JIRcohort
@JRcohort
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We are a network of physicians developing research and training activities in the field of Juvenile Inflammatory Rheumatism
Joined January 2021
🎙️ New Podcast: "When Etanercept Needs a Change" Some children on Etanercept need to switch treatments. But what’s the best next step? Should we opt for another TNF blocker or explore different molecules? 🤔 🔗 Listen on spotify : https://t.co/417R8FG8in
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Fantastic debate between Pr Sylvia Kamphuis @sylviakamphuis1 and Dr Phil Riley @rileyphil about going down fast vs slow with your steroids in lupus nephritis #LupusNephritis #JIRWinterSchool
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2nd day of JIR Winter School 2025 . Today, in an excellent talk Dr Eve Smith @evemdsmith_eve convinced us to consider treat to target (T2T) strategy in everyday care of children with SLE #JIRWinterSchool #LupusNephritis
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Prof Novljan provoded us wit a perfect overview of how to prevent the development of CKD in LN patients and what to do if this happens despite our best efforts.#JIRWinterSchool #LupusNephritis
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Pr. Amita Aggarwal talked about guidelines for lupus nephritis management. Thank you ! #JIRWinterSchool #LupusNephritis
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🙏 Many thanks to Dr. Elizabeth Ang from Singapore for her fascinating challenging case: Full House Nephritis – Lupus or Not? which captivated the onsite audience, sparking valuable insights from international experts! 🌍 #JIRWinterSchool #LupusNephritis
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Exhaustive review of lupus nephritis pathology by highly experienced Dr. Khubchandani from Mumbai. #JIRWinterSchool #LupusNephritis
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💡 Brilliant talk on immunopathogenesis and targeted therapies in lupus nephritis at today’s session with Dr @MatkoMarlais #JIRWinterSchool #LupusNephritis
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Already a first fascinating talk by Dr Lovro Lamot @volume2go about Kidneys at the crossroads of systemic inflammatory diseases. #JIRWinterSchool #Lupus #pediatricrheumatology
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📢 And the JIR Winter School on Lupus has started! ❄️ Kicked off by Pr Michael Hofer, @sylviakamphuis1 and Dr Lovro Lamot Follow live updates on social media! #JIRWinterSchool #Lupus #pediatricrheumatology
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🌍 300+ registrations! 📅 D-10 until the JIR Winter School on Lupus kicks off on March 14th! 🎤 79 countries represented among our audience & speakers—proof of the truly global reach of this event! Is your country on the map? There’s still time to join! https://t.co/ppBIAOni4V
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Congratulations to Dr. @EzgiDenizBatu1 and the JIR CliPS WG4 PFAPA/SURF team for their latest publication on "Corticosteroid use in PFAPA syndrome: clinical practice data from the JIR-CliPS Survey Study, along with a comprehensive literature review." 🔗 https://t.co/TgY67194N4
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🌍 JIR Academy Forum: A Global Success! Yesterday, physicians from 13 countries discussed: 1️⃣ 8yo girl with knee swelling (venous malformation). 2️⃣ 3yo girl with skin lesions (unsolved case). 📅 Next session: Feb 11. 🔗 Register : https://t.co/e8ZEIsVDQ3🔗 Register here
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New great article from the @JRcohort ! Congrats to François Rodrigues, @SophieGeorgin & team on their work: Characteristics of Familial Mediterranean Fever After 65 Years of Age. 👏 https://t.co/QOz48TyvBv
#Research #Rheumatology #FMF
jircohorte.org
First Author : Rodrigues FrançoisJournal : Eur J Intern MedRefererence : Eur J Intern Med 2024 Oct 29:S0953-6205(24)00429-1.Pubmed link : https://pubmed.ncbi.nlm.nih.gov/39477705/Summary :Familial...
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Proud to see the #JIRCliPS represented at #SFR2024! Thanks to @Philippe_Mertz2 for presenting his poster: "Prise en charge thérapeutique en vie réelle de la maladie de Still en France", a collaboration between JIR CliPS and @contactfai2r . #StillDisease #PediatricRheumatology
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Congratulations to our physicians @inessegi , @HentgenV , @HWittkowski and al. for their recent publication "Inflammatory biomarker analysis confirms reduced disease severity in heterozygous patients with familial Mediterranean fever"
rmdopen.bmj.com
Introduction Familial Mediterranean fever (FMF) is a genetic disease leading to recurrent episodes of inflammation. Two pathogenic variants are required for classical disease, but the disease can...
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👏 Congrats to @inessegi ,@HentgenV and al. on their new article: "Performance of Serum Amyloid A and CRP for Disease Control in Familial Mediterranean Fever", using data from #JIRCohort. Great work advancing #FMF research! 🌍🩺 #PediatricRheumatology
https://t.co/4qYDaFaGbl
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🎉 Congrats to @RimBourguiba1, @SophieGeorgin & team on their short communication on "Diagnostic delays in familial Mediterranean fever" published in Rheumatology International thanks to the JIRCohort data🙌 https://t.co/HPiMymM50r
#FMF #Rheumatology #JIRcohort
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