Fiona Loud ๐
@FionaCLoud
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Policy Director @KidneyCareUK, Co-author Kidney Health, UKKA fellow, Chair @westhertsNHS Organ Donation Ctee; living w Keith's kidney, TSC https://t.co/XgUc49tWru
St Albans, Hertfordshire
Joined June 2009
Good to launch our new report today - the views of 1,796 people with kidney disease about the real impact of inadequate psychosocial care - and what theyโd like to see happen now. #UKKW2025 #ukkw25
๐ฃ Our latest report 'Left to get on with it' focuses on the social and emotional needs and experiences of adults living with kidney disease. High quality psychosocial support should be available to EVERYONE with kidney disease. Click here ๐ https://t.co/YttktHXkaM
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Seeking 2 patient representatives! Open to those living with kidney disease or supporting someone who is & keen to help make a difference to how kidney care is delivered. โDeadline: 5pm TOMORROW โน๏ธ: https://t.co/zC2OM2RRZr
@kidneycareuk @Kidney_Research @NKF_UK @PKDCharity
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PREM closes in only 5 days! This is your patients' chance to help influence the kidney care they receive. Surveys are open to adults & children receiving treatment for kidney disease. The surveys closes on 10 Nov: https://t.co/RCDT0LNBvm
@ThinkKidneys
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To survive a system not specially built for everyone, you may just have to hack itย โ often alone โ own the risks and gain the expertise that work for you ... Years later, I learned this defiance had a name: โself-advocacy.โ @Cervantes_Lily1 @MarinaWainstein @FionaCLoud
From Data Point to Talent Pipeline: Capitalizing on the Wisdom of Lived Experience https://t.co/WRiFvTBoFA By #BillWang
@ISNkidneycare @EKPFpatients @ERAkidney @AfricanAFRAN @WomenNeph_india @EKHA_EU
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Living donors are much needed so I hope Jesse's gift might encourage others to give someone else another chance of life. As someone who received a living kidney donation from my husband nearly 19 years ago I can attest to how amazing and wonderful this gift is.
Very inspiring to see that Hollywood actor Jesse Eisenberg is going to donate one of his #kidneys altruistically
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Very inspiring to see that Hollywood actor Jesse Eisenberg is going to donate one of his #kidneys altruistically
today.com
The "Now You See Me: Now You Don't" star shared the news of his upcoming altruistic kidney donation on TODAY.
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๐ฏ๏ธWe'd like to wish a Happy Diwali to all in the kidney community who are celebrating. We wish you a #Diwali that brings happiness, prosperity and joy to you and your family.
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"Cystinosis is so rare that every patient's experience, and therefore every caregiver's experience, is different to some degree...[t]here is no one-size-fits-all answer...โ https://t.co/evUwuM8tSz
@kidneycareuk @CystinosisUK #cystinosis #RareDisease #CystinosisAware
kidneycareuk.org
Kidney Care UK is the UK's leading kidney patient support charity. We exist to ensure that no one faces kidney disease alone.
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Have you spotted any of our #BloodyAmazingKidneys adverts on near you? We're delighted to be @JCDecaux_UK's Community Partner for October 2025 to raise awareness around the importance of looking after your kidney health. Read more about our partnership ๐ https://t.co/AG0CVla6dU
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This has been an #Amazing experience. More people now know about their kidneys than they did before and we are very proud of this campaign #BloodyAmazingKidneys
One year ago today we launched our #BloodyAmazingKidneys campaign. Together we've achieved so much, but this is only the start. Please share your experiences, get everyone talking & encourage people to look after their #BloodyAmazingKidneys
https://t.co/LRWJSLeyoO
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Amazing ๐ป Woman becomes longest survivor of heart and lung transplant - thanks to her donor
apple.news
The UKโs longest-surviving heart and lung transplant recipient has described how she was given the โgift of a normal lifeโ.
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๐ We're excited to share that our #BloodyAmazingKidneys campaign is the @JCDecaux_UK Community Partner this month. Lookout for the billboards, adverts & bus stops across the UK โ we'll be updating the location list every week! Find out more ๐ https://t.co/QvQEVNuYyR
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๐คBy launching the Kidney Care UK Brexit campaign & with the help from our kidney community, reciprocal healthcare for dialysis patients was secured in 2020. You can read more about this work here ๐ https://t.co/bOHt6sbUs0
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๐ฃ๏ธ The prevention revolution and how to make hope a reality Looking forward to joining the @Demos Panel at this yearโs @UKLabour
#LabourPartyConference sharing @uniofbeds research as to prevention can move from rhetoric to delivery Stellar speakers @FionaCLoud @AlisonRailton
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Thank you #StAlbansCathedral @WestHertsNHS for turning the Cathedral pink to mark #organdonationweek
stalbanscathedral.org
Highlighting the positive gift of life that is organ donation.
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๐ซ The transplant waiting list is growing each year, with more people needing life-saving organs. This #OrganDonationWeek, we're encouraging you to think about what you'd like to happen with your organs and register this decision. Find out more ๐ https://t.co/eafoxjHnsK
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โIโve just got to be really clear about this: there is no evidence to link the use of paracetamol by pregnant women to autism in their children. None." - UK health secretary @wesstreeting
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This Organ and Tissue Donation Week, people across Scotland are being encouraged to register their donation decision. Sharing your decision will help family and friends ensure it is honoured - donโt leave them in doubt. #Organdonationweek
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#OrganDonationWeek is a week to raise awareness about the importance of organ donation and highlight the need for more donors. Confirming your decision on the NHS Organ Donor Register takes 2 minutes, and you could save up to 9 lives. #OrganDonation #ODW25
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Itโs here! Itโs here! As we start #OrganDonationWeek today, please: โ
make an informed #OrganDonation decision โ
tell your family, theyโll be consulted โ
record it on the Register at https://t.co/kU1KaHgXci or via the #NHSApp (account icon) 2 mins chat can save lives!
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๐ซ It's Organ Donation Week, a chance to celebrate the lives changed by donation & to register your own organ donation decision ๐ https://t.co/7RvSUnvPTt Want to get involved? Share this post or download our facts to post on your own profile โก๏ธ https://t.co/eafoxjHnsK
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