Jamie T
@JaaamieT
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2K
Following
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fighting against duchenne muscular dystrophy to save my boy 💚
Dunfermline
Joined June 2010
💚Jamie’s Journey: An Update 💚. This is Jamie. 💚 I want to share an update on his health, the incredible support we’ve received, and what life is really like fighting Duchenne muscular dystrophy (DMD). From daily therapies to our fight for treatment, here’s what it really
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If anyone like a chance of winning 2 signed framed Celtic shirts please get in touch - It is going to be a massive help towards a family who are going through a incredibly tough time 💚🙏.
I’m doing a bonus ball to raise money for something a little different here. A family who live not to far from us are going through a extremely difficult time - There son was born with the same condition as my son Jamie (Duchenne Muscular Dystrophy) He has also been born with
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I’m doing a bonus ball to raise money for something a little different here. A family who live not to far from us are going through a extremely difficult time - There son was born with the same condition as my son Jamie (Duchenne Muscular Dystrophy) He has also been born with
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RT @WeeTommysJrny: Massive thanks to the @CeltExchange for their support . 👉 Join using TOMMYS code TPQ50 for 50% off your first month and….
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ACSOM viewers of Ardoyne - Thankyou for your support of my boy 💚 I can’t wait to update everyone soon on Wee Jamie’s treatment progress there is some really positive news ahead of us & we couldn’t get there without you all 💚💪.
Thank you to the ACSOM viewers from Ardoyne who raised another £1250 to support Wee Jamie Tierney. Paddy and the lads are different class. Shares mean the world to Wee Jamie & his family:
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RT @DoubleDenimCM: A phenomenal venue, filled with some of the best people I’ve been privileged to meet & this generosity, while almost exp….
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Thank you everyone for supporting my wee Jamie boy 💚💚 this means the world to us as a family 🌎 💚.
Thank you again to the generous ACSOM viewers who raised another £263 to support Wee Jamie Tierney at our Belfast event. To keep up to date with Jamie’s progress, please check out the following link:. Shares mean the world to Wee Jamie & his family 🙏🏻.
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RT @mickeymm06: Jurassic Future. Walk into a clinic in 2030. Get one CRISPR injection. Your diabetes is permanently cured. No more insulin….
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RT @Diane_Dowds: @JaaamieT This is scandalous! As families living with this condition, the government should roll out the red carpet to acc….
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We sold our family home for many reasons — it was a townhouse with too many stairs, completely unsuitable for Jamie. We needed to find a way to give him independence. Our son Jamie has Duchenne Muscular Dystrophy — a muscle-wasting disease with no cure. His needs are increasing.
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How many people know what Duchenne Muscular Dystrophy is ? I never untill 3 years ago when I was handed a leaflet with the stages of DMD & told to go home & enjoy my son - This disease is one of the most catastrophic disease . No cure - Only deterioration - The drugs that are
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RT @PaulJohnDykes: Thank you Ardoyne for an amazing night. Unbelievable effort from the Crumlin Star 👏🏻. See you again soon! https://t.co/….
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Such a happy boy , so innocent , so unaware - Can I keep him like this ?🙏💚
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The world spends 12× more on the military than on all rare disease treatments combined. $2.44 trillion vs $200 billion. And still…. Children are dying in war. Children are dying from rare diseases. Different causes. Same result. Same failure of priorities. What are we really.
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Incredible 🍀🙌.
🍀 22 MILLION YOUTUBE VIEWS!. 📺 Thank you all for continuing to support ACSOM. You can subscribe to our channel for free here:
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💔💔.
CureDuchenne is sad to share that another person has passed away due to acute liver failure after treatment with Elevidys, Sarepta’s micro-dystrophin gene therapy. Our hearts go out to the family and friends of this individual at this difficult time.
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RT @bobbiebeveridge: Happy Father’s Day to Wee Jamie’s best friend and superhero @JaaamieT 🦸♂️ You keep the laughter loud, the love flowin….
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