We are less than 30 days away from celebrating our 2nd Annual #IgANAwareDay.From Sunday, May 14 to Saturday, May 20, 2023. We invite you to join us for a week of meaningful moments OR pick your day(s) to get involved to celebrate with us. to learn more

For more than a decade, Stuart Miller navigated IgA Nephropathy without meeting another patient like him. That changed in 2019 — and everything shifted. Read his story.

Why does salt matter in IgAN? 🧂.Swelling, protein in the urine, and high blood pressure are common in IgA Nephropathy—and sodium plays a major role. Learn More. #IgAN #KidneyHealth #SodiumAwareness #LowSodiumLiving #IgANAwareness #NutritionAndKidneys

Meet Amanda. She’s navigating life as a post-transplant IgAN warrior with grit, grace—and a splash of creativity. Hailing from Bensalem, PA, Amanda is not only an artist but also an axe and knife thrower. (Yes, you read that right!).#IgANWarrior #IgANephropathy #DonateLifeMonth

RSVP TODAY. Can't make the time. RSVP to receive a recording of the webinar. 💙💚 #BlueGreenSpiritWeek #kidneydonor #kidneytransplant #IganTransplant #iganephropathy #livingkidneydonor #bigaskbiggive #giftoflife #shareyourspare

As part of our Caregiver/Carepartner Night Out & Summit on September 27, 2025, in Jersey City, NJ, we are hosting a special Caregiver Roundtable—a small, dedicated discussion to share insights, challenges, and support. Learn More .

Secure your spot and register here: @iganfoundation is hosting this webinar on behalf of Novartis Pharmaceuticals. As a leader in the IgAN community, Novartis Pharmaceuticals is proud to sponsor the IgA Nephropathy Foundation and this webinar.

Join us on Wed, April 16 @7PM ET for our special webinar on how to find a living donor, where we'll share insights and resources to help you navigate the process. #DonateLifeMonth #TheGiftOfLife #IgANFoundation

Our future looks bright. You are not alone. ❤️💙 As soon as we receive patient facing materials we will update this post and share with our IgAN Community. Learn More.

📢 Raise Your Voice for Rare Kidney Disease❤️💙🦓⁠.We’re heading back to Washington, D.C., for our 2nd Hill Day on September 10-11, 2025! .⁠.Apply now—space is limited! .⁠..⁠. #IgANAdvocacy #HillDay2025 #RareKidneyDisease #AdvocateForChange

⏰Reminder. Webinar: How best to eat for IgA Nephropathy⁠.Wednesday, April 2, 2025 | 2:00 PM ET⁠.⁠.This webinar is in partnership with American Kidney Fund.⁠.Visit to RSVP.⁠.#iganephropathy

After her 2019 IgAN diagnosis, Dr. Lina Wong turned to culinary medicine to manage her health & slow disease progression. Now, she empowers others to use nutrition as a tool for healing. We celebrate her dedication this Women’s History, Kidney & Nutrition Month! ❤️💙#KidneyMonth

🚨 It’s Official – SPARK CHICAGO 2025 is SOLD OUT! 🚨.Missed your chance to register? Don’t worry—you can still join the waitlist, and we’ll do our best to get you in! . 130 days away ⏰️ 🗓️. Learn More

Pi Day just got a little sweeter! 🥧 Our friends at @CukebookOrg have the perfect kidney-friendly, low-sodium pie crust—flaky, delicious, and easy to make! Dairy-free, egg-free, & low-sodium. #PiDay #KidneyFriendly #BakeForYourHealth

Join us on April 2nd as expert renal dietitian Lauren Budd Levy helps us decode the renal diet specifically for IgAN. Register now to attend live or receive the on-demand recording after the event!. #iganephropathy

Protect NIH & FDA Funding.We are proud to raise awareness with NORD to urge Congress to prioritize rare disease health. The deadline is March 14th—make your voice heard! Send a message to your Senators and Representative today. 📢 Act now:

“Women in medicine & research bring a unique perspective to healthcare. We must advocate for patients & advance research for a better world.” – Dr. Areefa Alladin-Karan, pediatric nephrologist & IgAN researcher, working to find safer treatments for children. #WomensHistoryMonth

SPARK is the ONLY patient advocacy conference 100% dedicated to IgAN. Join us in Chicago this July. Speakers include:.David Rush – Patient advocate and storyteller.Jennifer Miller – Incurable Optimist author, four transplants in 20 years.Learn More ❤️💙

❤️💙 DON’T MISS OUT ON YOUR OPPORTUNITY TO CONNECT ⁠. ⁠[Virtual] Patient Support Group⁠.Mon, Feb 17th 7PM ET⁠.⁠.⁠[Virtual] Caregiver|CarePartner Support Call⁠.Tues, Feb 18th 7PM ET⁠.⁠.⁠Full schedule at .⁠

PSA: Just in case you forgot, tomorrow is Valentine’s Day AND National Donor Day! . Don't worry, we’ve got you covered with some neph-tastically funny, shareable Valentine’s cards! . #IgANLove #KidneyBeMine #NephronAndChill #ValentinesDay #NationalDonorDay

RT @AKF_Advocacy: The #kidneycommunity needs your voice! Hear from AKF Ambassadors as they share how joining the advocacy program has impac….