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Courageous Parents Network Profile
Courageous Parents Network

@CourageousCPN

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Courageous Parents Network is a non-profit organization that orients and empowers parents and others caring for children with serious illness. #Pedpc

Boston, MA
Joined May 2015
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@CourageousCPN
Courageous Parents Network
5 months
NOMINATIONS FOR THE CPN COURAGEOUS PROVIDER AWARD 2025 ARE NOW OPEN!. The deadline for submissions is Wednesday, April 30, 2025 at 5pm ET. You can find instructions and a simple form to complete here: #pedpc.
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@CourageousCPN
Courageous Parents Network
5 months
We know the impact caring for a child with a serious illness can have on relationships. So we want to know. How do you tend to your relationships? What works? What doesn't work? What do you worry about? How do you keep it going?. Tell us in ONE word. #pedpc #rare #caregiver
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@CourageousCPN
Courageous Parents Network
5 months
RT @ChrissySalley: Please join us @CourageousCPN on February 27th at 8pm ET for a free webinar with Dr. Monica Lemmon and experienced paren….
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@CourageousCPN
Courageous Parents Network
5 months
CPN is proud to be an official liaison to the @AmerAcadPed Section for Hospice & Palliative Medicine. Bringing peds experts & caregivers together is an essential part of improving the pediatric healthcare experience & fostering understanding of clinician & caregiver perspectives
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@CourageousCPN
Courageous Parents Network
5 months
CPN’s Blyth and Jennifer teamed up for an appearance on the newly released podcast, Rare Diseases, Real Stories brought to us by a team at UMass Chan Medical School. Listen:
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@CourageousCPN
Courageous Parents Network
5 months
Looking forward to building our community on Bluesky! Find us at @courageousparentsnetwork.org.
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@CourageousCPN
Courageous Parents Network
8 months
Society is not structured in a way that supports a parent losing a child. In this blog Parent Champion Parvathy suggests that we must create pathways to help families process this overwhelming life event differently. #pedpc #grief.
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@CourageousCPN
Courageous Parents Network
8 months
Where we'll be in the last month of 2024.#NeuroJourney #CPN #grief #caregivers #pedpc
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@CourageousCPN
Courageous Parents Network
8 months
Our small but mighty team (from NY, ME, and MA) came together last week for our final in-person team meeting to discuss what inspires us and our activities for 2025. It's always good to have the opportunity to meet live!.#ThisSharedJourney
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@CourageousCPN
Courageous Parents Network
8 months
What a treat to meet the huge, gorgeous Palliative & Complex Care teams and clinicians @ChildrensPgh and present Carol May, RN (the founding force behind this Division at the hospital) with the Ilene Beal 2024 Courageous Provider Award. #pedpc
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@CourageousCPN
Courageous Parents Network
8 months
Pediatric psychologists are important members of many palliative care teams!.
@SPP_PallEoL
SPP Palliative Care and End of Life SIG
8 months
Did you know that pediatric palliative care encompasses so much more than end-of-life? Courageous Parents Network⁩ provides helpful guides for better understanding #PPC. ⁦@CourageousCPN⁩ ⁦@BlythCPN
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@CourageousCPN
Courageous Parents Network
9 months
Showing up doesn’t have to be grand gestures; it can be running errands, cooking a meal or simply sitting and listening. Showing up is responding to the moment with intentionality.
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@CourageousCPN
Courageous Parents Network
9 months
Where we'll be this month.#NeuroJourney #SNI #Pediatrics #PalliativeCare
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@CourageousCPN
Courageous Parents Network
9 months
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@CourageousCPN
Courageous Parents Network
9 months
TONIGHT at 8pm ET. Free!.#SNI.#Neurology.
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@CourageousCPN
Courageous Parents Network
9 months
RT @snogwriter: In the ninth episode of SongWriter, poet and author @maggiesmithpoet shares two poems about caregiving for young children,….
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@CourageousCPN
Courageous Parents Network
9 months
CPN's Jennifer Siedman presents on Decision-Making Styles at the @CareMcgill International Palliative Care Congress. #pedpc.#decisionmaking.#pediatrics
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@CourageousCPN
Courageous Parents Network
9 months
Today is World Hospice and Palliative Care Day, but at CPN, we wish #PalliativeCare and #Hospice would be de-coupled from each other. Hospice is for END OF LIFE, whereas Palliative Care is for ALL OF THE LIFE following diagnosis of a serious illness. @whpca.#pedpc #hapc #WHPCD
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@CourageousCPN
Courageous Parents Network
10 months
Dr. Lauren Treat contributed to NeuroJourney and is featured in a video interview on CPN. Come hear from her live. #SNI #NeuroJourney.
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@CourageousCPN
Courageous Parents Network
10 months
Dr. Goldstein’s piece for the @AmerAcadPeds Voices Blog, on CPN: “The network has grown into a treasured medical resource borne of deep and mutual understanding.”. #Pedpc.#pediatrics.#ThisSharedJourney.
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