Donate4Dáithí
@Donate4Daithi
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⭐️ DÁITHÍ’S LAW • 🗝️ Freeman of Belfast • 7️⃣ Years Old •📍Belfast •🫀HLHS •📋Heart Transplant Waiting List •⏰ 6+ Years #OrganDonation #JoinUs
Joined July 2018
🙌‼️HANDS IN THE AIR IF YOU’VE GOT BIG NEWS‼️🙌. Dáithí has brought a little magic of hope home from Paris; with the news we’ve all been waiting for: . Dáithí is BACK and ACTIVE on the transplant waiting list! . #Hope #OrganDonation
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SOME THINGS ARE BIGGER THAN FOOTBALL… . Thank you to @RangersFC for helping us spread awareness of #OrganDonation. @CelticFC fan Dáithí has been on the transplant waiting list for over 3.5 years and we want to make as many people as possible #aware! . 💗💙❤️💚🤍💗
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We have a date for Dáithí’s surgery. Dáithí will travel to Newcastle on Wednesday and undergo a cardiac catheter on Thursday, which will hopefully get him back active on the heart transplant waiting list. All positive thoughts and prayers welcome 🙏 💪
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No matter what happens over the next few hours, this will be the best photo of the whole trip. We went back to where it all began in Evelina yesterday and Dáithí got to meet the people who saved his life time, and time again. To Dr Jon Lillie and the Purple Team, we love you 💗
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Already sitting up and throwing jabs…. Dáithí is out of recovery and is doing well so far. We don’t have any more information than that at this time, but Dáithí being in a stable condition is all that matters right now. #Fighter
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What a way to start the week… . We were told we wouldn’t, but WE DID IT!!!!!. Next stop… London. #DáithísLaw
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Our brave boy 👍 . Thanks for all the well wishes, they mean a lot. Dáithí should be back with us in a few hours.
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The journey just got a little bit more exciting…. Dáithí finally meeting his wee brothers Declan Seosamh (4.6 lbs) and Pádraig Mícheál Mac Gabhann (5.15 lbs) born on Thursday at 11.27pm and 11:43pm. Mummy doing well and is an absolute hero! . 💗
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Nothing like a pint of Butterbeer to celebrate your law being passed in the House of Commons 🍻 . #DáithísLaw #OrganDonation . #WBTourLondon
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‼️STATEMENT FROM DÁITHÍ‼️. “If we don’t get Dáithí’s Law, I’m gonna crack up!”. #Time4Action #DáithísLaw . @chhcalling
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The Freeman is back in his own city! . Dáithí came home to Belfast last night to continue his recovery in Clark Clinic. It’s been a long time since we have been here, but we know he is in the very best of hands. 💗 1/2
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4 YEARS ON THE WAITING LIST TODAY . What a journey it has been so far with so many achievements. What can you do to help? . You can share this post and tell the word proudly that #YesIDonate 💗. #OrganDonation #Donate4Dáithí
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Best fans in the world…. Join the organ donor register today! . 💗💚🤍💗. @NCCeltic @CelticFC . #YesIDonate #IsDeontóirMé #OrganDonation
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This boy got his home oxygen today & we couldn’t be prouder of him! . We have been speaking publicly about Dáithí needing oxygen at home now, while calling on the Sec of State to introduce #DáithísLaw & thought we’d show you all how positive he is being. #OrganDonationSavesLives
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✅ Takes his own meds 💊.✅ Pushes himself around in his wheelchair 🦽 .✅ Helps with his own oxygen 🫁.✅ Has his very own law 📜. And …. ✅ Is a full-time legend 💪 . #OrganDonation #WaitingList #NewHeart. #DáithísLaw
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WE HAVE A DATE!!!!! . Dáithí’s Law will officially go live on 1 June 2023. The very same day when Dáithí will be 5 years on the waiting list for the gift of a new heart! . #DáithísLaw #OrganDonation #Spring2023. 📸 @OrganDonationNI
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On this journey, we have the privilege of meeting the most courageous people and their families. Sending love and prayers to the family of Caolan Finnegan 🧡💔 . #CareForCaolan
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☄️ HOT WHEELS ☄️. What a week it’s been for this boy! . A new law and now a brand new set of wheels. Nothing stopping our Dáithí! . #DáithísLaw #OrganDonation
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This boy should have been landing in Paris right now for the trip of his dreams at Disney, but health comes first. The wee man is still as positive as ever though 👍 . He’ll get there! . 💗
