Find a Cure For VWM
@FindaCureforVWM
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It is all about raising awareness for leukodystrophy called vanishing white matter disease (VWM) ~ while searching to find a cure...!
Joined October 2013
If you’re passionate about making a difference, join us by reposting or tagging an influencer who would love to support this effort! Learn more: https://t.co/wf6SXbwPcj
#HalfAMillionToBeatVWM #VWMResearch #InfluencersForGood
#findacureforvwm
halfamilliontobeatvwm.org
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⏳ Just days left in 2024! Let’s end the year by making an impact. Support the “Half a Million to Beat VWM”’Every donation brings us closer to life-changing breakthroughs. Join us now: https://t.co/uY4oPqeVqx 💙 #BeatVWM #EndOfYearGiving #MakeADifference #findacureforvwm
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Shoutout to Run for Nash for supporting our fight against Vanishing White Matter (VWM) Disease! Sending a VWM t-shirt to Dr. Bonkowsky as we work toward raising $500K for life-changing research. Every donation matters. 💙 Donate: https://t.co/IBVYlOowHl
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Running with pediatric neurologists in San Diego to raise $500K to fight Vanishing White Matter (VWM) Disease. Every dollar counts. Join us : https://t.co/IBVYlOowHl
#FightVWM #RareDiseaseAwareness
#findacureforvwm #vwmresearch #halfamilliontobeatvwm
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Dr. Bonkowsky is running 95 miles (500,000 ft of elevation!) to support VWM research. Every mile counts in the race for a cure. 🏃♂️💙 Join us & make a difference: https://t.co/IBVYlOowHl
#EveryMileMatters #VWM
#findacureforvwm
#HalfaMillionforVWMResearch
#VWMFamiliesFoundation
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PhD on the effect of nutrition on children with ADHD https://t.co/lLmfkFHIRw
@werkenbijwur
academictransfer.com
Are you a curious and enthusiastic person? Do you enjoy working with children in a clinical environment? Are you fluent in Dutch? Will you rise to the challenge of working in an interdisciplinary...
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Inhibiting Acute Episodic Neurological Decline in Vanishing White Matter https://t.co/Ay2xiQbaZa
twitter.com
Wij zijn Amsterdam UMC. We reiken de hand aan Amsterdam & omstreken en aan iedereen die met ons een gezond leven wil bevorderen. #amsterdamumc
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Dr. Bonkowsky has climbed 438,940 feet of the 500,000-foot goal for VWM research! Help us reach the top—every donation gets us closer to a cure. 💙 ➡️ Donate: https://t.co/vm7Yd99c2D
#HalfAMillionToBeatVWM #VWMResearch #DonateForACure
#findacureforvwm
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“If you want to run far, run together. We are all in this together- let’s help get ourselves to the finish line! You can help! …share your story with your friends/supporters/influencers… Every dollar matters!
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#halfamilliontobeatvwm
#halfamillionforvwmresearch
#findacureforvwm Every step matters…every foot matters…every dollar brings us closer! Track https://t.co/uY4oPqenAZ
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Dr. Josh Bonkowsky, a VWM researcher and clinician, is trying to reach 500,000 feet of running elevation gain by midnight Dec 31,2024 #findacureforvwm
#halfamilliontobeatvwm
#VWMResearch Learn more: https://t.co/uY4oPqenAZ
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FDA's new Operation Warp Speed initiative for rare diseases has accepted San Francisco-based biotech @calico's investigational drug ABBV-CLS-7262 for neuro in partnership w/ AbbVie as 1 of <10 in START pilot. Calico/AbbVie's eIF2B activator fosigotifator https://t.co/6zluHIPzYi
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Shout out to our rockstar doctors, researchers who continue to research and give families HOPE! Thank you! - ULF Board of Directors Treasurer, Donna Skwirut #findacureforvwm VWM Families Foundation
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Last week we did a story on a missing laptop from the SLC Airport. It had important medical information and the woman desperately needed it back. Yesterday, I got a call from the person who got it by mistake. What a happy ending! @KSL5TV at 5 and 6. https://t.co/Vkqo2xaj8L
ksltv.com
As Margaret McIntyre and her daughter were going home this past Wednesday, McIntyre lost her laptop while going through and didn't even know it.
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