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DMD Companion

@DMDCompanion

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Health and wellness website offering news, perspectives, and resources for people and families living with Duchenne Muscular Dystrophy (DMD).

New York, NY
Joined March 2025
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@DMDCompanion
DMD Companion
8 hours
New article posted on DMD Companion: "Capricor Therapeutics announces positive data from study of DMD cell therapy." Read the full article here: #DMD #Duchenne.
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Deramiocel is an experimental therapy that shows promise in slowing disease progression in Duchenne muscular dystrophy (DMD).
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@DMDCompanion
DMD Companion
16 hours
@Theia0_o Important research alert! 📊 A recent study reveals that higher cholesterol levels may be linked to decreased bone density in children with DMD. This could have significant implications for their health. Learn more about these findings and what they mean for our loved.
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@DMDCompanion
DMD Companion
1 day
@TSTHZee Important findings on DMD: New research links higher cholesterol levels with decreased bone density. This could impact the health of our children in significant ways. Stay informed and learn more about these crucial insights here:
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Cholesterol and triglyceride levels appear to be inversely correlated with bone density in patients with Duchenne muscular dystrophy (DMD).
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@DMDCompanion
DMD Companion
1 day
@laurencstanford Exciting new research reveals a connection between higher cholesterol levels and decreased bone density in children with DMD. This insight could open new pathways for managing health in our loved ones. Read more about it here:
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dmdcompanion.com
Cholesterol and triglyceride levels appear to be inversely correlated with bone density in patients with Duchenne muscular dystrophy (DMD).
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@DMDCompanion
DMD Companion
2 days
New article posted on DMD Companion: "Higher cholesterol levels associated with decreased bone density in DMD." Read the full article here: #DMD #Duchenne.
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dmdcompanion.com
Cholesterol and triglyceride levels appear to be inversely correlated with bone density in patients with Duchenne muscular dystrophy (DMD).
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@DMDCompanion
DMD Companion
3 days
@TSTHZee Discover the incredible ways service dogs can support children with DMD in our latest article. These amazing companions provide not just assistance, but also emotional support and friendship. Learn more about how they make a difference in the lives of families facing.
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@DMDCompanion
DMD Companion
4 days
@laurencstanford Discover the incredible support service dogs can provide for children with DMD. This article explores how they can enhance quality of life and offer companionship. A must-read for parents navigating this journey. Check it out:
dmdcompanion.com
From fetching a phone to turning off the lights, a service dog can help those with DMD live more independently.
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@DMDCompanion
DMD Companion
4 days
New article posted on DMD Companion: "How can service dogs help with Duchenne?." Read the full article here: #DMD #Duchenne.
dmdcompanion.com
From fetching a phone to turning off the lights, a service dog can help those with DMD live more independently.
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@DMDCompanion
DMD Companion
6 days
@TSTHZee Exciting news for families affected by DMD! A new gene therapy delivery approach has shown promise in restoring full-length dystrophin in DMD mice. This breakthrough could bring hope for future treatments. Learn more about this significant advancement here:.
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@DMDCompanion
DMD Companion
6 days
New article posted on DMD Companion: "New gene therapy delivery approach restores full-length dystrophin in DMD mice." Read the full article here: #DMD #Duchenne.
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A new gene therapy using triple AAV vectors restored full-length dystrophin and improved muscle function in mice with DMD.
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@DMDCompanion
DMD Companion
7 days
@TSTHZee Exciting news for families affected by DMD! Sarepta is taking vital steps to enhance the safety of Elevidys, ensuring a brighter future for our children. Learn more about their plans and commitment to our community:
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Following two fatal cases of acute liver failure associated with ELEVIDYS, Sarepta is taking steps to improve the safety of the drug.
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@DMDCompanion
DMD Companion
8 days
@DMDCompanion Exciting news for the DMD community! Sarepta is committed to enhancing the safety of Elevidys, aiming to provide our children with better treatment options. Let’s stay informed and hopeful together. Read more here:
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Following two fatal cases of acute liver failure associated with ELEVIDYS, Sarepta is taking steps to improve the safety of the drug.
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@DMDCompanion
DMD Companion
8 days
New article posted on DMD Companion: "Sarepta shares plans to improve safety of Elevidys." Read the full article here: #DMD #Duchenne.
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dmdcompanion.com
Following two fatal cases of acute liver failure associated with ELEVIDYS, Sarepta is taking steps to improve the safety of the drug.
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@DMDCompanion
DMD Companion
9 days
@Theia0_o Managing weight gain from steroids can be a challenge for families dealing with DMD. Our latest article offers practical tips to help navigate this journey with your loved ones. Discover strategies that can make a difference! Read more here:
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@DMDCompanion
DMD Companion
9 days
@DMDCompanion Navigating weight gain can be challenging for families dealing with DMD, especially when steroids are involved. Our latest article offers essential tips and practical advice to help manage this aspect of treatment. Empower yourself with knowledge! Read more here:.
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@DMDCompanion
DMD Companion
10 days
@laurencstanford Navigating weight gain from steroids can be challenging for families affected by DMD. Check out this helpful article for practical tips and support to manage this aspect of your journey. Together, we can find ways to promote health and well-being! Read more here:.
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@DMDCompanion
DMD Companion
10 days
New article posted on DMD Companion: "Tips to manage weight gain from steroids for DMD." Read the full article here: #DMD #Duchenne.
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@DMDCompanion
DMD Companion
12 days
@Politics_Hlth Exciting news for families affected by DMD! 🎉 The Children’s Hospital of Philadelphia has been granted Certified Duchenne Care Center status. This recognition ensures specialized, comprehensive care for our children. Discover what this means for families.
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@DMDCompanion
DMD Companion
12 days
@TSTHZee Exciting news for families impacted by DMD! The Children’s Hospital of Philadelphia has been granted Certified Duchenne Care Center status, ensuring top-notch care and support for our children. Check out the details on this important milestone for the Duchenne community!.
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@DMDCompanion
DMD Companion
12 days
New article posted on DMD Companion: "Children’s Hospital of Philadelphia granted Certified Duchenne Care Center status." Read the full article here: #DMD #Duchenne.
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The Children’s Hospital of Philadelphia has received recognition for its sustained excellence in providing care for patients with DMD.
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