Global Sickle Cell Disease Network
@GlobalSCDN
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The Global Sickle Cell Disease Network is a platform for resources and engagement for researchers, clinicians & organizations advancing work of SCD in LMICs.
Joined April 2009
To celebrate #WorldSickleCellAwarenessDay🩸, @SickKidsGlobal's partners in the Community-based SCD Care & Screening capacity building project, Maamobi General & Princess Marie Louise hospitals, hosted community SCD awareness events in Accra, Ghana!🇬🇭 Learn more:
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Today is #WorldSickleCellAwarenessDay🩸! SCD is one of the most common genetic diseases worldwide. To mark this important day, @SickKidsGlobal's @DrOdame led a special global webinar, co-hosted by the Centre & the @WorldCEAlliance, delivering a talk entitled, "Hydroxyurea —
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Many pregnant and breastfeeding women cannot be sure that their needed medications are safe for them – inc. for diseases like #SickleCell - because of exclusion of these groups from clinical trials. A new global Task Force aims to accelerate ethical inclusion in research, for
who.int
Pregnant and breastfeeding women have historically been excluded from medical research, resulting in substantial gaps in evidence on the safety and efficacy of medicines and vaccines during these...
With high quality care, women with #SickleCell disease can have safe and healthy pregnancies and births. They need: 👨🏿⚕️ Access to skilled health workers to help them manage their condition 🩺 Additional health checks 🤰🏾 Individualized and respectful care 🔬 More research to
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Today is #SickleCell Awareness Day 🩸 40% more people are living with sickle cell disease today than in 2000. It is a growing health challenge, affecting around 7.7 million people in the world today. This means more health workers – inc. maternity providers - need to know how
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Management of sickle cell crises alone is inadequate to achieve best outcomes for patients with sickle cell disease. Patients should ask their providers about hydroxyurea, an effective disease-modifying treatment. @GlobalSCDN @SickKidsGlobal
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Today, World Sickle Cell Awareness Day, we should double efforts to surmount the diagnosis barrier in LMICs. Accurate point-of-care tests are available to supplement lab techniques like isoelectric focusing/electrophoresis. Early diagnosis matters! @GlobalSCDN @SickKidsGlobal
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Today is World Sickle Cell Awareness Day. Untreated, sickle cell anemia results in > 45 years of healthy life lost. That’s why early diagnosis and hydroxyurea treatment should be the standard of care regardless where patients live in the world.
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Today is #WorldSickleCellDay🩸! Join @SickKidsGlobal & @WorldCEAlliance for a special webinar on access to hydroxyurea for people with sickle cell disease. Hear from one of the world’s leading voices on #SickleCellDisease, Dr. Isaac Odame, Hematology Section Head in the Division
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Thanks to all who joined the 5th Global Congress on #SickleCellDisease June 3–6! From powerful conversations to global collaboration, your participation & engagement are helping to drive #SCD care, education, advocacy & research forward.#GlobalSCDCongress2025 #SickleCellAwareness
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On the 4th day of the 5th Global Congress on Sickle Cell Disease, we linked up with the First African Sickle Cell Patient to get cured using Gene therapy A beacon of hope to all Sickle Cell Warriors out there.
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The 5th Global Congress on Sickle Cell Disease that happened last week was also about linkages and partnerships Among the linkages was the Nortvartis Team and National coordinator of sickle cell Dr. Kiyanga Ministry of Health and VP Journeys By Grace, Ms. Kisha Chempton
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Today in Abuja, I had the honour of addressing delegates from over 60 countries at the 5th Global Congress on Sickle Cell Disease @GlobalSCDN. This gathering could not have come at a more critical time. As Nigeria deepens implementation of the National Health Sector Renewal
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Second Day was about engagement with different partners and organization representatives at the Global congress. Learning different modules on management, treatment, preventive and advocating methods that they use in different countries to combat SCD
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This week we sent our Community Engagement Officer Musiimenta Euniky to the 5th Global Congress on Sickle Cell Disease hosted at Abuja Continental Hotel in Abuja Nigeria from 3rd June to 6th June 2025. Quite an honorable experience with an international discussion on SCD
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SickleInAfrica will be at the 5th Global Congress on Sickle Cell Disease in Abuja, Nigeria (June 3–6). Our members will be presenting in several sessions. Here are some highlights (more loading..) Attending the congress? We would love to connect! Please come say hi. #GCSCD2025
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The Congress provides a unique opportunity to come together to share ideas & drive real progress in the diagnosis, treatment & care of people living with #sicklecelldisease. Don't miss the powerful lineup of plenary sessions being offered. Learn more➡️: https://t.co/GasEtAF025
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📣The theme for the 5th Global Congress on Sickle Cell Disease is: Working Together to Reduce the Burden of Sickle Cell Disease: Leaving No One Behind. Join #SCD care professionals, researchers & advocates from around the 🌍 — register: https://t.co/DT5pQEdUpR
#SCDCongress2025
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Have you registered yet? The 5th Global Congress on Sickle Cell Disease is fast approaching — June 3–6 in Abuja, Nigeria. Don’t miss an incredible lineup of experts sharing the latest in #SickleCell research & care➡️: https://t.co/GasEtAF025
#SCD #SCDCare #SickleCellResearch
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The 5th Global Congress on Sickle Cell Disease is happening in Abuja, Nigeria, from June 3–6, 2025! Don’t miss an incredible lineup of experts sharing the latest in #SickleCell research & care. Learn more & register now➡️ https://t.co/GasEtAF025
#SCD #SCDCare #SickleCellResearch
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📣The 5th Global Congress on Sickle Cell Disease is taking place in Abuja, Nigeria, from June 3–6, 2025. Register now to attend! 🗓️Early bird pricing ends on Feb. 28➡️: https://t.co/h4afdswHhY
#SCD #SCDCare #SickleCellAdvocate #SickleCellResearch #SickleCellDisease
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