Hunter's Hope
@HuntersHopeFDN
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Working toward treatments and a cure for Krabbe & Leukodystrophies, advocating for newborn screening and supporting those affected by these diseases.
Orchard Park, NY
Joined February 2010
“I am leaving you with a gift—peace of mind and heart. And the peace I give is a gift the world cannot give. So don’t be troubled or afraid.” John 14:27 (NLT)
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Romans 15:13 (NIV) “May the God of hope fill you with all joy and peace as you trust in Him, so that you may overflow with hope by the power of the Holy Spirit.”
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“Enter His gates with thanksgiving and His courts with praise; give thanks to Him and praise His name. For the Lord is good and His love endures forever; His faithfulness continues through all generations.” — Psalm 100:4–5 (NIV)
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Presentations from the 2025 Hunter’s Hope Medical Symposium are available on our website. Learn from leading experts in leukodystrophies and access the full program here: https://t.co/DYFrr9xif6
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“Let the peace of Christ rule in your hearts, since as members of one body you were called to peace. And be thankful.” - Colossians 3:15 (NIV)
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This year’s World Cord Blood Day Conference will be held on Nov. 17th & feature a presentation from Dr. Joanne Kurtzberg on the use of cord blood in the treatment of Krabbe disease. Register & Learn More: https://t.co/0Mkj0lHiro
#WorldCordBloodDay #KrabbeDisease #NewbornScreening
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The Story of Beau Bean – Part 2 In this powerful continuation, Erin and Parker Bean share the deeper struggles they faced with God during the 38 days they spent with their son, Beau, in the hospital. Now streaming on The Immeasurably More Podcast.
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Philippians 4:6–7 (NLT) — “Don’t worry about anything; instead, pray about everything. Tell God what you need, and thank Him for all He has done. Then you will experience God’s peace, which exceeds anything we can understand.”
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Oregon, Kansas and New Mexico are now screening for Krabbe Disease! Thank you to the amazing families who never stopped fighting to make this happen. #NewbornScreening #KrabbeDisease
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Isaiah 26:3 “You will keep in perfect peace all who trust in You, all whose thoughts are fixed on You.”
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Join our TEAM! We're hiring a Development & Fundraising Manager to help us support children & families affected by Leukodystrophies. Passion for purpose, fundraising, & connection? Apply by Oct 31 → info@huntershope.org #Hiring #NonprofitJobs
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Whatever comes your way today, face it with this confidence: “My grace is sufficient for you, for my power is made perfect in weakness.” – 2 Corinthians 12:9 (NIV)
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Our annual Hunter's Hope Family Symposium was absolutely amazing! We miss you all! Can't wait for next year! 😊
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Join Erin & Jill as they walk through our Speak Life booklet, created for this year’s Mental Health Awareness Month. While it was designed with May in mind, its message is for every day of the year. If you would like a Speak Life booklet, reach out to us -podcast@huntershope.org.
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Tomorrow is the first day of our Family Symposium! We can't wait to see you!
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God's fighting for you in battles you don't even know about. You can trust Him! ❤
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THE SIBLING COLLECTION - feat. Conner May Conner chose this design because the image of the nails in Jesus’ hands powerfully reminds him of the sacrifice Jesus—and God—made for us all. Check out Conner's design: https://t.co/Cs9WwzUcci Sibling Challenge: https://t.co/QveSf2OsLL
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This year’s #HHSymposium would not be possible without our generous sponsors. Thank you for helping us make important advancements and provide our families a week of #HOPE.
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You’re not supposed to have it all figured out...you’re human. This episode is a reminder that being human isn’t a weakness…it’s where God's grace meets us. Tune in now and be reminded: you were never meant to do it all—you were meant to trust the One who can.
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