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@ILFA_Ireland

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Irish Lung Fibrosis Association provides research, education and support for patients and families of Lung Fibrosis - a serious and life-limiting condition.

Dublin, Ireland
Joined November 2010
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@ILFA_Ireland
ILFA Ireland
2 months
Lung Fibrosis patients seek action on Delay and Inequity of care. Read the Irish Lung Fibrosis Association release: .@CarrollJennifer @CcoHse @BernardGloster @HSELive
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@ILFA_Ireland
ILFA Ireland
2 days
RT @Geraghty_duffy: The 1st Sligo Pulmonary Fibrosis support group met on 30th June. We had a very successful 1st meeting with a fantastic….
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@ILFA_Ireland
ILFA Ireland
2 days
RT @MaterTransplant: A message from Dr Colm Henry on the importance of organ donation and the opt-out register. @od….
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@ILFA_Ireland
ILFA Ireland
2 days
RT @MaterTransplant: Information on the opt-out register available on the HSE website.Please tell your next of kin….
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@ILFA_Ireland
ILFA Ireland
2 days
Recently @ILFA_Ireland held a "Let’s Talk Money and Budget Advice" with Gerard O’Brien, National Development Officer, Money Advice and Budgeting Service (@MABSinfo The Money Advice and Budgeting Service). A recording is now available to watch.
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@ILFA_Ireland
ILFA Ireland
1 month
Congratulations to Dr Niamh Logan who was the winner of the 2025 Terence Moran Memorial Award for the best case presentation at the joint @irishthoracicS and @ILFA_Ireland ILD Study Day in February. Niamh was presented with her Dublin Crystal award by ILFA CEO, Maureen O'Donnell.
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@ILFA_Ireland
ILFA Ireland
1 month
The next meeting of the @ILFA_Ireland Patient and Public Involvement (PPI) Research Advisory Group will take place this evening, Monday 23rd June online at 5pm. We look forward to seeing you there!
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@ILFA_Ireland
ILFA Ireland
2 months
#HappyFathersDay from the Irish Lung Fibrosis Association! Today we celebrate and remember fathers, grandfathers, husbands, fathers in law, step-fathers, brothers, and uncles who have a special place in our hearts and minds. Enjoy your special day!
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@ILFA_Ireland
ILFA Ireland
2 months
Irish Medical Times: Lung Fibrosis patients have called for a radical overhaul of services – including a nationwide clinical programme, investment in community services and a national registry of patients. @CarrollJennifer @CcoHse @BernardGloster.
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@ILFA_Ireland
ILFA Ireland
2 months
The next meeting of the @ILFA_Ireland Patient and Public Involvement (PPI) Research Advisory Group will take place on Monday 23rd June online at 5pm. We look forward to seeing you there!
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@ILFA_Ireland
ILFA Ireland
2 months
RT @WHO_Europe: 🚨 NEW REPORT: Over 80 million people live with chronic respiratory diseases (CRDs) in the WHO European Region—and many more….
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@ILFA_Ireland
ILFA Ireland
2 months
Lung Fibrosis patients call for investment in regional services and supports – watch short video before presentation at Leinster House this week. @CarrollJennifer @BernardGloster @CcoHse @ivanabacik
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@ILFA_Ireland
ILFA Ireland
2 months
Lung Fibrosis patients call for investment in regional services. Read the report on Activelink news. @MDMA_9 @CarrollJennifer @BernardGloster.
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@ILFA_Ireland
ILFA Ireland
2 months
RT @MDMA_9: @ivanabacik @ILFA_Ireland Thanks for your time Ivana.
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@ILFA_Ireland
ILFA Ireland
2 months
RT @ivanabacik: Attending this morning at Leinster House briefing to support ⁦@ILFA_Ireland⁩ important advocacy work on #LungFibrosis care.….
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@ILFA_Ireland
ILFA Ireland
2 months
A great article from @RoscommonHerald about Ed Swain and Ian Macbeth's epic run to raise pulmonary fibrosis awareness after diagnosis of Ballintubber man. Thank you to everyone involved for their help raising awareness and funds for @ILFA_Ireland.
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roscommonherald.ie
217 kilometres challenge from Dublin to Galway
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@ILFA_Ireland
ILFA Ireland
2 months
📣Calling all respiratory healthcare professionals!.@ILFA_Ireland.will an in-person Mental Health Training Day for healthcare professionals on 18th June 2025 from 9am to 5pm. CPD accreditation will be available for attendees. To register your interest, please email info@ilfa.ie
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@ILFA_Ireland
ILFA Ireland
2 months
International Men’s Health Week.Lung fibrosis typically affects more males than females. If you or someone you know is feeling short of breath, has an ongoing cough and feels unwell, please make an appointment with a GP for an urgent health review
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@ILFA_Ireland
ILFA Ireland
2 months
"Let's Talk Money and Budget Advice” from @ILFA_Ireland and Gerard O’Brien, National Development Officer with the Money Advice and Budgeting Service (@mabsinfo) will take place on 22nd July at 2pm. Please email Gemma@ilfa.ie or call 086 057 0310 to register.
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@ILFA_Ireland
ILFA Ireland
2 months
Best of luck to Ed Swain and Ian Macbeth who will run from Dublin to Galway, 217 km, non-stop to raise funds for @ILFA_Ireland The brave duo will start their run on Ed's birthday 11th June and finish the following day 🎂 You can donate online⬇️. .
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justgiving.com
Help Ed Swain raise money to support ILFA
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