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Fiona Loud ๐Ÿ’™ Profile
Fiona Loud ๐Ÿ’™

@FionaCLoud

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Following
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Policy Director @KidneyCareUK, Co-author Kidney Health, UKKA fellow, Chair @westhertsNHS Organ Donation Ctee; living w Keith's kidney, TSC https://t.co/XgUc49tWru

St Albans, Hertfordshire
Joined June 2009
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@FionaCLoud
Fiona Loud ๐Ÿ’™
5 months
Good to launch our new report today - the views of 1,796 people with kidney disease about the real impact of inadequate psychosocial care - and what theyโ€™d like to see happen now. #UKKW2025 #ukkw25
@kidneycareuk
Kidney Care UK @kidneycareuk.bsky.social
5 months
๐Ÿ“ฃ Our latest report 'Left to get on with it' focuses on the social and emotional needs and experiences of adults living with kidney disease. High quality psychosocial support should be available to EVERYONE with kidney disease. Click here ๐Ÿ‘‰ https://t.co/YttktHXkaM
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@UKKidney
The UK Kidney Association
2 days
Seeking 2 patient representatives! Open to those living with kidney disease or supporting someone who is & keen to help make a difference to how kidney care is delivered. โŒ›Deadline: 5pm TOMORROW โ„น๏ธ: https://t.co/zC2OM2RRZr @kidneycareuk @Kidney_Research @NKF_UK @PKDCharity
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@UKKidney
The UK Kidney Association
3 days
PREM closes in only 5 days! This is your patients' chance to help influence the kidney care they receive. Surveys are open to adults & children receiving treatment for kidney disease. The surveys closes on 10 Nov: https://t.co/RCDT0LNBvm @ThinkKidneys
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@valerie_luyckx
Valerie Luyckx
6 days
To survive a system not specially built for everyone, you may just have to hack itย โ€“ often alone โ€“ own the risks and gain the expertise that work for you ... Years later, I learned this defiance had a name: โ€œself-advocacy.โ€ @Cervantes_Lily1 @MarinaWainstein @FionaCLoud
@valerie_luyckx
Valerie Luyckx
7 days
From Data Point to Talent Pipeline: Capitalizing on the Wisdom of Lived Experience https://t.co/WRiFvTBoFA By #BillWang @ISNkidneycare @EKPFpatients @ERAkidney @AfricanAFRAN @WomenNeph_india @EKHA_EU
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@FionaCLoud
Fiona Loud ๐Ÿ’™
8 days
Living donors are much needed so I hope Jesse's gift might encourage others to give someone else another chance of life. As someone who received a living kidney donation from my husband nearly 19 years ago I can attest to how amazing and wonderful this gift is.
@FionaCLoud
Fiona Loud ๐Ÿ’™
9 days
Very inspiring to see that Hollywood actor Jesse Eisenberg is going to donate one of his #kidneys altruistically
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@FionaCLoud
Fiona Loud ๐Ÿ’™
9 days
Very inspiring to see that Hollywood actor Jesse Eisenberg is going to donate one of his #kidneys altruistically
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today.com
The "Now You See Me: Now You Don't" star shared the news of his upcoming altruistic kidney donation on TODAY.
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@kidneycareuk
Kidney Care UK @kidneycareuk.bsky.social
19 days
๐Ÿ•ฏ๏ธWe'd like to wish a Happy Diwali to all in the kidney community who are celebrating. We wish you a #Diwali that brings happiness, prosperity and joy to you and your family.
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@CystinosisCRN
Cystinosis CRN
22 days
"Cystinosis is so rare that every patient's experience, and therefore every caregiver's experience, is different to some degree...[t]here is no one-size-fits-all answer...โ€ https://t.co/evUwuM8tSz @kidneycareuk @CystinosisUK #cystinosis #RareDisease #CystinosisAware
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kidneycareuk.org
Kidney Care UK is the UK's leading kidney patient support charity. We exist to ensure that no one faces kidney disease alone.
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@kidneycareuk
Kidney Care UK @kidneycareuk.bsky.social
21 days
Have you spotted any of our #BloodyAmazingKidneys adverts on near you? We're delighted to be @JCDecaux_UK's Community Partner for October 2025 to raise awareness around the importance of looking after your kidney health. Read more about our partnership ๐Ÿ‘‰ https://t.co/AG0CVla6dU
