ICPV
@ICPVtweets
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Independent Cancer Patients Voice is a patient advocate group independent of established cancer charities and aware of the value of medical research.
UK
Joined April 2014
To find our more or to contact ICPV please go to our website or our Facebook page
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Our friends at Breast Cancer Now want to hear how breast cancer has impacted your life. The Survey is all about understanding your experience better. They want to get an honest, unvarnished picture of the realities of breast cancer right now.
Our Big Breast Cancer Survey is about understanding your experience better. Have your say today.
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RT @BreastCancerNow: Our Big Breast Cancer Survey is about understanding your experience better. Have your say today. .
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Are you struggling with body image after surgery? If so, why not take part in thus study. See below for more information or click here
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It was a great meeting and good to hear positive feedback.
Engaging with a patient focus group @RCSnews with @ICPVtweets was an invaluable experience! Gained excellent insights about @Concentric_Hlth. It's crucial to ensure that we're building a product that truly meets patients' needs and enhances their experience. Thank you all! 🙏
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‘Feeling empowered is a gift’: a radiotherapy researcher on how her breast cancer shaped her work
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For information on Prosignia and Oncotype in a variety of languages check out SHORE-C
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Join the Ethnicity and Breast Cancer PPI Group.Women with a personal experience of breast cancer, or women who have an interest in breast cancer are invited to help develop a new study. See the flyer below for details.
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RT @StuartAMcI: Great to be here at #ASBrS24 presenting our survey putting putting experiences at the heart of future research design @drsh….
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RT @BIGagainstBC: TODAY at #EBCC14 !! Don’t miss the results of the Final Analysis of the #Alexandra trial presented by @hmcarthur! @OncoAl….
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RT @NIHRinvolvement: Embedding public involvement activities throughout a research project can ensure that research evidence is relevant, t….
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Have you every used Concentric for digital consent? If so we need you help to join a focus group to discuss how the process worked for you. See the flier below for date and details or contact focus@icpv.org.uk
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RT @wcrfint: Applications now open for the ICPV VOICE Course for Patient Advocates! Welcoming those actively involved in cancer research wi….
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RT @NAoMe_news: 📣 We are recruiting for our NAoMe Patient & Public Involvement Forum!. If you have metastatic #breastcancer (MBC) or are a….
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RT @CRUKresearch: @antonis02 @Cambridge_Uni @mhairi_aitken @turinginst @deemtembo @HDR_UK Richard Stephens of @useMYdata highlights the imp….
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RT @senseaboutsci: Across Denmark, Iceland, Finland, Norway and Sweden, 22% of all clinical trial results were never made public. Only 27%….
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RT @BIGagainstBC: 🌍 On #WorldCancerDay, heartfelt thanks to our patient partners in the BIG Patient Partnership Initiative. This collaborat….
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RT @NIHRinvolvement: Research teams should communicate with a wider audience about public involvement and research, using a broad range of….
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RT @NIHRinvolvement: We know that administering payments for public involvement can be complicated, so we’ve developed guidance with @HRA_L….
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