Cystic Fibrosis WA
@CysticFibrosis1
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Our mission is to contribute to the social, physical and emotional well being of those affected by cystic fibrosis and fund critical CF research.
Western Australia
Joined February 2011
RT @mitchmess: As a person who lives with CF I know the challenges people with CF face each day to survive & prosper. I'm participating in….
fundraise.cfwa.org.au
Your efforts will help Cystic Fibrosis WA to continue to provide vital support services and contribute to critical research for people living with cystic fibrosis.
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The sudden lockdown in Perth has come as a bit of a shock to many. We hope you are all coping ok and remind you that CFWA has support available. More info at
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Thank you to sunburntfilms and shan_obstaclerunning_man for putting together the awesome FREE Backyard Bootcamp fitness challenge. Still time to jump on board, visit link in bio to get started. #cfawareness…
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RT @healthgovau: Everyone must practise good hygiene to protect those most vulnerable against infection and to help prevent viruses spreadi….
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With media reports about Coronavirus (COVID-19) increasing, we are aware that this is a time of concern for many people. The best place for up to date information at this time is the WA Deartment of Health website.
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RT @cftrust: A deal has been done. Finally, people with #cysticfibrosis living in England will have access to #Orkambi and #Symkevi. We tha….
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Exciting news for many Australians with CF this week. Symdecko listed on the PBS and Orkambi listing expanded to include 2-5yo's. More info at the link.
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RT @GrahamHall_lung: It's #WorldLungDay. so take a deep #breath and relax. Our team is passionate about improving lung health in kids, yo….
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RT @MarkMcGowanMP: The two best MCs I have ever had. Thank you Zyra and Kaide for helping me officially open the @telethonkids Institute D….
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RT @telethonkids: Very exciting to be officially opening our brand new Discovery Centre today! We’ve created this fantastic space for kids….
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Great CF news from the US!.
Vertex announced today that it will seek @US_FDA approval for its CFTR modulator VX-445 combined with tezacaftor/ivacaftor in the third quarter. If approved, the drug could eventually benefit more than 90% of people with #cysticfibrosis. #CFresearch
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RT @RSM_au: Things picked up pace at the Exchange Tower in Perth when the Spin Charity Challenge kicked in gear! Our cyclists pedalled away….
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Today we are preparing over 16,000 roses to raise awareness and funds for people with cystic fibrosis (CF)! #cysticfibrosis #cfawareness #65roses #65rosesday
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This Friday 24 May is 65 Roses Day! Help us paint WA with roses for people with cystic fibrosis. #cysticfibrosis #cysticfibrosisawareness #CF #65roses #65rosesday
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RT @GrahamHall_lung: are you a research student working on cystic fibrosis? check it out.#cysticfibrosis @telethonkids @CysticFibrosis1 htt….
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RT @telethonkids: Our annual cystic fibrosis research update is coming up soon! Join us on Wednesday 1st May for an evening with CF scienti….
eveningwithcfscientists2019.splashthat.com
Join us for an annual research update from WA cystic fibrosis researchers. Find out the latest research findings in CF including developments around personalised medicine. The evening includes...
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RT @SheffChildrens: 17-year-old Lucy is not letting long hospital stays stop her from pursuing a career she loves. Lucy has cystic fibrosis….
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RT @CF_Foundation: When you grow up with a sibling who has #cysticfibrosis, you often experience challenges other kids may not face. Kather….
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