Fragile X Canada
@FragileXCanada
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The Fragile X Research Foundation of Canada is dedicated to raising awareness of and funding research for Fragile X Syndrome.
Canada
Joined February 2011
Celebrating the many Women in science across Canada who make an impact on individuals living with Fragile X.#womeninscience #fragilex #fragilexsyndrome #STEM #womeninscienceday .THANK YOU!
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Thinking about the new year? Wanting to get things in place and be prepared for the transition from child to adult services? . Join us Sunday December 12, at 12:00pm EST for a conversation around transitioning to adulthood. Register here:
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This presentation is open to ALL individuals who would like to attend. The session will be delivered in a ‘lay terms’ for all to understand. Helping strengthen the knowledge transfer process between all participants in the care of individuals living with FXS .
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As part of our Fall Fragile X Series we launch our first of 4 sessions. Fragile X Research Across Canada is meant to highlight current research being done in Canada on Fragile X syndrome
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Have you registered for our Meet & Greet the Board Members yet? Emails have been sent for the log in details. Did not receive one but registered? Please check your junk mail.
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We are excited for our new direction forward. Come meet the Board members of our Foundation. Learn about our upcoming Fall Series, share your ideas, and get involved! . #fragilex #fragilexsyndrome #community #advocacy #support #research #rare #raredisease
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- members of racialized groups, the LGBTQ2 community or an official language minority community.- all Canadians.Key questions for discussion. The survey asks questions about:. financial security.employment.disability-inclusive spaces.a modern approach to disability.
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- persons with a disability.- organizations working with persons with a disability.- caregivers or family members of persons with a disability.- persons identifying as First Nations, Inuk (Inuit), Métis or Indigenous. .
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Who is the focus of this consultation.We invite all Canadians to participate in this consultation. We want to hear from:.
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making it easier for persons with disabilities to access federal programs and services.fostering a culture of inclusion.
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The Disability Inclusion Action Plan will focus on:.reducing poverty among Canadians with disabilities.getting more persons with disabilities into good quality jobs helping meet the Accessible Canada Act goal of a barrier-free Canada by 2040.
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The Government of Canada is consulting ALL Canadians on how to improve the lives of Canadians with disabilities. Your feedback will support the development of the Disability Inclusion Action Plan.⬇️⬇️⬇️ Check out the link below.
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RT @FRAXAresearch: The final honoree this year is Dr. Randi Hagerman who is given the FRAXA Dedication Award which recognizes longstanding,….
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#YYC will be shining bright as the #CalgaryTower and #ReconciliationBridge will be illuminated in recognition of #fragilexsyndrome #Family #Health #Education #Treatment #Therapy and #Research.
Celebrating World Fragile X Day: shining a light on #FragileXSyndrome, raising awareness by illuminating prominent buildings and landmarks around the world — like the #CalgaryTower. #WorldFragileXDay #research #treatments #therapies
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The skies will be bright tonight to celebrate @worldfxday Will you be at any of these landmarks across Canada?. We would love for you to tag us in your photos celebrating #FragileX #fragilexsyndrome #fragilexawareness
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Thank you @RBCConvCtreWpg for celebrating @worldfxday.
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We are excited to see the illuminations happening around the world tomorrow, July 22nd, to celebrate @worldfxday the #highlevelbridge in #Edmonton #YEG will shine bright for #FragileX.Thank you to our new Board Members @KarenkelmKelm and @dmitchellYOW for the article.
World Fragile X Day: a day to raise awareness by shining the light on landmarks and building across Canada and the world, like the #HighLevelBridge in #Edmonton. #WorldFragileXDay #FragileX #research #therapies #treatments #families.
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Scientific breakthrough toward treatment of Fragile X syndrome
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