CP-Achieve
@CpAchieve
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Australian Centre for Health, Independence, Economic Participation and Value Enhanced Care for adolescents and young adults with cerebral palsy Insta:@cpachieve
Melbourne, Australia
Joined March 2015
📢 Round 1 of the CHESTI Study is still open! Help shape the future of chest health care for children and young people with cerebral palsy 📝 Quick 10–15 minute survey 👨👩👧👦 For parents, carers, healthcare professionals, and researchers 👉 Take part today!
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🎉 Just launched! Fitness for Life is a free, online guide to getting active, created by and for young adults with cerebral palsy. Packed with tips, stories & step-by-step help. Explore it now! 👉
cerebralpalsypathfinding.org
A free resource dedicated to empowering young adults with cerebral palsy to plan and participate in physical activities of their choosing. Practical advice, real stories, and step-by-step support for...
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Join disability advocate Brenton Ponza for a powerful webinar on the emotional impact of not being truly understood 🗓️ Thurs 16 Oct 2025 ⏰ 3–4pm AEDT 📍 Online (Zoom) Free to attend. Register here 👉️
agosci.org.au
AAC Awareness Month is celebrated around the world each October. The goal is to raise awareness of AAC and the different ways in which people communicate. ISAAC
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📣 Take part in Round 1 of the CHESTI Study – help shape chest health care for children & young people with #CerebralPalsy. 🕒 10–15 mins | 🗓️ Open until 5 Oct 2025 | 🌍 Open to families, healthcare professionals & researchers 🔗 https://t.co/MZ7at7OntG
https://t.co/Dvn78KSllY
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🎉We’re finalists in Category A of the inaugural Australian Consumer Partnerships in Research Awards 2025! 👏 Thanks to everyone who voted! This highlights CP-Achieve’s commitment to genuine consumer partnerships in youth disability research 💬💡 🔗 https://t.co/r8tvfc8oDs
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Don’t forget to register for the next AusACPDM Listening & Sharing session! Our team will be presenting “Research Toolkit unpacked – a guide by One Group Our Voice.” 📅 30 July 2025 ⏰ 4–5pm AEST 💻 Free & online 🔗 Register: https://t.co/KAEVeabzsR
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We’re proud to share that CP-Achieve has been featured by @nhmrc & @CHFofAustralia for our work in building effective partnerships with consumers in CP research. Check out the case studies here 👉
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Don’t forget to register for the FINAL CP-Achieve Webinar! 📅 Wed, 6 Aug 2025 | ⏰ 5:00 PM AEST 🎤 Georgia McKenzie & Freya Munzel share their work on co-designing physical activity resources with young adults with CP. 👉 https://t.co/uhxmUbXmIg
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🗳️ There’s still time to vote for CP-Achieve! We’re up for the People’s Choice Award – and the top groups are only a few votes apart! ⏳ Voting closes soon. ✅ Every vote counts – yours could decide it! 📲 Vote now 👉 https://t.co/yKd3DL7Rmy
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📢 Save the Date: Final CP-Achieve Webinar! 📅 Wed 6 Aug 2025 | ⏰ 5:00 PM AEST | 💻 Free online Join us as Georgia McKenzie shares how her research is turning evidence into real-world impact & empowering young people with CP to get active Register 👉 https://t.co/uhxmUbXmIg
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📣 Our One Group Our Voice advisory group is presenting at the next AusACPDM Listening and Sharing session! Research Toolkit unpacked- a guide by One Group Our Voice!! 📅30th July 2025, ⏰️4pm - 5pm Australian EST 💻️Free online session https://t.co/KAEVeabzsR
oceaniaacademy.org
Research Toolkit unpacked- a guide by One Group Our Voice!! Join us in our free listening and sharing session. 30th July 2025, 4:00pm – 5:00pm Australian EST Topic information: This...
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🌟 CP-Achieve comes to a close, but the work continues! Working with young people, families, researchers & clinicians, we’ve advanced research, co-created resources, trained future leaders & secured funding to keep key projects going. 💙 Thank you for being part of the journey!
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🎉 Consumer involvement in CP-Achieve has been nominated for an AccessCR Consumer Partnerships in Research Award — and selected for the People’s Choice Award! 🙌 🗳️ Public voting is NOW OPEN — we’d love your support! 📲 Vote 👉 https://t.co/yKd3DL7Rmy
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Learn how we built a consumer involvement program for adolescents & young adults with CP — including wins, challenges & strategies to make research accessible, safe & inclusive. ➡️Hosted by WAHTN CCIProgram 📅18 June- 10.30am AWST/Perth time 🔗Register: https://t.co/1uq8rwfrrD
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🎥 A new animation on the Eating and Drinking Ability Classification System (EDACS) for people with CP is here! EDACS helps describe eating, drinking & swallowing challenges in people with CP, improving communication & care decisions. Watch here 👉
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🎓 Huge congrats to Utsana Tonmukayakul on completing her PhD at Deakin! Her research focused on improving how we measure quality of life in children with CP for use in economic evaluation. 👏 We’re sad to see her leave CP-Achieve, but excited for her next chapter! 🌟
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On today! @ 5pm AEST Don't forget to register for our webinar on 'Consumer involvement strategies from CP-Achieve'- presented by Claire Rowland. Register 👉 https://t.co/z7d7sC8Ak7
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🎉 Huge congrats to Nadine Smith who has just submitted her PhD thesis! A recipient of a CP-Achieve PhD scholarship, Nadine has been working over the past few years on research to develop a core outcome set of chronic pain tools for young people with CP. Well done Nadine!
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Goodbye to Claire Rowland, we’re grateful for her incredible work at CP-Achieve 💙 As the Knowledge Translation Fellow, Claire led the creation of our Consumer Involvement Resource—a lasting legacy for CP-Achieve. Wishing you all the best, Claire! 👏✨
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📝 New publication! Adapting Experience-Based Co-Design to Disability Research – now in Health Expectations! The CycLink Co-Design Study shows how co-production with disabled young people & families created an inclusive cycling initiative. 🚲 🔗
onlinelibrary.wiley.com
Introduction Participatory methods like experience-based co-design (EBCD) can be used to develop complex interventions, but may need adaptations when co-designers include young people with disabili...
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