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Unfortunately, Dáithí can’t make it to the celebrations in the Athletic Grounds. All the excitement and celebrating took it out of him, and he had a trip to the hospital instead. The big man is keeping well though 💪. Thank you to the staff at the Royal for looking after him ❤️
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A day we once feared we'd never witness, to now celebrating Dáithí beginning his fifth year in his uniform. Seeing Dáithí grow,learn, & thrive has been a beautiful gift. Here's to the power of #hope, proving that even the tiniest glimmer can flourish into a bright reality. 💗
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HAPPY BIRTHDAY. Most days here are about #OrganDonation and #SavingLives… BUT this special day is all about the miracle that is Dáithí. Join us in wishing Dáithí a very special 7th birthday! . 💗🎁🎉🎂🎈🎊🥳💗
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Captain Dáithí has landed safely in Newcastle ✈️ . Always grateful to @WoodgateAir and their wonderful medical and air staff 💗
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In the darkest of days, there is always that wee bit of light. We never thought we would have seen this day of Dáithí starting Rang 1 back in 2016 but there was that glimmer of hope. 1/2
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We are very grateful to all the support over the past month and a bit in the fight to get Dáithí’s Law over the line. Thank you doesn’t seem enough but we are extremely grateful. WE DID IT! . #DáithísLaw #OrganDonation
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This photo sums up our day. As far as official statements go: . WE WILL KEEP FIGHTING! . #DáithísLaw . #Time4Action #OrganDonationSavesLives . 📸 @MalMccann . @chhcalling
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Dáithí: “Mr Prime Minister, do you know we beat @EnglandRugby and won the @SixNationsRugby.”. @RishiSunak: 👇👇👇👇👇. @IrishRugby . #OrganDonation #DáithísLaw #GrandSlam
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This wee man has recently started new medication meaning a tough few weeks with plenty of injections and bloods. Still smiling with a new friend (🪳) that he met at the hospital, and encouraging the world to talk about #OrganDonation. #Fighter
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Next week, we take our fight to Westminster. It’s quiet out there right now, too quiet for our liking! . We have written to SoS @chhcalling to meet with us early next week in London. We deserve answers! . The fight continues… . #DáithísLaw #Time4Action
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Freeman of Belfast in the house! . Ratified at Belfast City Council this evening. @BelfastGiants . #OrganDonation #DáithísLaw . #FreedomOfTheCity . #WeAreGiants #GiantsAwardsNight
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💥 WHAT A REACTION 💥 . Constant bloods and injections for what seems like forever; watch Dáithí’s excited reaction to: . 💉 NO INJECTION TONIGHT .🩸 NO BLOODS TOMORROW .🍰 MOUTHFUL OF CAKE . A wee break for a few days. It’s the little things that matter 💗
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Travelling in style today with @WoodgateAir… . Dáithí has a cardiac procedure tomorrow in Newcastle. We are quite nervous, but it’s for the best! . Today also marks a year since the final stage of #DáithísLaw passed and we still find ourselves calling for #Time4Action.
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A special place in his special heart for his new wee bro. Cairbre Frances Antóin Mac Gabhann
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And just like that, he’s a big 8!!!! . Happy birthday to our heart hero 💗 . #HappyBirthday
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Thank you to every person that has sent their best wishes to Dáithí today. Each and every message is very much appreciated and means a lot to know that you all hold Dáithí so dearly. He’s cuddled up now watching a movie and hoping to fly home to Belfast tomorrow morning.
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Prime Minister @RishiSunak has just presented our Dáithí with a Points of Light award for his campaign for Dáithí’s Law. #Proud . #OrganDonation #DáithísLaw
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All the way from Norway to check on his wee mate…. #Mates4Life . @JJPiccinich | @StjernenElite | @BelfastGiants
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Representing #DáithísLaw today at the Garden Party at Buckingham Palace. Appreciate the invitation, @chhcalling! . #OrganDonation #DáithísLaw
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This day 5 years ago we found out the dreadful news that Dáithí’s only chance was the gift of a heart transplant. Tomorrow, we meet the Secretary of State to discuss #DáithísLaw. It’s #Time4Action, @chhcalling!
