My Endometriosis story 🧵. A tale of dismissal, disgraceful care and desperation. The journey continues. #endometriosis #EndometriosisActionMonth #healthcareinequalities #genderinequalities

Women and girls are left to suffer in pain because of a lack of awareness from medical professionals, according to a new report from MPs. It found those who experience painful health conditions, like endometriosis and adenomyosis, are being dismissed when they ask for help.

We deserve better! We deserve a cure! 💛 #EndometriosisAwarenessMonth #endometriosis #endo #chronicpain #pelvicpain #chronicillness #invisibleillness #endowarriors #sisterhood

#Endometriosis is a condition that by definition also exists outside of your #uterus. It means, that neither a hysterectomy (removing the uterus), nor endometrial ablation (destroying the lining of the uterus), are correct treatments. #hysterectomy #endo https://t.co/NglZ97XOzF

(Forgotten tweet) was referred to local hospital for right sided groin pain and a raised lymphnode aged 22. Was told by the registrar I was a complete waste of his time and sent away after 3 mins into consultation

17/ When will this treatment, dismissal, stereotyping, assumptions of hysteria and medical gas lighting end? #endometriosis #EndometriosisActionMonth #medicalgaslighting @TheBSGE @rcgp @EndometriosisUK

16/ So I now have no where to turn, #BSGE centre have washed their hands of me, GP has no clue and told me my pain is a mix of physical and psychological issues and thinks pregnancy will cure all (it wont). I'm still in agony, ovary is likely stuck again and I have given up

15/ she palpated my stomach and did an excruciating internal examination resulting in me screaming out in pain and crying. I was asked why I was being emotional. Sent on my way with the contraceptive pill (I didn't want) and codeine (I can't take due to bowel issues)

14/ Asked to attend GP surgery and saw GP with no knowledge of #endometriosis who told me I needed to stop ovulating, to get pregnant, and the reason why I didn't want hormones (the pill) was because psychologically i saw it as another barrier to getting pregnant

13/ Less than 3 months post surgery and peak ovulation = right sided ovary pain, twisting, excruciating pain unable to walk, bend. After 4 days of pain I gave up and called the GP

12/ At 6 week follow up biopsies came back as mostly fibrosis so just like that I was discharged from #BSGE centre with no follow up, told to go on the pill and get referral to pain clinic or back to BSGE centre when I start to struggle again

11/ December 2021 and #endometriosis surgery at #BSGE centre was completed. Right ovary was adhered to pelvis, bowel was adhered to abdomen, ?endometriosis to ureters,,uterosacral ligament, rectal vaginal and pararectal space and a bulky uterus ?#adenomyosis

10/ After nearly 2 years of fighting and constantly calling/writing to #BSGE consultant and finally agreeing to put me on surgery waiting list, surgery finally came round.

9/ After 6 months relief from pain and epsiodes of rectal bleeding before symptoms returned including rectal bleeding, #BSGE consultant very dismissive, adamant not #endometriosis, adamant no bowel involvement and adamant ovaries were free and not adhered. Ultrasounds clear

8/ BSGE consultant initially lovely and more scans, CT etc still all normal. Excision surgery completed in 2019. Rectal vaginal, bladder, ureter, uterosacral ligament, bilateral pelvic side wall #endometriosis and bowel adhesions

7/ Asked GP to refer me to a #BSGE centre of which I was eligible for referral (Prev GP had retired, new GP no knowledge of #endometriosis) she told me I did not have endo as scans were clear, after a discussion and showing her #NICEguidelines she reluctantly agreed

6/ was put on zoladex injections as they said it "would reduce risk of needing ileostomy (stoma bag) did research and learnt this was not true. Was referred for CT and MRI both came back normal

5/ GP disgusted and referred back to gynae for diagnostic lap. Diagnostic lap revealed bowel, bladder, ureter, uterosacral, and bilateral pelvic side wall endometriosis aswell as bowel adhesions. No treatment done as obviously they weren't prepared as they didn't believe me

4/ Local gynae team totally dismissed me, saying ultrasound was clear and it wasn't #endometriosis, it was #ibs. Sent away with mebeveraine for 6 months

3/ Finally went to GP and saw an amazing one who said straight away she thought it was #endometriosis and referred me to local gynae team

2/ Spent the next 7-8 years dealing with incontinence and bladder pain as I didn't want to go back to GP. Put off going to the gp about constant pelvic pain due to fear of being dismissed