OhTWIST.bsky.social now too
@H2OhTwist
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Oh, That's Why I'm So Tired! Ehlers-Danlos Syndrome survivor & writer. She/her. Co-author #EDSToolkit for doctors. EDS / HSD isn't rare, just rarely diagnosed.
disabled.social/@ohtwist
Joined March 2014
Yes, my timeline is primarily devoted to #MedEd #FOAMed around #EhlersDanlos and #hypermobility Spectrum Disorders et al. But "al" includes #autism and #ADHD it turns out. Whence some tweets related to those, and issues affecting #autistic people, like S1a's movie out now.
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December 3rd, 2025 is International Day of Persons with Disabilities - something folks with EDS and HSD know a lot about, as the majority of us find ourselves disabled, sometimes in multiple ways: https://t.co/OgbfI7Gj0b
#EDS #hEDS #HSD #MCAS #POTS #Disabilities #zebras
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Oof. No help at all. It's been a long day 😴 Please help my disabled family make ends meet 🙏🏻 🫶🏻 Thank you for your kindness 💜🩵 #MutualAidRequest #Helpfolkslive2025
‼️ Can anyone help out with this, its our only phone. $45.99 + transfer fees ‼️ Thank you for your kindness and happy holidays to you and yours 🙏🏻
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They overturned Roe. Women are bleeding to death in parking lots. Being arrested for pregnancy loss. Being turned into human incubators. They didn’t end the war on women, they’re driving it.
RFK Jr: "Two weeks ago we ended, under your leadership, a twenty year war on women". Three out of five men in this shot have been accused of sexual misconduct, harassment or abusive behaviour towards women. A fourth signed into law a near-total abortion ban in his state.
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Resistance to local anesthesia (seen) in people with the Ehlers-Danlos Syndromes presenting for dental surgery 2019 Schubart, Schaefer, Janicki et al https://t.co/u5pPz5VWol
#EDS #hEDS #Hypermobility #HSD #fibro #Fibromyalgia #NEISvoid #MedTwitter #Dentistry #Dentists
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Síndrome de #EhlersDanlos vascular, #vEDS, con hemoptisis como manifestación principal: hallazgos histológicos y de TC de daño parenquimatoso pulmonar La hemoptisis, q consiste en la expulsión de sangre, con la tos, procedente de vías aéreas inferiores, no es muy habitual en #EDS
The Orphanet Journal of Rare Diseases reports on Vascular Ehlers-Danlos syndrome (vEDS), a rare condition linked to COL3A1 mutations, which can lead to serious complications like hemoptysis and arterial rupture. ➡️ https://t.co/63vtsTPMSh
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We remember our late visionary founder John Ferman while continuing to uphold his EDS Awareness legacy this December in our newsletter... https://t.co/sxbncdikFO
#EDS #EhlersDanlosSyndrome #Hypermobility #hEDS #HSD #Zebras #Spoonies #POTS #MCAS #MedicalKidnap #FII #Doctors
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I try not to cross-promote much. But if anyone is in Portland, Oregon this Saturday 12/6 you can come see me and my photography at this little winter Bazaar at Woodmere Elementary 11-5. Jan G, Photograbee.
Good morning beeps. (Bee-loving peeps.) You can find me in person this coming Saturday 12/6 at Woodmere Elementary 7900 SE Duke, Portland, OR. 11-5. Free admission. I'll be just inside the gym entrance in the back of the school. #arts #pdx #photography
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Comeon everyone! Their beautiful ESA pet has passed away, let’s embrace them & get them some assistance given the grief they are also going through
[death of ESA dog] My friend will be unhoused homeless in two days without some care. The sudden death of her beloved dog is crushing and I am really hoping that folks will come through to show her some care.
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It cost 0$ to share a Black disabled queer small business! It could lead to my next sale. Get 10% off using code BIBIPINSSALEWEEK on almost everything in my store!! Ends Dec 5th at 11:59PM MST. I rarely have sales. Store details below!
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Disabled people were one of the first groups targeted by the Nazis They coined the term “useless eaters” They tested the gas chambers on us They knew most people wouldn’t fight to save our lives That’s why the President using the R slur is so dangerous We’re not expendable
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When #POTS isn't POTS (or PoTS) - look for CSF leaks: https://t.co/T3WrgQSbEg
#EDS #HMS #Dysautonomia #CSF #MedEd #FOAMed #zebras #doctors #nurses #neurology #CSFLeak #IIH #MedTwitter #medicine #NEISvoid
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ahai - a 100% private Mac app using local mlx AI models - found my 1541 ideas across 13447 markdown files. Thread 🧵
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We recommend avoiding Cipro and all fluoroquinolones if you're hypermobile: https://t.co/0hxoGtczIB
#EDS #HSD #Fibro #medicine #fibromyalgia #nurses #doctors #medicine #MedTwitter #MedEd #FOAMed #NEISvoid
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Sorry im struggling alot. Im going to tackle the mutualaidthread. If you can help my family. We borrowed so much to make it through Thanksgiving any help is greatly appreciated. I'll make a needs list for my family soon. Immediate goals are 100 for $30 debt due 2 days ago.
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Please help if you can. They are barely housed and really need to remain so TY! Fellow zebra. #EDS #hEDS #zebras #spoonies #NEISvoid
https://t.co/wyw7vLcO2D
Sorry im struggling alot. Im going to tackle the mutualaidthread. If you can help my family. We borrowed so much to make it through Thanksgiving any help is greatly appreciated. I'll make a needs list for my family soon. Immediate goals are 100 for $30 debt due 2 days ago.
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What is POTS? (Postural Orthostatic Tachycardia Syndrome, a common #EDS comorbidity) https://t.co/kewMynf1l0
#HSD #POTS #zebras #MedEd #FOAMed #doctors #nurses #hypermobility #dysautonomia #Spoonies #MedTwitter #NEISvoid
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Reposting bc i feel completely invisible and dont see anyone
I wish i could just call my mom or dad for help byt hahaha. links way down here. Cshap freckledsun Vmo frecklesfrack https://t.co/wp5klOptg0
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It cost 0$ to share a Black disabled queer small business! It could lead to my next sale. Get 10% off using code BIBIPINSSALEWEEK on almost everything in my store!! Ends Dec 5th at 11:59PM MST. I rarely have sales. Store details below!
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Mental health rights are disability rights. This study needs way more support, perhaps #DisabilityTwitter could help share? #NEISvoid #DisabilityJustice #MedicalGaslighting #Spoonie #MEcfs #LongCovid #DisabilityRebellion #TakingThePIP #WelfareNotWarfare #CareNotCuts #Motability
🧵 Hi, I'm a PhD student focusing on harm in UK mental health services, & I would like to hear about your experiences of harm in services between 2010-2025. (Mental health services includes NHS, charities, companies, private therapists & other orgs) 1/ https://t.co/9laXj1TdK2
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For day 29 of #NationalEpilepsyAwarenessMonth (or #NEAM) our theme is "Comorbidities". Many people with #Epilepsy are likely fighting other issues one can't see. Comorbidities like #anxiety, #depression, or cognitive issues (like memory and focus) are common. #EpilepsyAwareness
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