With physical exertion, I start to lose my health .Without physical exertion, I start to lose my mind . What a fuck up disease myalgic encephalomyelitis is.

Mowed the backyard. Might go for a walk. I’m lucky to be at a better baseline lately. I know it won’t last.

*tries to have rational conversation about chronic illnesses such as POTS and myalgic encephalomyelitis after Covid*. “All your kids are going to die a horrible AIDS death”

I miss my job. I miss having a routine.

Still believe they will eventually connect a certain virus/bacteria to myalgic encephalomyelitis.

On my second lap around the block.

Might try to go for a walk today.

Definitely noticed a boost in my baseline the past couple weeks. It’s not much in the grand scheme of things but I’ll take it for now. Soon it will be fall and I’ll be on the slide again.

Being imprisoned by your own body is its own kind of hell.

Body and brain on fire. Feeling like 💀.

The freedom of being able to walk around the block lately, I feel alive again. It’s a familiar feeling that has been foreign for a while. It slips away before I can grasp it. Muscles get tight, head starts to get light. The disease insists I head home now. It’s back to purgatory.

If I’m ever able to work out again the first thing I’m rebuilding is my thigh muscles. Completed depleted since becoming chronically ill.

Sitting in the backyard, listening to music on a sunny day. I almost feel normal again.

I went for another walk. Brain and spinal cord inflammation is much worse now. No idea why I do this to myself. No one pushes me to do it. I just can’t help but push myself to my own detriment.

Feeling rough af this morning.

Went for a walk. Mentally I needed it. Physically I did not.

I’m not fatigued, I’m inflamed.

Sometimes I get a brief wave of euphoria and realize how much I still love life. I’m lucky to be moderate for this to happen because when I was severe, it would never happen. It was pure survival every second of every day. I’m still convinced they will figure this disease out.

RT @I_need_a_razor: @scott_scientist @DafoeWhitney @PutrinoLab Myalgic encephalomyelitis doesn’t improve with exercise at any severity. I w….

The last couple weeks when I wake up I sit in the sun in my backyard while drinking a celcius. Afterwards I always feel like shit but for that brief time, I feel like I’m apart of the world again.

Once the inflammation resolves so do the symptoms.