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@FionaCLoud
Fiona Loud ๐Ÿ’™
23 days
This has been an #Amazing experience. More people now know about their kidneys than they did before and we are very proud of this campaign #BloodyAmazingKidneys
@kidneycareuk
Kidney Care UK @kidneycareuk.bsky.social
23 days
One year ago today we launched our #BloodyAmazingKidneys campaign. Together we've achieved so much, but this is only the start. Please share your experiences, get everyone talking & encourage people to look after their #BloodyAmazingKidneys https://t.co/LRWJSLeyoO
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@FionaCLoud
Fiona Loud ๐Ÿ’™
27 days
Amazing ๐Ÿ˜ป Woman becomes longest survivor of heart and lung transplant - thanks to her donor
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apple.news
The UKโ€™s longest-surviving heart and lung transplant recipient has described how she was given the โ€œgift of a normal lifeโ€.
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@kidneycareuk
Kidney Care UK @kidneycareuk.bsky.social
1 month
๐Ÿš We're excited to share that our #BloodyAmazingKidneys campaign is the @JCDecaux_UK Community Partner this month. Lookout for the billboards, adverts & bus stops across the UK โ€“ we'll be updating the location list every week! Find out more ๐Ÿ‘‰ https://t.co/QvQEVNuYyR
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@kidneycareuk
Kidney Care UK @kidneycareuk.bsky.social
1 month
๐ŸคBy launching the Kidney Care UK Brexit campaign & with the help from our kidney community, reciprocal healthcare for dialysis patients was secured in 2020. You can read more about this work here ๐Ÿ‘‡ https://t.co/bOHt6sbUs0
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@gurchrandhawa
Gurch Randhawa
1 month
๐Ÿ—ฃ๏ธ The prevention revolution and how to make hope a reality Looking forward to joining the @Demos Panel at this yearโ€™s @UKLabour #LabourPartyConference sharing @uniofbeds research as to prevention can move from rhetoric to delivery Stellar speakers @FionaCLoud @AlisonRailton
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@kidneycareuk
Kidney Care UK @kidneycareuk.bsky.social
2 months
๐Ÿซ The transplant waiting list is growing each year, with more people needing life-saving organs. This #OrganDonationWeek, we're encouraging you to think about what you'd like to happen with your organs and register this decision. Find out more ๐Ÿ‘‰ https://t.co/eafoxjHnsK
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@ShaunLintern
Shaun Lintern
2 months
โ€Iโ€™ve just got to be really clear about this: there is no evidence to link the use of paracetamol by pregnant women to autism in their children. None." - UK health secretary @wesstreeting
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@scotgovhealth
Scot Gov Health
2 months
This Organ and Tissue Donation Week, people across Scotland are being encouraged to register their donation decision. Sharing your decision will help family and friends ensure it is honoured - donโ€™t leave them in doubt. #Organdonationweek
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@NHSOrganDonor
NHS Organ Donation๐Ÿ’—๐Ÿซ€๐Ÿซ
2 months
#OrganDonationWeek is a week to raise awareness about the importance of organ donation and highlight the need for more donors. Confirming your decision on the NHS Organ Donor Register takes 2 minutes, and you could save up to 9 lives. #OrganDonation #ODW25
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@MahmudNawaz
Mahmud Nawaz
2 months
Itโ€™s here! Itโ€™s here! As we start #OrganDonationWeek today, please: โœ… make an informed #OrganDonation decision โœ… tell your family, theyโ€™ll be consulted โœ… record it on the Register at https://t.co/kU1KaHgXci or via the #NHSApp (account icon) 2 mins chat can save lives!
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@kidneycareuk
Kidney Care UK @kidneycareuk.bsky.social
2 months
๐Ÿซ€ It's Organ Donation Week, a chance to celebrate the lives changed by donation & to register your own organ donation decision ๐Ÿ‘‰ https://t.co/7RvSUnvPTt Want to get involved? Share this post or download our facts to post on your own profile โžก๏ธ https://t.co/eafoxjHnsK
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