Sharing my new paper on #longCovid, #MECFS, welfare reform politics and the risk of history repeating itself. Situates the PACE trial, psych lobbying of the state ref ME etc. in its wider (bio)political context. #disability #benefits

However safe this space feels for #pwME & LC for many reasons some will always feel far more comfortable not sharing the specifics of what theyre going through & the degree to which they're suffering here in a public space Thinking of those all suffering who are quiet & private

A few peeps asked if I could unpack some of my academic papers on disability-affirmative psychotherapy as an emotional support for ppl who choose it … … I’ve sought to do so in this blogpost, with focus on #MECFS https://t.co/Yt1u2lR9sD

The #MECFS Research Roadmap Report has been published. It is a a cross-sectional, multidisciplinary discussion of current ME/CFS research, organized by the @NIH. https://t.co/vFRi5Ic4Ef

Last night we had a brilliant @FestOfDebate @citizen_network on hosted by @SHU_AWRC What is Health? Jack Czauderna (my hero) explained what the Peckham Experiment can teach us about the link between community and health. @EmmaLatimer3

How could the same facility that rushes people to the ER to save their lives actively kill someone just down the hall?  This is beyond psychologizing physical illness, it seems like these medical staff do not see the humanity in Severe ME/CFS patients; As if we are so sick and

“Disability cuts: Work isn’t the pull Sunak thinks it is”. A response in @Freedom_Paper to recent welfare reform announcements & some context around the current world of work. Disabled people contribute - waged or not. Please RT #WorkIsntWorking https://t.co/wzIZmD4ee4

#NoToAS Liz Carr documentary Better off Dead? Airs on BBC1 9pm Tomorrow Tuesday 14th May 2024 https://t.co/PRaB5KfeMY

Connecting people & connecting struggles. #SolidarityInAction

#FundDisabilitySupport #HandsOffWhaikaha Please show solidarity to disabled New Zealand activists as they ramp up resistance against the New Zealand Government against cuts to disability support We are totally with disabled allies in New Zealand RT https://t.co/oP7A7bIi5B

It’s doggie booster day! My service dogs wear a PM2.5 valved masks inside their airflow muzzles. I have Common Variable Immune Deficiency, putting me at high risk of hospitalization and death from even minor infections.

This has been in the stacks for a while, but with a few updates, it's ready to go. Explore with us the intersection of the brain retraining methods such as the Lightning Process, the Gupta Program and the Biopsychosocial model applied to ME and Long Cvd. https://t.co/IZINAx2Tia

When you get #MECFS you also typically suffer a catastrophic loss of trust in the healthcare system. The safety net you thought was there doesn't exist and you keep on falling and falling. #wato

Three things to do: Make sure you're registered to vote https://t.co/FAmUEXYnyJ If you're going to be away or travelling on 4th july get a postal vote https://t.co/73W1L21bxk Check you have the right ID or get photo ID https://t.co/LCCGHVlpuY LETS GET THESE FUCKERS OUT

❓📣Who are the academics and researchers living with energy limiting conditions working in social sciences, Disability Studies, medical humanities or related fields? I know there are many of you out there! Please reply if this is you And RT to get the word out 🙏

Sunak’s misleading sick note numbers The PM implied that 1.35 million were off work because of depression or anxiety. That’s not true More than 1 million of them – had depression or anxiety as a secondary condition, rather than the reason for which they were signed off Link ⬇️

Britain is sicker and poorer than it used to be. Sunak’s response? Attack disabled people | Frances Ryan | The Guardian

BREAKING: UN committee finds thats the UK government has "failed to take all appropriate measures to address grave and systematic violations" of the human rights of disabled people. me for @TheCanaryUK #CRDP24 https://t.co/nRZLbdBPvK

‘conditions that could be framed as psychological or psychosocial in nature, and thus amenable to psychosocial interventions, could be exempted from welfare provision and health insurance pay-outs.’ #ME ⁦@HealthHubris⁩ Brilliant piece on #BPS 👇