Cure CLCN4 Profile
Cure CLCN4

@CureCLCN4

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195
Following
54
Media
216
Statuses
245

We are a UK-registered charity (reg. no. 1190344) aimed at providing support, raising awareness and funding medical research for effective treatments for CLCN4.

Joined July 2021
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@CureCLCN4
Cure CLCN4
2 months
Tomorrowโ€™s the day! ๐ŸŽ‰ The Cure CLCN4 Scientific Conference kicks off at 10:30 AM sharp, but registration opens at 9:45 AM. Be sure to arrive early to get your conference materials, enjoy a coffee, and mingle with fellow attendees & speakers!โ˜•๐Ÿค.
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@CureCLCN4
Cure CLCN4
2 months
Just ONE week to go! โณ.Weโ€™re counting down the days until the Cure CLCN4 2025 Scientific Conference begins. We canโ€™t wait to welcome researchers, clinicians, industry-leaders and advocates from around the world ๐ŸŒ.More information here:
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@CureCLCN4
Cure CLCN4
2 months
๐Ÿšจ Last chance! ๐Ÿšจ Todayโ€™s the FINAL day to register to attend the Cure CLCN4 2025 Scientific Conference in person! ๐Ÿง . ๐Ÿ—“ Date: 19th & 20th May.๐Ÿ“ Location: Friends House, London & Online.๐Ÿ‘‰ Secure your spot today:
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@CureCLCN4
Cure CLCN4
3 months
In Their Words: Dr Gina Tan ๐Ÿ“ฃ.Gina, co-founder of Cure CLCN4 and mother of Daphne, who lives with CLCN4-related condition, tells us about the Cure CLCN4 conference and its personal significance to her. ๐Ÿ‘‰ Register now:
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@CureCLCN4
Cure CLCN4
3 months
In Their Words: Dr. Michael Pusch ๐Ÿ“ฃ.Why is the Cure CLCN4 Scientific Conference a can't-miss event?ย Dr. Pusch shares how the unique mix of attendees and the collaborative setting create the perfect environment for meaningful discussions and new ideas.
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@CureCLCN4
Cure CLCN4
3 months
Have you registered yet? ๐Ÿงฌ Join researchers, clinicians, and the CLCN4 community at the 2025 Cure CLCN4 Scientific Conference by registering today! Inspiring talks, cutting-edge science, and meaningful connections await. ๐ŸŒ.๐Ÿ‘‰ Head to and register today!
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@CureCLCN4
Cure CLCN4
3 months
๐ŸŒŸ Thrilled to announce Prof. Thomas Jentsch as our keynote at the Cure CLCN4 Conference! A world leader in chloride transport research, Prof. Jentsch will overview the CLC family, which he first identified in 1990, and share his latest unpublished findings on CLC-4. #cureclcn4
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@CureCLCN4
Cure CLCN4
4 months
Is your company committed to social change? ๐ŸŒ Are you interested in connecting with experts in the rare disease, ion channel & precision medicine fields? For ยฃ500, the Friends of Cure CLCN4 sponsorship includes: โœ… Logo on our site and brochure .โœ… VIP conference dinner invite
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@CureCLCN4
Cure CLCN4
4 months
๐Ÿ“Š 2025 Cure CLCN4 Poster Session is here! Open to researchers in CLCN4 and related fields like rare diseases and precision medicine. Showcase your work, network, and win a ยฃ250 prize from @NanionTech ! ๐Ÿ† Abstract deadline: 16th April #cureclcn4 #rarediseaseresearch
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@CureCLCN4
Cure CLCN4
4 months
Weโ€™re thrilled to welcome @NanionTech as Bronze Sponsor for the 2025 Cure CLCN4 Scientific Conference! ๐ŸŒŸ Nanion has been a valued supporter of our conference before, and weโ€™re grateful for their continued commitment to advancing research on CLCN4-related condition ๐Ÿงฌ #cureclcn4
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@CureCLCN4
Cure CLCN4
4 months
๐ŸŒŸSpeaker Spotlight: Dr. Raul Guzman ๐ŸŽ™๏ธ .Discover how his research on ClC-3 and ClC-4 transporters impacts brain function and contributes to understanding CLCN4-related condition. ๐Ÿ—“๏ธ 9th & 20th May.๐Ÿ“Friends House, London & Online.โœ๏ธ Register here:
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@CureCLCN4
Cure CLCN4
4 months
โšก๏ธ Lightning Talks! Short, high-impact presentations designed to give early-career researchers a spotlight at the conference. Submit your abstract by April 11th ๐Ÿ‘‰ info@cureclcn4.org.For more information: #cureclcn4
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@CureCLCN4
Cure CLCN4
4 months
Why Attend the Cure CLCN4 Scientific Conference? ๐ŸŽฅ. Hear from Dr. Joe Mindell, as he shares why this conference is an invaluable opportunity for researchers, clinicians, and anyone interested in CLCN4-related condition ๐Ÿงฌ. ๐Ÿ‘‰Sign up now at #cureclcn4
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@CureCLCN4
Cure CLCN4
4 months
๐ŸŒŸ Speaker Spotlight: Dr. Michael Pusch. Join us at the Cure CLCN4 Conference (19th & 20th May) to hear from Dr. Michael Pusch, recipient of the Cure CLCN4 Pilot Grant, who will present his latest research on CLCN4-related condition. โœ Register:
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@CureCLCN4
Cure CLCN4
5 months
๐Ÿ“ข Registration is now open for the Cure CLCN4 Scientific Conference 2025! Join us on May 19-20 for two days of collaboration and the latest in CLCN4 research. ๐Ÿ‘‰ Register: #cureclcn4 #clcn4conference #raredisease
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@CureCLCN4
Cure CLCN4
6 months
๐ŸŽ‰ 2024 Wrapped Highlight #4: Last year, our amazing community went the extra mile โ€“ literally! ๐Ÿƒโ€โ™€๏ธ๐Ÿƒโ€โ™‚๏ธ Through marathons, races, and running events, you raised over ยฃ20,000 to support CLCN4 research. Thank you ๐Ÿ™ #cureclcn4 #run4clcn4
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@CureCLCN4
Cure CLCN4
6 months
๐ŸŽ‰ 2024 Wrapped Highlight #1: This year, we hit an incredible milestone โ€“ awarding our first-ever research grant of ยฃ150,000 to support research on CLCN4-related condition! ๐Ÿงฌ To meet the awardees & learn more about the work weโ€™re funding click here:
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@CureCLCN4
Cure CLCN4
6 months
๐ŸŽ‰ Happy New Year from all of us at Cure CLCN4! As we welcome 2025, join us in celebrating a year of progress with our '2024 Wrapped' series. Stay tuned as we recap our major milestones and highlights from the past year โฎโœจ #cureclcn4 #happynewyear #clcn4research
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@CureCLCN4
Cure CLCN4
8 months
๐ŸŒŸ Donate & make an impact! ยฃ20/month helps provide essential resources and support for families, raising awareness about CLCN4-condition. As thanks, you'll receive: a free online fundraising pack & a thank you note from families ๐Ÿ’Œ Donate now ๐Ÿ‘‰
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@CureCLCN4
Cure CLCN4
8 months
๐ŸŒŸ Join our Monthly Donation Program! Just ยฃ/$50 a month helps us host events to drive vital research and connect families living with CLCN4. Together, we can build a supportive community and foster significant advancements. ๐Ÿ’™ Make a difference today! ๐Ÿ’ซ
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