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@DSRF_UK
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Improving the outcomes for all born with #downsyndrome Acceptance shouldn't mean accepting no #research Tweets by Christine Elliott & Dr Liz Corcoran
UK
Joined March 2010
has issued this statement. Read more on our blog: https://t.co/QlJ0lRfAEy
#AssistedDyingBill
#EndOfLifeBill
#HouseOfLords
#KimLeadbeater
#ParliamentDebate
#ProtectTheVulnerable
#SafeguardsMatter
#DisabilityRights
#DownSyndromeAdvocacy
#DownSyndromeAwareness
dsrf-uk.org
A Select Committee of the Lords was set up to take evidence on the Assisted Dying Bill, and over the…
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It’s far from over - the voices of many professionals have been raised in deep concern over the changes this new proposed legislation will have on various sectors of society. Raising concerns for the Downs syndrome community in particular, Dr Elizabeth Corcoran, Chair of DSRF UK,
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Corresponding address: Ruth.Trinick@alderhey.nhs.uk #BritishSleepSociety #BSS #BSSConference #SleepResearch #SleepHealth #SleepApnea #SleepDisorders #DownSyndromeSleep #InclusiveSleepHealth #DownSyndromeAwareness #DownSyndromeResearch #SleepBetterLiveBetter #SleepWellness
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•PSG (Polysomnography) can be used effectively for assessment in this patient group •A substantial proportion demonstrated moderate to severe OSA. Adenotonsillectomy was the most common intervention. •NIV (Non-invasive Ventilation) can be successfully commenced.
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associated with adverse developmental and health outcomes.” The aim of the service evaluation was to describe presenting symptoms, assessment methods, ENT interventions, and NIV initiation success rates in their tertiary centre. The conclusions of the study included:
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Management of Obstructive Sleep Apnoea in Children with Trisomy 21: a service evaluation from a Tertiary Centre’ Their project identified that ‘Children with Trisomy 21 (T21) are at increased risk of obstructive sleep apnoea (OSA). This is challenging to diagnose & manage. It is
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with them in the future! Thanks to delegates Heather Thomas (NHS), Gemma Saint (Alder Hey Children’s NHS Foundation Trust), and Ruth Trinick (Alder Hey Children’s NHS Foundation Trust) for the photos and information on their facility’s evaluation: ‘Presentation, Evaluation and
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service evaluation directly related to Trisomy 21. It was wonderful to connect & discover so many common interests around sleep & Down syndrome, & a great opportunity to introduce them to the work of the Down Syndrome and Sleep Research Network: we look forward to collaborating
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Dr Elizabeth Corcoran, Chair of the Down Syndrome Research Foundation UK, was encouraged to meet with the team from Alder Hey Children’s NHS Foundation Trust at the British Sleep Society Conference in Brighton yesterday, 5th November 2025, and to discover their presentation on a
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We will provide further updates in due course. #DownSyndromeAct
#ConsultationLaunch
#HaveYourSay
#PublicConsultation
#StatutoryGuidance
#DHSC
#HealthAndSocialCare
#SupportAndInclusion
#GovernmentConsultation
#MakingChangeHappen
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This includes a copy of the draft guidance and an accompanying annex of resources and good practice examples. They are seeking views on both documents during the consultation. For questions about the consultation, you can contact the DHSC at ndld.consultation@dhsc.gov.uk.
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communities we represent are aware of the consultation and can share their views. Easy Read versions of the draft guidance and survey questions have been made available. Individuals and organisations can respond to the consultation via this link: https://t.co/KSmShQYj7T
gov.uk
This consultation seeks views on the draft statutory guidance issued under the Down Syndrome Act 2022.
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They have provided a written ministerial statement by Minister Ahmed announcing the launch of the consultation in parliament. This can be found here: https://t.co/r6EQmy65WL The DHSC welcomes further feedback during the consultation process and has asked us to ensure that the
questions-statements.parliament.uk
Information from UK Parliament on written questions & answers, written statements and daily reports.
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Things are moving! We are delighted to report that today (5th Nov. 2025) the Department of Health and Social Care have launched the consultation on the draft statutory guidance under the Down Syndrome Act 2022. The consultation will run for twelve weeks, closing on 28 Jan. 2026.
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Sleep Research Network. Please spread the word, and pass on to anyone you know who would be interested! The Down Syndrome and Sleep Research Network (DSSRN): https://t.co/5VY8kLX9KI Down Syndrome Research Foundation UK (DSRF UK) https://t.co/6u2TakgI5f
#BritishSleepSociety
dssrn.org.uk
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