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Well didn’t this just bring a massive smile to Dáithí’s face today when he escaped the ward for a bit of air. #DáithísLaw . #YouCouldBeALifesaver
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What a thoughtful gift came through the door today, @Simon4NDorset. Dáithí loved Simon’s @Superdry watch when we met last week before our big day in the @HouseofCommons, and he sent Dáithí his very own. We really appreciate it and Dáithí loves it!. #DáithísLaw #OrganDonation
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These photos taken hours apart last night are a reminder of how fragile Dáithí’s heart condition is. Dáithí is feeling better back at the hotel & we would just like to say how grateful we are to the wonderful paramedics & the Glasgow hospital team. #HeartWarrior #HLHS #BraveBoy
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‼️BREAKING‼️. Deputy Speaker @nigelmp announces to the @HouseofCommons that Dáithí’s Law has received Royal Assent! Royal Assent now needed in the @UKHouseofLords. #DáithísLaw #OrganDonation @chhcalling @NIOgov
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2 years today waiting on the gift of a new heart. and still fighting! #YesIDonate #IsDeontóirMé #StillFighting @NHSOrganDonor
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🚆 @Translink_NI have called in some help on a busy day today from our Dáithí. Delighted to get you safely to Croker, @Armagh_GAA fans 🧡🤍💗
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Dáithí’s Law goes live on the 1st of June. Even writing those words fills us with pride!!!!!. #OrganDonation #DáithísLaw . #YouCouldBeALifesaver
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3yrs ago Dáithí had 2 open heart surgeries in 10 days,struggling on ECMO & very little hope. “Imagine D in his school uniform.”-a long shot then,but was talked about often. This is for all those out there in a dark place.If there is a glimmer of light and hope-cling on to it!
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“I’m bored of having a half of heart, Daddy. I want a new heart now!” . #OrganDonation #WaitingList . #DáithísLaw
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The champ is back in hospital today with not feeling the best but getting the support he needs from a great medical team… and he even got his boxing bandages after his needle 💗. #HeartWarrior #HLHS #BraveBoy #OrganDonation #HeartTransplant #WaitingList. #OrganDonationSavesLives
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Dáithí wasn’t able to come tonight to the All-Stars game because he’s not well… but his big mate JJ Piccinich made sure their tradition continued. #WeAreGiants #Mates @BelfastGiants
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It’s been a mad 24 hours, therefore we welcome you to join us in laughter at this. Dáithí’s little brother Cairbre had a home haircut this week and Dáithí decided to join him and give himself one. 🙈 💇♂️😂
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Who is excited for the return of #DerryGirls? . We can’t thank the cast & crew of this amazing show for using their personal platform to raise awareness of #OrganDonation. Never thought we would see the day when Dáithí became a Derry Girl, but what a day it was!. #YesIDonate
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🌟 "Down, but never out" 🌟. We have some news to share with you all. Recently, we received devastating information that Dáithí has been temporarily suspended from the transplant list due to a few unresolved issues. 1/7
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“Your boy wants to live.”. These were the words of Dáithí’s surgeon, Professor Anderson, this day 7 years ago in Evelina London. At 10 days old Dáithí had been fighting hard for his life and been on lifesaving ECMO for 6 long days, after major open-heart surgery. 1/4
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This is Dáithí…. He is 7 & has been waiting on the gift of a heart transplant for over 5 years. Dáithí was born with Hypoplastic Left Heart Syndrome & needs a heart transplant. Have you every considered joining the @NHSOrganDonor Register?. Did you know it only takes 2 minutes?
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DÁITHÍ WON!!!!!. Special Recognition at the #SpiritOfNI Awards. We couldn’t be prouder of our boy for everything he has achieved. A special night!. This award is dedicated to Nanny Frances whose first anniversary occurs today. #OrganDonationWeek #DáithísLaw. 📸 @TheSundayLife
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“It always seems impossible until it's done.”. Dáithí’s Law is LIVE! . #OrganDonation . #YouCouldBeALifesaver #DáithísLaw . 📸 @MalMccann
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Not many 6 year olds can say that they have challenged the @CommonsSpeaker to a game of ‘Rock, Paper, Scissors’ and won… . #DáithísLaw #OrganDonation . 📸 Jessica Taylor | @HouseofCommons
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When you get the day off from bloods and injections, and Ballycastle calls… . 👍 👍
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The hardest man in Ireland. and Kieran McGeeney 👀 💪🏻 💗🧡🤍. #YesIDonate #IsDeontóirMé @Armagh_GAA @starryboy14 @AidanForker
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Today marks the start of Organ Donation Week 2022 💗. No better way to kick this week off than a positive message from our mate, Jimmy Nesbitt. @OrganDonationNI @NHSOrganDonor . #YesIDonate #GiftOfLife . #WaitingList
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7 years ago, Dáithí got home to spend Xmas in Belfast after defying the odds in London. Yesterday he spent the day with his heroes from @LFC. Dáithí still needs a new heart, but this is a reminder that even if you haven’t reached your destination that times can get better.
