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Global Sickle Cell Disease Network Profile
Global Sickle Cell Disease Network

@GlobalSCDN

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The Global Sickle Cell Disease Network is a platform for resources and engagement for researchers, clinicians & organizations advancing work of SCD in LMICs.

Joined April 2009
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@GlobalSCDN
Global Sickle Cell Disease Network
2 months
RT @SickKidsGlobal: To celebrate #WorldSickleCellAwarenessDay🩸, @SickKidsGlobal's partners in the Community-based SCD Care & Screening capa….
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@GlobalSCDN
Global Sickle Cell Disease Network
2 months
RT @SickKidsGlobal: Today is #WorldSickleCellAwarenessDay🩸! SCD is one of the most common genetic diseases worldwide. To mark this importan….
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@grok
Grok
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What do you want to know?.
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@GlobalSCDN
Global Sickle Cell Disease Network
2 months
RT @WHO: Many pregnant and breastfeeding women cannot be sure that their needed medications are safe for them – inc. for diseases like #Sic….
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@GlobalSCDN
Global Sickle Cell Disease Network
2 months
RT @WHO: Today is #SickleCell Awareness Day 🩸. 40% more people are living with sickle cell disease today than in 2000. It is a growing heal….
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@GlobalSCDN
Global Sickle Cell Disease Network
2 months
RT @DrOdame: Management of sickle cell crises alone is inadequate to achieve best outcomes for patients with sickle cell disease. Patients….
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@GlobalSCDN
Global Sickle Cell Disease Network
2 months
RT @DrOdame: Today, World Sickle Cell Awareness Day, we should double efforts to surmount the diagnosis barrier in LMICs. Accurate point-of….
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@GlobalSCDN
Global Sickle Cell Disease Network
2 months
RT @DrOdame: Today is World Sickle Cell Awareness Day. Untreated, sickle cell anemia results in > 45 years of healthy life lost. That’s why….
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@GlobalSCDN
Global Sickle Cell Disease Network
2 months
RT @SickKidsGlobal: Today is #WorldSickleCellDay🩸! Join @SickKidsGlobal & @WorldCEAlliance for a special webinar on access to hydroxyurea f….
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@GlobalSCDN
Global Sickle Cell Disease Network
2 months
Thanks to all who joined the 5th Global Congress on #SickleCellDisease June 3–6! From powerful conversations to global collaboration, your participation & engagement are helping to drive #SCD care, education, advocacy & research forward.#GlobalSCDCongress2025 #SickleCellAwareness
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@GlobalSCDN
Global Sickle Cell Disease Network
2 months
RT @uscrfuganda: On the 4th day of the 5th Global Congress on Sickle Cell Disease, we linked up with the First African Sickle Cell Patient….
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@GlobalSCDN
Global Sickle Cell Disease Network
2 months
RT @uscrfuganda: The 5th Global Congress on Sickle Cell Disease that happened last week was also about linkages and partnerships .Among the….
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@GlobalSCDN
Global Sickle Cell Disease Network
2 months
RT @muhammadpate: Today in Abuja, I had the honour of addressing delegates from over 60 countries at the 5th Global Congress on Sickle Cell….
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@GlobalSCDN
Global Sickle Cell Disease Network
2 months
RT @uscrfuganda: Second Day was about engagement with different partners and organization representatives at the Global congress. Learni….
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@GlobalSCDN
Global Sickle Cell Disease Network
2 months
RT @uscrfuganda: This week we sent our Community Engagement Officer Musiimenta Euniky to the 5th Global Congress on Sickle Cell Disease hos….
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@GlobalSCDN
Global Sickle Cell Disease Network
3 months
RT @SickleInAfrica: SickleInAfrica will be at the 5th Global Congress on Sickle Cell Disease in Abuja, Nigeria (June 3–6). Our members will….
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@GlobalSCDN
Global Sickle Cell Disease Network
3 months
The Congress provides a unique opportunity to come together to share ideas & drive real progress in the diagnosis, treatment & care of people living with #sicklecelldisease. Don't miss the powerful lineup of plenary sessions being offered. Learn more➡️:
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@GlobalSCDN
Global Sickle Cell Disease Network
3 months
📣The theme for the 5th Global Congress on Sickle Cell Disease is: Working Together to Reduce the Burden of Sickle Cell Disease: Leaving No One Behind. Join #SCD care professionals, researchers & advocates from around the 🌍 — register: #SCDCongress2025.
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@GlobalSCDN
Global Sickle Cell Disease Network
3 months
Have you registered yet? The 5th Global Congress on Sickle Cell Disease is fast approaching — June 3–6 in Abuja, Nigeria. Don’t miss an incredible lineup of experts sharing the latest in #SickleCell research & care➡️: #SCD #SCDCare #SickleCellResearch.
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@GlobalSCDN
Global Sickle Cell Disease Network
6 months
The 5th Global Congress on Sickle Cell Disease is happening in Abuja, Nigeria, from June 3–6, 2025! Don’t miss an incredible lineup of experts sharing the latest in #SickleCell research & care. Learn more & register now➡️ #SCD #SCDCare #SickleCellResearch.
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@GlobalSCDN
Global Sickle Cell Disease Network
6 months
📣The 5th Global Congress on Sickle Cell Disease is taking place in Abuja, Nigeria, from June 3–6, 2025. Register now to attend! 🗓️Early bird pricing ends on Feb. 28➡️: #SCD #SCDCare #SickleCellAdvocate #SickleCellResearch #SickleCellDisease.
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