Tom
@Greasylightbulb
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Investigating genetic causes of sudden cardiac death and advocating for heart health #cardiogen. Also: football, bikes, film, nature and the Wellington scene.
WGTN
Joined April 2011
Standing up for workers' rights, social infrastructure, and equity #marangamai
https://t.co/3vSEPbLIOF
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We are seeing the consequences of an increasingly imperfect health system on a daily basis now. Kia Manawanui want to collect patient stories to support their efforts for improving the service for people with serious heart issues
kmtrust.org.nz
We are fighting for quality heart healthcare. New Zealand's healthcare system is failing Kiwis with cardiovascular disease. We're working to change that.
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Aortic Dissection Awareness Day in New Zealand : Fri 20 Sept at The Heart Foundation in Auckland, or online via Teams. Looks great for patients and whānau, but also healthcare professionals too... https://t.co/jKqxtkX7SH
#aorticdissection
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Te Whatu Ora - Health New Zealand staff now have FREE trial access to BMJ Best Practice and its unique Comorbidities Manager. Visit https://t.co/KAM4aaShE5 for details.
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There is now a Pacific scholarship to study Master of Genetic Counselling. The course will be at UTS in Sydney, but can be done remotely. Will be an amazing opportunity for people with the relevant professional and cultural background https://t.co/vc4eVGQnTo
#cardiogen
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I just signed - will you join me? https://t.co/sQz4k1fYlG via @actionstation
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Great illustration of how nursing excellence can, and should, have a key role to play in care pathways for inheritable cardiac conditions #ICCG2024 #cardiogen @TheCIDG #detectprotectenable
The very awesome @RachaelmlStiles presenting at #iccg24 on Nursing of patients with Inherited Arrhythmias in New Zealand
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The very awesome @RachaelmlStiles presenting at #iccg24 on Nursing of patients with Inherited Arrhythmias in New Zealand
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@thecsanz @CSANZ_NZ here we are at #ICCG2024 International Clinical Cardiovascular Genetics Conference at the education day… spreading the knowledge and love for Cardiac Genetics! Stellar talks of complex ideas in simple and impactful ways! @JonSkin81264180 leading the way!
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A truly Māori-led agency that has the power to resource and lift up kaupapa Māori, and iwi and hapū health services, can improve health not just for Māori, but all communities in Aotearoa. https://t.co/CAEQBHfoyH via @actionstation
our.actionstation.org.nz
Our health system has failed Māori for far too long. Report after report has demonstrated institutional racism and exclusion of Māori leadership that has led to devastating outcomes and inequity....
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Please consider signing....
'Put our People over Profit - Stop the Repeal of the Smokefree Legislation!' We urgently call on the Government to stop the repeal of the Smokefree Environments and Regulated Products (Smoked Tobacco) Amendment Act. Sign and share the petition!! https://t.co/bpmcvcT4PJ
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I do like a fun crowdfund situation! I also like a tasty saison :-) : https://t.co/aFv0kqknCz via @pledgeme
pledgeme.co.nz
Help us get the yeast to the people! Pledge now on our awesome rewards.
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A favorite time of the year, NZ's heart rhythm meeting (HRNZ) with a great inheritable condition session. Hearing about variant curation, functional assessment, and WGS research, all happening in Aoteaora! Then I'm discussing insurance discrimination. #cardiogen @TheCIDG
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This week, @joshburnsmp introduced a motion calling for policy change against genetic discrimination in life insurance. Read our Conversation article about it here: https://t.co/FnRzIHYgAh You can ask your MP to support this change using our simple tool:
theconversation.com
Life insurance companies can legally use the results of genetic tests to decline coverage or increase premiums. MPs have called for legislation that bans this practice.
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Join us for #CLICC 2023 Part One on Tuesday 12th September! Free to register https://t.co/hD0udYI39Z
@Chiara_Scrocco @manish2107 @JohnWhitaker20 @carolinecoats @2tbueser @elliemquinn @robert_leema @BehrElijah
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Have you added your voice to the campaign against genetic discrimination yet? A motion will be heard in Parliament next week, & every Australian can make a difference. Use our simple tool to ask your federal MP to support a ban on genetic discrimination:
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Excellent quality online professional development in cardiac inherited diseases, coming soon!
Join us online in September for updates in ICC part one #CLICC 2023! @AiccUk @BehrElijah @robert_leema @carolinecoats @2tbueser @JohnWhitaker20 @Chiara_Scrocco @ktframpton @elliemquinn #CardioEd #Cardiotwitter Free to register https://t.co/jsLDqTZJXY
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This week is Cardiomyopathy Awareness Week! #Cardiomyopathy is a family of diseases that affect the heart muscle and its ability to pump blood through the body. Learn more: https://t.co/BhyS1D96iR
#WhyGeneticsMatter #CardiomyopathyAwareness2023
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I love this IG account so much even if it makes me sad I don't have easy access to KC anymore. These two KC fans decided to review every item on Wellington's best hole in the wall Chinese restaurant (yes arguments can be had). https://t.co/MjI6GLuCyJ
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Of great concern this newly published study in @ESC_Journals by dr. @CamJespersen found that one in sixth of patients 👨🏽👩🏼 with Brugada syndrome (BrS) developed new-onset depression or anxiety following a diagnosis of BrS 🫀
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