Jain Foundation
@JainFoundation
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Orchestrating a Cure - LGMD2B/Dysferlinopathy/Miyoshi
Seattle, WA
Joined June 2013
For Rare Disease Day: Jain Foundation science staff directing the global research to find a cure!
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For Rare Disease Day, we want to share a documentary (made by an amazing person) that inspires us. https://t.co/mwD5oWTHqT
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What is Limb Girdle Muscular Dystrophy type 2B/Miyoshi Myopathy? https://t.co/sw6R5RT33R via @YouTube
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Want some cool gear for LGMD awareness day Sept 30th? Check out our new store! https://t.co/mDLbLegpNG
#lgmdawareness #lgmd
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Stephanie gave a very moving talk at the #2BEmpowered2016 conference https://t.co/AZwa0k4z2F
#LGMDawareness #LGMD #causes #raredisease
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Excited to support a patient who made #lgmdawareness gear! #LGMD #nonprofit #adayinthelife #causes #raredisease
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Cody Miller won gold in Men's 4x100m medley relay & brings #awareness to #raredisease, pectus excavatum!
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#LGMD Consortium's Free Genetic Testing Program Is A Major Success, helping over 1200 people! https://t.co/L9ba7Uacc4
@rareDR #LGMDawareness
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It's official in Washington! #LGMDAwareness Day will be Sept 30th! Thanks Brad for applying! #lgmd #nonprofit
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Step aside, Olympics here’s the Cybathlon: devices to help people with disabilities #lgmdawareness via @NatureNews
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LGMD Consortium provides free genetic sequencing, visit https://t.co/zEt1k8kGiJ to learn more https://t.co/bjZ4bsSUkb
#LGMDawareness #lgmd
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Chris gave an inspirational talk about achieving your dreams despite #lgmd at #2bempowered2016 #lgmdawareness
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2016 #LGMD Awareness #Scholarship = huge success reaching over 87,000 people! Even got mentioned here https://t.co/B1d82OKn6Z
#LGMDawareness
usnews.com
These so-called sharing scholarships have become popular recently.
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Todays #staffspotlight - Sarah, Director of Patient Outreach and Community Strategies! #lgmd #lgmdawareness
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Today's #staffspotlight! Meet Elaine, a Research Program Officer at #thejainfoundation #lgmdawareness #nonprofit
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Jill Viles gave an inspirational talk at the #2BEmpowered2016 Patient Conference https://t.co/6xrH2678PQ
#LGMDawareness #JainFoundation
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Help us choose a design for a t-shirt, which would you wear? https://t.co/MkJLlXEFMF
#LGMDawareness
99designs.com
I’m running a illustration or graphics contest on 99designs. Designers have submitted 53 designs so far. Please vote on your favorite as I’d love to receive your feedback.
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The #2bempowered2016 Patient Conference was a great hit! Here's Yumi's opening talk https://t.co/ppH19UK9dr
#lgmdawareness #LGMD
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