Imagining Futures
@ImaginingFuture
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ESRC/Wellcome Trust research programme exploring the social and ethical implications of genomic screening in the UK. Prof Felicity Boardman, Dr Corinna Clark
Warwick Medical School, UK
Joined June 2013
So great to see this collection come together! After a fascinating few days at @Fond_Brocher in the summer of 2023, we now have an edited collection of papers addressing the question of severity and its uses in genomics.
nature.com
This special issue will bring together key work in this area, including outputs from a recent Brocher Foundation workshop ‘Severity in the genomic age: ...
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📢new paper involving IF team 📢Establishing the performance and acceptability of dried blood spot sampling to screen for islet‐specific autoantibodies - Faustini - 2025 - Diabetic Medicine - Wiley Online Library
onlinelibrary.wiley.com
This comprehensive validation and acceptability study shows dried blood spot sampling can be used as an alternative to serum for use with the 3-screen assay for population type 1 diabetes autoantib...
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📢New Paper Involving IF Team: a systematic review on the attitudes of individuals with/at risk of adult-onset genetic conditions on reproductive genetic testing📢.
onlinelibrary.wiley.com
Individuals who carry a genetic variant for a genetic disease can access reproductive genetic testing in order to prevent the transmission of the gene variant to their children. This systematic...
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📢 New paper involving IF team 📢Establishing the performance and acceptability of dried blood spot sampling to screen for islet-specific autoantibodies
onlinelibrary.wiley.com
This comprehensive validation and acceptability study shows dried blood spot sampling can be used as an alternative to serum for use with the 3-screen assay for population type 1 diabetes autoantib...
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How to use the QRDC guidance for remote qualitative studies 👇.
What is the QRDC guidance and how could it help you design your remote qualitative study? See here:
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New Paper: Special Issue in EJHG on Severity. What started as a @Fond_Brocher workshop in the summer of 2023 is now a wonderfully rich and diverse collection of papers spanning policy, practice and lived experiences:
nature.com
European Journal of Human Genetics - Editorial: severity in a genomic age
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New paper: comparing in-person and remote qualitative data collection @JulieRoberts12 @sophie_stan2 @Corinna_Clark_ @fegriffiths.
📣New paper from QRDC project 📣“Comparing In-Person and Remote Qualitative Data Collection Methods for Data Quality and Inclusion: A Scoping Review” is now published and is available at
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New Paper: #JMIR #Preprint: Advances in newborn screening: development of an online scenario-based tool to enable research participation and public engagement. #digitalhealth via @jmirpub.
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RT @QRDC_Study: New article on the QRDC guidance: .@NCRMUK @JulieRoberts12 @ImaginingFuture @sophie_stan2 @chinwe_o….
ncrm.ac.uk
In recent years, the use of remote methods by qualitative researchers has become commonplace. The COVID-19 pandemic forced researchers across the globe to rapidly convert their face-to-face methods t
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RT @Corinna_Clark_: SERG meeting registration now open for our London meeting (25th Nov) .@SergNetwork @ImaginingFu….
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RT @SergNetwork: 📣Save the date! Next SERG meeting Mon 25th Nov 10:00am, Friend's House, Euston Rd, London. Hybrid available. Focus: Newbor….
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New paper involving IF team: Full article: Neurologists’ understanding of reproductive medicine options for genetic forms of motor neuron disease
tandfonline.com
To examine the knowledge, confidence and practice of motor neuron disease (MND) clinicians toward discussing reproductive options with people who carry a causal variant in an MND gene (both clinica...
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Use of remote methods in qualitative research has various impacts; for participants, for researchers, and for the data produced. Careful study design and delivery are so important. See new guidance, available from today:.
Are you planning to use remote qualitative methods? We are delighted to announce the publication of the QRDC guidance to support you in designing and delivering your study. You can access it here:
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SERG is a great place for relaxed discussion. You don't need a 'polished'/finished study to present at SERG, we revel in the uncertainty, messiness and realities of research! Works in progress, 'failed' grant applications, field work stories & future dreams are all supported :).
We are looking forward to welcoming you to SERG tomorrow (11th Sept) at University of Warwick! If you are at @BSAMedsoc this year, stop in and see us! Room H0.03 Humanities building, 10-12pm. Free event, Lunch included. Remote options available!.
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RT @SergNetwork: 📢Less than a week to go to the next SERG meeting!📢Hybrid event, so if you can't get to Warwick, join us online, we can't w….
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New Paper: Parents' views of wider genomic screening as part of newborn Cystic Fibrosis screening
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New paper: Preferences for Peer Support Amongst Families Engaged in Paediatric Screening Programmes: The Perspectives of Parents Involved in Screening for Type 1 Diabetes in Children Aged 3–13 @parthnarendran @mj_randell
onlinelibrary.wiley.com
Introduction This work describes a secondary analysis of a qualitative data set originally used to understand parent participants' preferences for the design and implementation of a screening...
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RT @SergNetwork: Are you heading to BSA medsoc at Warwick next week? If so, stop by at our SERG meeting for a free and fascinating discussi….
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New paper: How can seriousness be framed in a meaningful way in the context of genomics? Unpacking the notion of “serious” genetic conditions: towards implementation in reproductive decision-making?@ErikaKleiderman.
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