Ffion's Gift
@FfionsGift
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We are a registered charity raising awareness of Edwards Syndrome. We also raise money to help mum's who have had a previous Edwards tragedy.
Newport, South Wales
Joined January 2017
Today marks the beginning of Trisomy Awareness month. Edwards Syndrome is also known as Trisomy 18, the second most common chromosome disorder after Down Syndrome, Trisomy 21
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Hi everyone. I'm sure you all know it's Babyloss Awareness week. Light a candle at 7pm on Thursday 15th October to honour all the little ones taken too soon #porthour
#babylossawareness
#saytheirname
#BLAW2020
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Fabulous news that the Transporter Bridge is lighting up pink and blue this year. We also have Michael G Ryan, Friars Walk, SSCL and the ONS showing their support #porthour #BLAW2020 #babylossawareness
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Have any of our #porthour friends or do you know of anyone that has lost a child regardless of age or gestation that would like their little one's name added to our remembrance tree ? If so please get in touch #babylossawareness
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Hi #porthour, hope you are all well. Its been a while. Just wanted you all to know that regardless of lockdown we are still supporting #babylossawareness next month. We have Micheal Ryan's window again to create a pink and blue display.
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My week on Twitter 🎉: 3 Mentions, 319 Mention Reach, 1 New Follower. See yours with https://t.co/cIKO9TNBGn
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My week on Twitter 🎉: 4 Mentions, 14 Likes, 9 Retweets, 10.1K Retweet Reach, 1 New Follower. See yours with https://t.co/cIKO9TNBGn
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My week on Twitter 🎉: 3 Mentions, 13 Likes, 9 Retweets, 10.1K Retweet Reach, 3 Replies. See yours with https://t.co/cIKO9TNBGn
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My week on Twitter 🎉: 2 Mentions, 2.01K Mention Reach, 4 New Followers. See yours with https://t.co/cIKO9TNBGn
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Good evening to all of our #porthour friends, we hope you are all. We have had to cancel all of our events but would still like to help. Do any of you know of a child (in Wales) with full, partial or mosaic Trisomy 18 that needs help with any thing? Please can you share for us x
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My week on Twitter 🎉: 2 Mentions, 2K Mention Reach, 1 Like, 2 New Followers. See yours with https://t.co/cIKO9TNBGn
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My week on Twitter 🎉: 5 Mentions, 50 Likes, 12 Retweets, 17.8K Retweet Reach, 4 Replies. See yours with https://t.co/cIKO9TNBGn
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My week on Twitter 🎉: 5 Mentions, 44 Likes, 12 Retweets, 17.8K Retweet Reach, 4 Replies. See yours with https://t.co/cIKO9TNBGn
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