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‼️STATEMENT‼️. We will be meeting with Secretary of State @chhcalling on 1 February 2023 to discuss #DáithísLaw. Also the start of National Heart Month ♥️
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Delighted wee boy to get a lovely message from our Shadow Secretary of State @peterkyle today. We’re still on a high from last week, and getting a go-live date for #DáithísLaw yesterday was the icing on the cake. 💗. #OrganDonationSavesLives @UKLabour
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TODAY IS ORGAN DONATION DISCUSSION DAY . Our family have joined the Organ Donor Register, regardless of age. We believe that we’re ready, as a society, for a serious conversation about #PaediatricOrganDonation & hope that joining the Register as a family will become the norm.
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Thank you to you all for making The Victory Dance a night we will remember forever. #DáithísLaw #OrganDonation . 📸 Jim Corr. More pics to follow…
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BREAKING NEWS. The wee English fella has been replaced in #DerryGirls by our very own “wee ‘Murph fella” 👀 . An honour to meet you all today and thank you so much for helping us raise awareness of #OrganDonation. #YesIDonate #IsDeontóirMé
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Absolutely delighted with tonight’s news and looking forward to engaging with all our politicians to make sure we can get this done before the end of this mandate. @paulgivan @moneillsf @RobinSwannMoH . #SoftOptOutNINow #OrganDonation
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💥 A DREAM COME TRUE THREAD 💥 . Have a look below at one of the best days of Dáithí’s life with his heroes from @LFC. Dáithí has been waiting on a heart transplant for over 5 years and making precious memories like this means everything. Follow ⬇️⬇️⬇️⬇️⬇️
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Dáithí tells the whole of #Belfast that he wants Santa to bring him a new heart this #Christmas at @belfastcc Christmas Light Up!
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We sadly missed our flight home from London this evening and our hearts are broken, that we missed the crowds that came out to share the victory and celebrate. 💔.
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Weighing in at a massive 15.2kg, it’s Dáithí… MAC GABHANN!!!!!!. @mickconlan11 Vs @Venadolopez1 . #LopezConlan . #OrganDonation #NewHeart #WaitingList
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Hope you all have a fantastic and peaceful day. We are looking forward to 2022 spreading more awareness of #OrganDonation and creating hope for Dáithí and others on the waiting list… not to mention Dáithí being promoted to big bro 😍. #YesIDonate #IsDeontóirMé #NollaigShona
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This is disturbing & extremely hurtful, but there's a few points to make about it: . 1. @BeckyLynchWWE is Irish 🇮🇪!. 2. Dáithí loves countries/flags & has even drawn the 🇬🇧 for one of his nurses that cares for him at the Royal Hospital. 3. Your hate won't ruin Dáithí's smile!.
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2000 Days… and FIGHTING! . Dáithí is 2000 days on the waiting list for the gift of a new heart today and we have an ask:. Consider joining the @NHSOrganDonor Register, and registering the whole family regardless of age. #OrganDonation #NewHeart #WaitingList . 📸 @MalMccann
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BREAKING AND MASSIVE NEWS!!!!. @RobinSwannMoH launches Soft Opt-Out Organ Donation Public Consultation this morning!!!!!! Very proud day for our campaign. #YesIDonate #IsDeontóirMé. @healthdpt Statement:
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NEVER GIVE UP!. Dáithí, 7 years old, and born with Hypoplastic Left Heart Syndrome has been waiting for the gift of a heart transplant for over 6 years. #OrganDonationSavesLives #HaveTheConversation . 🫡 @JohnCena
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‼️GREAT NEWS‼️. Dáithí’s Law has today received Royal Assent meaning meaning The Organ & Tissue Donation (Deemed Consent) Bill has now officially become law. Dáithí’s Law will come into effect in Spring 2023 & we look our many engagements in the coming year. One happy boy 👇👇
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