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Hypersomnolence Australia Profile
Hypersomnolence Australia

@Hyper_Sleep

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Advocacy, Education & Awareness for Idiopathic Hypersomnia & Narcolepsy. Hosts of the Idiopathic Hypersomnia Awareness Week @IHAWeek

Australia
Joined August 2014
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@Hyper_Sleep
Hypersomnolence Australia
1 year
Resources on a range of topics relevant to Living with Idiopathic Hypersomnia and Narcolepsy. Check back here regularly as we add to our library. https://t.co/D3mbT2yzVv #LivingwithIH #IdiopathicHypersomnia #narcolepsy #LivingwithNarcolepsy
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@Hyper_Sleep
Hypersomnolence Australia
9 days
Volunteers required VIBRANCE-3: Orexin Agonist Study for Idiopathic Hypersomnia MELBOURNE: https://t.co/QcPbk5xynn for more info, or contact: respiratorymedicine.trials@monashhealth.org ADELAIDE: Contact Alison Teare alison.teare@flinders.edu.au OR aish.sleeplab@flinders.edu.au
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@Hyper_Sleep
Hypersomnolence Australia
20 days
Alkermes has announced positive topline results from the Vibrance-2 phase 2 study evaluating alixorexton in patients with narcolepsy type 2 (NT2). Learn more: https://t.co/Gb9uigloIl
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@Hyper_Sleep
Hypersomnolence Australia
1 month
💬 Have you experienced side effects or reduce effectiveness with the generic sodium oxybate? 👉 If you’ve noticed any side effects or how the generic sodium oxybate works for you, please complete our short feedback form. Aussies only 🔗 https://t.co/pCOBdY4Xlw
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@Hyper_Sleep
Hypersomnolence Australia
1 month
Update on Xyrem® (Sodium Oxybate) Supply in Australia https://t.co/nAv8HfFlMs
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@Hyper_Sleep
Hypersomnolence Australia
1 month
✨Sleep DownUnder 2025 Highlights from the perspective of Narcolepsy & Idiopathic Hypersomnia ✨ 📘 Read the full report here: https://t.co/P3yDoYXqv6 #SDU2025
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@Hyper_Sleep
Hypersomnolence Australia
1 month
VIBRANCE-3: Orexin Agonist Study for Idiopathic Hypersomnia - Monash is NOW RECRUITING people in Victoria https://t.co/QcPbk5xynn
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@Hyper_Sleep
Hypersomnolence Australia
2 months
The next Living with #Narcolepsy Catch Up is THIS Wednesday 1st October, 6.30pm AEST. Register here: https://t.co/W43Bq1lUk9
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@Hyper_Sleep
Hypersomnolence Australia
2 months
🗣️ Your voice matters. 👉 Survey: https://t.co/D3j67z8mkg This quick, anonymous survey will help guide how HA speaks up for our community in policy & advocacy. 🔒 No names or emails are collected - Please feel free to be completely open. #narcolepsy #IdiopathicHypersomnia
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@Hyper_Sleep
Hypersomnolence Australia
2 months
Meet people you can relate to - the next Living with #Narcolepsy Catch Up is Wed 1st Oct, 6.30pm AEST. More info https://t.co/0HxZ7KiRHh Read real stories & learn about narcolepsy: https://t.co/j8jCSRhi8K #LivingwithNarcolepsy #Narcolepsy #WorldNarcolepsyDay
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@Hyper_Sleep
Hypersomnolence Australia
2 months
✨Today is WORLD NARCOLEPSY DAY!✨ Read real stories, learn about narcolepsy, and find support: https://t.co/j8jCSRhi8K #WorldNarcolepsyDay #NarcolepsyAwareness #Narcolepsy #LivingWithNarcolepsy
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@Hyper_Sleep
Hypersomnolence Australia
2 months
“Narcolepsy is a joke in pop culture, affecting those who have it” Dr. Aaron Schokman, a lived experience (narcolepsy type 1) Research Fellow Uni of Sydney. https://t.co/YCMGR6Pvhr #WorldNarcolepsyDay
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@Hyper_Sleep
Hypersomnolence Australia
3 months
Monday, 22nd September is WORLD NARCOLEPSY DAY! Read real stories, learn about narcolepsy, and find support: https://t.co/j8jCSRhi8K #WorldNarcolepsyDay
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@Hyper_Sleep
Hypersomnolence Australia
3 months
We’re hosting an in person community catch up! 📍 River Torrens, Adelaide 🗓 Saturday 11 October ⏰ 10am For people living with #Narcolepsy or #IdiopathicHypersomnia 👉 If you’d like to join us, keep an eye on this post - we’ll share the exact meeting spot closer to the day.
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@Hyper_Sleep
Hypersomnolence Australia
3 months
Packed house! One of the true highlights of #WorldSleep2025. Thank you to all the researchers involved & @Alkermes, and @TakedaPharma for their continued commitment to advancing outcomes for people living with #Narcolepsy & #idiopathichypersomnia
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@MChadwick30
Michelle 🌸
3 months
Im excited to be in Singapore this week for #WorldSleep2025. It’s inspiring to see lived experience and research come together on a global stage, and to ensure that people with idiopathic hypersomnia and narcolepsy are part of the conversation.
@Hyper_Sleep
Hypersomnolence Australia
3 months
🌏✨ World Sleep 2025 – Singapore ✨🌏 This week, Hypersomnolence Australia’s Michelle Chadwick is in Singapore for the World Sleep Congress, proudly representing people living with #idiopathichypersomnia (IH) and #narcolepsy. #WorldSleep2025
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@Hyper_Sleep
Hypersomnolence Australia
3 months
🌏✨ World Sleep 2025 – Singapore ✨🌏 This week, Hypersomnolence Australia’s Michelle Chadwick is in Singapore for the World Sleep Congress, proudly representing people living with #idiopathichypersomnia (IH) and #narcolepsy. #WorldSleep2025
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@Hyper_Sleep
Hypersomnolence Australia
3 months
Living with IH? Join the registry: https://t.co/dzm2CCVe6E We’re in the process of expanding our registry to include ALL Central Disorders of Hypersomnolence (narcolepsy, KLS), making this registry even more powerful. 🔗 Read more about the findings: https://t.co/U8PLno2NUC
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@Hyper_Sleep
Hypersomnolence Australia
3 months
Support for people diagnosed with #narcolepsy and living in Australia REGISTER: https://t.co/W43Bq1lUk9 More info: https://t.co/0HxZ7KiRHh
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@Hyper_Sleep
Hypersomnolence Australia
3 months
HOW TO ACCESS XYREM (Sodium Oxybate) in Australia - and why it isnt TGA registered or PBS listed. This article also explains how you may (if you qualify) apply through public hospital programs to have the cost subsidised https://t.co/dJnFstuejE #Narcolepsy #IdiopathicHypersomnia
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@Hyper_Sleep
Hypersomnolence Australia
4 months
#Narcolepsy #IdiopathicHypersomnia Research volunteers required. Register your interest: https://t.co/LW99tnEcmL
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