EU-PFF
@EU_IPFF
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The European Pulmonary Fibrosis Federation (EU-PFF) is a European Federation of national #IPF & #PF/#Pulmonaryfibrosis patient associations.
Brussels
Joined June 2016
#Announcement We are wrapping up our presence in X. A huge thank you to everyone who has been part of this community! Stay connected and get future updates through our website, and other channels.
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#Announcement We are wrapping up our presence in X. A huge thank you to everyone who has been part of this community! Stay connected and get future updates through our website, and other channels.
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💬 Living with a lung condition can have a significant impact on mental health. On 25 February at 13:00 CET, join a webinar, organised by @europeanlung, exploring the important link between lung conditions and mental health!. 🔗 #MentalHealthAwarenes
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A huge thank you to Boehringer Ingelheim! Your invaluable support has been crucial in making the EU-PFF Patient Advocacy Forum possible. If you're interested in supporting the 2025 Patient Advocacy Forum or exploring potential collaboration opportunities, we’d love to chat!
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🫁 Healthy lungs are essential for a healthy life! 🫁. Earlier this week, Healthy Lungs for Life brought lung health checks to the @EuroParl_EN, the event highlighted policy actions to prevent lung disease & promote early diagnosis. Learn more 👇
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🚨 Save the Date! 🚨 The EU-PFF Patient Advocacy Forum is in Frankfurt, April 24-27, 2025! 🙌 This members-only event will bring together patient advocates & healthcare leaders to shape the future of patient care. We’re excited to collaborate with partners to improve outcomes!
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💙 Honoring care in Pulmonary Fibrosis during #QualityOfLifeMonth: Managing comorbidities like heart disease & sleep disorders can improve life for patients & caregivers. Key areas:. 🌬️ Dyspnoea 🤧 Cough 💪 Fatigue 💙 Anxiety & Depression. Let's raise awareness & support!
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🌟 Exciting news, EU-PFF community! 🌟 The recording of our 2nd webinar from the 2024-2025 series (Jan 15) is now available. 🎥 Missed it? Catch up anytime, anywhere! 🎯 Watch here:
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💙 Understanding the Impact of Pulmonary Fibrosis on Quality of Life 💙 We honor the resilience of those with pulmonary fibrosis. It affects not only physical health but emotional well-being and social connections. Let's raise awareness and offer support! 💙🌍
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🌱 January is International Quality of Life Month! Let's raise awareness about well-being, especially for those with pulmonary fibrosis. Together, through care, resources & research, we can help improve lives. Join us to inspire support & resilience! 💙 #QualityOfLife
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2024 was a year of progress, fueled by the dedication and collaboration of.our member organizations, scientific advisory board, patient community, healthcare.professionals, and industry partners. As we prepare to welcome 2025, we thank you for being part of this journey!
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🌍💙 Sofia hosted the 2nd Annual CILDAPANET Meeting, uniting patient orgs, doctors, & researchers to tackle interstitial lung diseases. Key moments 🔎 expert talks, innovative ILD care approaches, & plans to expand collaboration in Central & Eastern Europe. 💡🤝 #CILDAPANET #ILD.
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We’re excited to share the amazing awareness video created by the Hellenic Pulmonary Fibrosis Association, Lungs of Life! You can see more of their work here!:
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📅Tomorrow Dec 14,🌍Sofia hosts the 2nd Annual Meeting of CILDAPANET, uniting patient organisations, doctors, researchers & allies from across Europe to tackle ILDs & NCDs🫁Let's improve care, awareness & policies together! 💙 #PulmonaryFibrosis #LungHealth #StrongerTogether
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🌍Universal Health Coverage Day. Today, we reaffirm our commitment to quality, affordable healthcare for all—especially those with complex lung conditions like pulmonary fibrosis. UHC can bridge gaps, providing essential diagnoses, treatments, and support without financial strain
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Today on #HumanRightsDay, we stand for the right to health for all. Quality care, early diagnosis, and treatments must be accessible to everyone, yet rare disease patients still face barriers. Together, we can ensure no one is left behind!
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Starting December 10, at 18.00 CET, the EU-PFF Webinars are back! Click here: to register for the first webinar, on Latest research on pulmonary fibrosis - highlights from ICLAF 2024! 🔎
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