Patients and families: This is the single most important thing you can do to advance synovial sarcoma research. Join the Synovial Sarcoma Registry and BioRepository—the only effort of its kind in the world. Your participation gives researchers the critical data needed to develop

Seth’s journey with synovial sarcoma is one of quiet strength and continued reflection. Beyond the treatments and challenges, Seth has stayed deeply connected to the things that define him — a love for the ocean, a thoughtful mind, and a deep sense of purpose. We’re proud to

July is Sarcoma Awareness Month. This sketch was created by Callan Spence—an artist, synovial sarcoma survivor, and the young man who inspired the founding of the Synovial Sarcoma Foundation. Through his art, Callan reminds us that this month isn’t just about awareness—it’s

Your story matters—and it could help others. Join our private Facebook group to connect with families, share your experience, and contribute to research that’s shaping the future of Synovial Sarcoma care. Together, we’re not just finding support—we’re building data that drives

Behind every breakthrough, every voice amplified, and every patient supported, stands a council of distinguished leaders deeply committed to changing the future of synovial sarcoma. Our Board of Directors brings together strategic minds, lived experiences, and unwavering

Every patient story shared helps someone feel more understood in their synovial sarcoma journey. We're building the largest collection of patient experiences to create hope, insight, and community. Your story becomes a beacon of guidance for someone just beginning this path.

Patients and families: This is the single most important thing you can do to advance synovial sarcoma research. Join the Synovial Sarcoma Registry and BioRepository—the only effort of its kind in the world. Your participation gives researchers the critical data needed to develop

Synovial sarcoma patients should receive advanced biomarker testing immediately after diagnosis. This issue was front and center during the @endpts #ASCO25 Precision Medicine Panel, featuring Desmond Murphy (@Servier), Daryl Pritchard (Personalized Medicine Coalition), and

We were proud to be represented at #ASCO25 by two leaders shaping the future of synovial sarcoma research!. Dr. Ted Laetsch, Chair of our Medical Advisory Board, attended with Dr. Rachel Hurley, Pediatric Fellow at @childrensphila, who leads our mouse modeling work targeting the

More information: | @ChildrensPhila.

The Synovial Sarcoma Foundation celebrates Dr. Rachel Hurly’s groundbreaking research on enhancing immunotherapy efficacy. Her @ASCO Young Investigator Award marks a significant stride in sarcoma treatment. 🔗 Learn more: #SynovialSarcoma #RareCancer

We’re proud to join the #NORDSymposium in D.C. this week, where leaders in rare disease research and care are coming together to drive real progress. For the #SynovialSarcoma community, collaboration like this is essential. @RareDiseases . Learn more:

RT @CureSynovial: We’re thrilled to announce the first-ever #Synovial #Sarcoma Conference, hosted by @CHOP_Research and @PennMedicine!. Off….

We’re thrilled to announce the first-ever #Synovial #Sarcoma Conference, hosted by @CHOP_Research and @PennMedicine!. Official AP announcement: This groundbreaking event will bring together medical experts, researchers, patients, and families to advance