Courageous Parents Network
@CourageousCPN
Followers
726
Following
229
Media
155
Statuses
584
Courageous Parents Network is a non-profit organization that orients and empowers parents and others caring for children with serious illness. #Pedpc
Boston, MA
Joined May 2015
NOMINATIONS FOR THE CPN COURAGEOUS PROVIDER AWARD 2025 ARE NOW OPEN! The deadline for submissions is Wednesday, April 30, 2025 at 5pm ET. You can find instructions and a simple form to complete here: https://t.co/lA61JwRqAU
#pedpc
0
0
1
We know the impact caring for a child with a serious illness can have on relationships. So we want to know... How do you tend to your relationships? What works? What doesn't work? What do you worry about? How do you keep it going? Tell us in ONE word. #pedpc #rare #caregiver
0
1
1
Please join us @CourageousCPN on February 27th at 8pm ET for a free webinar with Dr. Monica Lemmon and experienced parents on the topic of decision-making in the #NICU. @HopeforHIE @nicupodcast @AAPneonatal @NeonatalSociety @DadNicu @NICUParentNet
https://t.co/9sLwe1Bhry
0
3
5
CPN is proud to be an official liaison to the @AmerAcadPed Section for Hospice & Palliative Medicine. Bringing peds experts & caregivers together is an essential part of improving the pediatric healthcare experience & fostering understanding of clinician & caregiver perspectives
0
1
3
CPN’s Blyth and Jennifer teamed up for an appearance on the newly released podcast, Rare Diseases, Real Stories brought to us by a team at UMass Chan Medical School. Listen:
umassmed.edu
Courageous Parents Network
1
2
4
Looking forward to building our community on Bluesky! Find us at @courageousparentsnetwork.org
0
0
0
Society is not structured in a way that supports a parent losing a child. In this blog Parent Champion Parvathy suggests that we must create pathways to help families process this overwhelming life event differently. https://t.co/QWbNAkYBgt
#pedpc #grief
0
5
5
0
0
0
Our small but mighty team (from NY, ME, and MA) came together last week for our final in-person team meeting to discuss what inspires us and our activities for 2025. It's always good to have the opportunity to meet live! #ThisSharedJourney
0
0
2
What a treat to meet the huge, gorgeous Palliative & Complex Care teams and clinicians @ChildrensPgh and present Carol May, RN (the founding force behind this Division at the hospital) with the Ilene Beal 2024 Courageous Provider Award. #pedpc
0
1
4
Pediatric psychologists are important members of many palliative care teams!
Did you know that pediatric palliative care encompasses so much more than end-of-life? Courageous Parents Network provides helpful guides for better understanding #PPC. @CourageousCPN @BlythCPN https://t.co/02vjfxDiuh
0
1
4
Showing up doesn’t have to be grand gestures; it can be running errands, cooking a meal or simply sitting and listening. Showing up is responding to the moment with intentionality.
0
2
4
0
0
2
0
2
3
In the ninth episode of SongWriter, poet and author @maggiesmithpoet shares two poems about caregiving for young children, Dr. Chrissy Salley talks about her research on caregiving, and jazz chanteuse @katedmonson shares a brand new song. Listen: https://t.co/S8QbApD9Et.
0
6
7
CPN's Jennifer Siedman presents on Decision-Making Styles at the @CareMcgill International Palliative Care Congress. #pedpc
#decisionmaking
#pediatrics
0
1
2
Dr. Lauren Treat contributed to NeuroJourney and is featured in a video interview on CPN. Come hear from her live. #SNI #NeuroJourney
https://t.co/v8f2u8qJfP
0
2
2
Dr. Goldstein’s piece for the @AmerAcadPeds Voices Blog, on CPN: “The network has grown into a treasured medical resource borne of deep and mutual understanding.” https://t.co/sB1RS3bKFS
#Pedpc
#pediatrics
#ThisSharedJourney
aap.org
0
1
2