Estella Star
@EstellaStar1
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If you have ever loved anybody please follow the story of my daughter Estella. Help smash Spinal Muscular Atrophy . http://t.co/nIgQvqVBvG
By a tree By A fountain
Joined November 2011
It is wonderful to see so many SMA. drug trials ongoing. I guess there's a part of me that will always wonder what may have been.
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Let's raise awareness and #CureSMA! Spinal Muscular Atrophy is the #1 genetic killer of babies under… http://t.co/dFiZGvE1Xl
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#SMAAwareness - Learn more about Spinal Muscular Atrophy, along with the signs and symptoms at http://t.co/1Jc2mg2vcq
actsma.co.uk
ACT for SMA, The Ally Cadence Trust for Spinal Muscular Atrophy, UK Charity Giving Support to families affected by SMA Type 1
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@EstellaStar1 lots of love to you today. We will always remember you little tink x x x
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Happy Birthday my little darling. I miss you. I love you. I will be coming to see you with a terrific present. Nanite Tinker x Muppet Daddy
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Bring it on Elves and reindeer ...Father Christmas I love you. Three Wise Dudes I love you too..... http://t.co/dzhv6ayfvm
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Wishing you all a wonderful Christmas and a perfect 2015. The fact that we are looking forward to Xmas owes a lot to you people 2 years ago
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Three years ago today since we kissed Estella goodbye. Thankyou to all those who remembered. People are so very kind.
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Hey folks we are doing good. Here's @Christinastar13 painting a lovely future. Hope you are all well. http://t.co/a1sH58FoUp
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“@EFPIA: Watch this informative video about what @Roche does to make a difference for SMA patients. http://t.co/yDftB4pF2l”
@EstellaStar1
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@Jac7724 @Vicky_BriDOI @SkyeBlue72 @EstellaStar1 @marksporter @glowdell @janparisio thanks have a good one x 😊
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