise to remember ➡️
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@JettFoundation
Jett Foundation
19 days
We are conducting a survey to capture real-world evidence of Duchenne female carrier symptoms and experiences. While the medical community estimates that only 8% of carriers experience symptoms, real-world data often suggests otherwise. ✅ Survey:
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@JettFoundation
Jett Foundation
19 days
We invite you to register for our annual Jett Golf Classic tournament fundraiser! 🫵⛳ Join us for a day filled with great golf, better company, and a shared commitment to making a real impact in the Duchenne community. 🔗
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@JettFoundation
Jett Foundation
20 days
Thank you to all participants and sponsors who moved for Duchenne muscular dystrophy and made a HUGE impact during this year’s #NationalChallenge! ❤️💪. ➡️ Read all about this year’s National Challenge:
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@JettFoundation
Jett Foundation
20 days
Camp Promise Pictionary is finally here! 🎉 Make sure you tune in tonight at 7pm ET for an unforgettable evening of fun and friendly competition. 🎨 During Pictionary, you’ll be given clues and will race against the clock to guess the correct answers. 🔗
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@JettFoundation
Jett Foundation
21 days
We are excited to welcome Jennifer Schwartz to our team of Community Ambassadors! ❤️🤝 Jen's oldest son, Ben, lives with Duchenne, prompting Jen to create as many connections as possible across the community. Read more about Jen ➡️
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@JettFoundation
Jett Foundation
25 days
Tune in for an exclusive webinar TODAY at 1pm ET as Dr. Kaitlin Batley and Dr. Nadeem Khaliq dive into the AGAMREE® SUMMIT study. 🖥️🌟. Don’t miss out on the chance to have your questions answered! ✅. 🔗
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@JettFoundation
Jett Foundation
27 days
We invite you to: Pictionary Night with Camp Promise on June 17 at 7pm ET for virtual, fast-paced fun and friendly competition! . YOU can get in on the fun - make sure you don’t miss out! *Must be 18+ to attend. 🔗
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@JettFoundation
Jett Foundation
27 days
Tune in to Jett's Community Webinar Series to hear from Dr. Khaliq of Catalyst Pharmaceuticals and Dr. Batley of Children’s Health Specialty Center, Dallas on the AGAMREE® SUMMIT Study, examining real-world impact of AGAMREE on Duchenne. 🔗
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@JettFoundation
Jett Foundation
1 month
Following our recent Fatty Embolism webinar, we are launching an important survey. We aim to gather more information about Fatty Embolism Syndrome within our community and learn from those who have experienced it:
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