Foundation for Prader Willi Research UK
@FPWRUK
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The mission of FPWR UK is to eliminate the challenges of Prader-Willi through the advancement of research #PWS #praderwilli
UK
Joined July 2010
Thank you so much 🧡
Happy #GoOrange Day 🟠! @SmithLabUEA are proud to be funded in part by @FPWRUK, the foundation for Prader-Willi Research! Today, we showed Piwi the Giraffe some of our awesome lab skills and explained the importance of funding research 👩🔬🦒🔬#pws #research
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A number of weight loss drugs are being investigated for PWS. Read more at https://t.co/FaPZ7egFd3
#fpwruk #pws #praderwillisyndrome #research
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Don’t miss out sign up today
🔹 Join Our Next Virtual Clinical Trials Webinar! 🔹 Join us at 7:30 PM on February 25th for our third virtual clinical trials webinar—an informative session designed to keep you up to date on the latest developments. https://t.co/lMqhNbyUVh
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Bella has taken her mission for PWS awareness Royally high with a recent letter to King Charles. Bella, who loves the Royal Family, wrote to the Palace late last year and was thrilled to receive a reply. Read more about Bella’s Royal reply at https://t.co/VdW8AyWyso
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It’s just over 2 weeks until the next PWS Stronger Together webinar - have you signed up yet? The third virtual clinical trials webinar takes place on 25th February at 7:30 and you can register at https://t.co/twqxCraGQf
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It’s #GiveBack weekend at MyGivingCircle. They are donating 50p per vote for the first 5000 votes this weekend. Please head to https://t.co/hOLOJVOphT to cast you vote. But please hurry the offer only applies to the first 5000 votes of the weekend. #fpwruk #pws #mygivingcircle
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This week is Feeding Tube Awareness Week. Many babies with PWS require feeding support when they are born due to a weak and uncoordinated suck making breast and bottle feeding too difficult. #fpwruk #pws #praderwillisyndrome #feedingtube #feedingtubeawarenessweek
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Sign up for the next @pws_together webinar at
pwsstrongertogether.co.uk
"PWS Stronger Together" is a collaboration between The Foundation for Prader-Willi Research UK and The Prader-Willi Association UK. While both organisations maintain independent operations, they join...
Register for the next webinar at 7.30 pm on 25/02/25. We have DCCR updates from Soleno and what you can do to help, Consyance will discuss their phase 2 trial CSTI500 and Dr Evelien Gevers will explain what happens at a trial screening visit. Sign up at: https://t.co/lMqhNbyUVh
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Today is National Puzzles Day! Whilst technically a day in the USA rather than the UK, we felt a good opportunity to look into why some people with PWS excel at jigsaw puzzles. Check it out at https://t.co/GM7kz0Q0QS
#fpwruk #pws #NationalPuzzleDay
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Out and about this winter? Don’t forget your PeeWee. Take a picture of your peewee and post it with the hashtag #theadventuresofpeewee. Don’t have a PeeWee of your own? No worries, he’s available to to purchase in our online shop at https://t.co/nOH7qTK1Mu
#fpwruk #pws
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Growth Hormone is now a well known treatment for children with PWS. But what are the benefits for adults? A study is looking into whether Growth Hormone can slow down premature ageing in adults in PWS which would be groundbreaking. https://t.co/6MEriUyD9c
#fpwruk #pws
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AI seems to be emerging everywhere. How can it help PWS Research? https://t.co/jVmuznqFQx
#fpwruk #pws #praderwillisyndrome
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Do you support us on @giveasyoulive ? It's completely free, and if you sign up before 28th Feb we'll receive a bonus free donation! Sign up today at https://t.co/TxwjL63CQT and please tell your friends and family to sign up too 🛒
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The majority of 15q cases happen spontaneously & your chances of having another child with that condition are as low as the rest of the population. However, some cases can be passed through families. It is advisable to speak about your individual case with a Geneticist. #15q
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Issues with behaviour are common across 15q conditions but with some variations between the different conditions. #15q
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15q conditions also are classed as Rare Diseases, which according to the UK Government means a Disease that affects less than 1 in 2000 people. #15q #15qawareness #praderwillisyndrome #angelmansyndrome
#dup15q
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15q conditions are caused by genetic changes to the q11-13 region of chromosome 15, but happen in different ways. #15q #15qawareness #praderwillisyndrome #angelmansyndrome #dup15q
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