JPatientRepOutcomes
@JPRO_ISOQOL
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The latest open access research from Journal of Patient-Reported Outcomes. An official journal of @ISOQOL, published by @SpringerOpen
Joined January 2019
Patient reported outcomes in pediatric physical therapy: a scoping review and evidence map https://t.co/V8P3fm9fFV
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Content validation of the Wound-QoL questionnaire measuring quality of life in chronic wounds – a qualitative study in patients with leg ulcers and diabetic foot ulcers https://t.co/nUBtsDoBly
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Development of patient-centric conceptual frameworks for symptoms and impacts of ornithine transcarbamylase deficiency (OTCD) https://t.co/wyofA6PVd7
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Perceptions of neuromuscular electrostimulation of patients with Parkinson’s disease and their caregivers: the impact on swallowing and speech from a qualitative perspective https://t.co/mXJVRTrXRv
jpro.springeropen.com
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Does the relationship between stress and quality of life differ among informal caregivers of older adults with Alzheimer’s disease and children with autism spectrum disorder? Results from a cross-sectional survey https://t.co/WQznqZJUDp
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Psychometric properties of palliative care outcome measures: a multi-centre study https://t.co/8P11YNqTl1
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Psychometric validation of the PROMIS Fatigue-Short Form 7a in adults with newly diagnosed or recurrent Mycobacterium avium complex (MAC) lung disease: the ARISE and ENCORE studies https://t.co/0LrmTE8KhC
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Joint modeling of progression-free survival and patient-reported outcomes to evaluate the association between disease progression and symptoms among patients with relapsed/refractory multiple myeloma https://t.co/0HpTwyKpZm
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Using personas and journey maps as knowledge translation tools to enhance clinicians’ interpretation of PROM scores https://t.co/5UP6GshZTz
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Clinical characteristics and quality of life for rhegmatogenous retinal detachment in a tertiary centre in Ghana: a case control study https://t.co/plJGTah2vR
jpro.springeropen.com
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A qualitative study on the impact of hemophilia on sexual functioning and well-being in Dutch men https://t.co/f76jvZktii
jpro.springeropen.com
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Cross-cultural adaptation and validation of the Pelvic Floor Impact Questionnaire (PFIQ-7) short form in Urdu: a comprehensive linguistic and psychometric analysis https://t.co/bD29pNj2T8
jpro.springeropen.com
Background Pelvic floor disorders (PFDs) affect women’s physical, psychological, and social well-being, particularly in low- and middle-income countries. The PFIQ-7, a key patient-reported outcome...
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Artificial intelligence and the future of patient-centered outcomes https://t.co/3SfEGofVdi
jpro.springeropen.com
Background Terheyden et al. recently described a compelling vision for large language model-enabled patient-reported outcome measures (LLM-PROMs). Main text We support Terheyden et al.’s vision and...
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Meaningful changes in physical function and pain in patients with knee osteoarthritis https://t.co/9aMIbu4WBG
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Development of a digitalization concept for assessing patient-reported outcomes in the context of a University Cancer Center – a model for use in clinical routine https://t.co/RZgUwuABr2
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Cross-cultural adaptation, translation and pre-testing of the Caregiver Analysis of Reported Experiences with Swallowing Disorders (CARES) screening tool in Kannada https://t.co/Hc1XIClwCE
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Patient-reported outcomes and home-based self-swabs for influenza-like illness events - lessons learned from the 2023/2024 DANFLU-2 Homeswab PRO substudy https://t.co/7zQybUsrWi
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Patient willingness to pay and preference for cervical cancer treatments among middle- and low-income populations in Xinjiang https://t.co/vrtTEW4Z1x
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Development of the Nephrotic Syndrome Symptom and Impact Patient Reported Outcome (NephroSSI-PRO) measure for use in adults and adolescents with primary glomerulopathies https://t.co/hde9WuTkW7
jpro.springeropen.com
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Development and content validation of the Long COVID/ post-acute sequelae of COVID-19 (PASC) patient-reported outcome (PRO) instrument https://t.co/dSz0CqHwf5
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