Helga Rohra
@ContactHelga
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Author & Dementia Activist - Speaker - Stronger than LBD-DZNE/Patient Council -WHO/Brain Health Unit
München / Germany
Joined January 2014
Genial und so wichtig dieses Projekt 👏WIR sind / wollen / müssen eine „ Kümmerer Gesellschaft „sein - BITTE mitmachen 🙏
An- und Zugehörige von Menschen mit #Demenz gesucht, die an einer online-Befragung teilnehmen wollen, bitte RT, jede/r hilft! Gemeinsam versuchen #DAlzG #DZNE umfassendere Info der Situation zu Hause zu erlangen. Ein Beitrag zur #NationaleDemenzstrategie
https://t.co/Wgf59F6EAi
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Our Dementia in Europe Yearbook 2022 is now out! This edition examines #employment and #SocialProtection for people living with dementia and their #carers. You can download it here: https://t.co/cDriqX8u1V
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My deepest condolences to you Isoko🤗- I will keep Geert in Memory as always smiling and a Touch of heart warming humour . R.I.P 😢
We were very sad to learn of the passing of Geert Van Laer, former member of the European Working Group of People with Dementia. We offer our deepest condolences to his wife Ikuko and their two sons https://t.co/DpsaEHSkvu
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Challenging topic !Well done with passion and responsability by the authors 👏Appreciation for the AE team / Lead :Dr.Dianne Grove👏 Honored to be a Co- author and give a strong voice 👍
Today, we launch a new guide on sex #gender and #sexuality in the context of dementia. @DianneGove & colleagues stress importance of people with dementia feeling accepted, respected & safe to be open about their gender identities & sexual orientations. https://t.co/AHYIpVT3bd
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Amazing and remarkable the work WITH and for pwd all the Years 👏🎤Congrats DAI with its founding pioneer Kate Swaffer ❤️Congrats to all who HAVE and Will support the Rights of us 👍
@KateSwaffer @jball49 @jacki_liddle @CUEBALL1955 @Soumak @ContactHelga @CanadaDementia @agnes_houston @LEAD_Coalition @FWDDementia_AU @FWDDementia_CA @karenwatchman @agedcare_danni @gailkenning @reneebrack @DiverseAlz @dementia_aat It’s remarkable we made it this far, with such minimal funding. 3 co-founders have passed, 5 left. They had a huge vision for improving the future for people with #dementia and increasing the numbers of #advocates globally which we continue to do via #advocacy & #P2P #support
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Der Patientenbeirat trauert um Bruno - Deine Expertise und sogar Leichtigkeit - dein MUTmachen - YES - WE CAN 👍- DU hast Pionierarbeit geleistet - WIR und das DZNE führen diese weiter! R.I.P🙏
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I remember Sue well - her gentle wisdom 🙏R.i.P Dear friend ! You - as all the others who left - your Legacy Never forgotten ❤️
Members pay tribute to co-founder Sue Stephens https://t.co/fOB65ysecV RIP Sue, your contribution to setting up #DAI will always be missed. @KateSwaffer @AlisterRoberts4 @AmyShives @chrissythelker @AgnesHouston14 @ContactHelga @jball49 @AlzDisInt
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#DAI Observes the International Day of People with Disability #IDPWD2022 @AlisterRoberts4 @KateSwaffer @IDA_CRPD_Forum @chrissythelker @ContactHelga @emilyong67 @JacquelineWMW @AlzDisInt
dementiaallianceinternational.org
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The early impacts of COVID-19 on people living with dementia: part I of a mixed-methods systematic review @KatarzynaLion @CatherineTalb @DZNE_Thyrian @LorenzKH @Aida_Suarez_ @HilaryTetlow @jc_cannon13 @EmilyhmWharton
https://t.co/g1TDnVFDtr
tandfonline.com
Objectives: The aim of this Part I systematic review was to understand the impact of the COVID-19 pandemic on the lives of people with dementia living in the community or in residential care. Part ...
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This kind of thing never gets old for me The German edition of my book is published by @GoldmannVerlag today #brainfog
#brainhealth
#LongCovid
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Second day of @eufingers project meeting. @Ana_M_Diaz is presenting the Public Involvement work with the Advisory Board @CindyBirck
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High appreciation for DZNE - with Dr.Saskia Kuliga 👏New ways : pwd as co - readearcher in projects 👍-🎤Mutual benefit and pioneering work on different Levels 👏👏
(continued) INCLUDE research project: https://t.co/g9RELxpvTW with project partners and dementia advocates @JimMannBC and @ContactHelga
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@AlzheimerEurope #EWGPWD celebrating the 10 year’s anniversary today with past and present members. Great to hear from previous chairs on how the last decade has given hope for many people with dementia @rochfordbrennan @ContactHelga @mason4233 @JeanGeorgesAE
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Congrats to my Friends - the pioneers in raising Awareness 👏Congrats to AE with its amazing team for giving us a Voice 👏
Today, current & past members of the European Working Group of People with Dementia #EWGPWD will meet, to mark the group's 10th anniversary. Congratulations & thanks to each and every one of you for your vital work! Read our celebratory publication, here https://t.co/3XwXn1yLv1
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Dieser Slogan inspiriert mich als Aktivistin- einfach genial 👏
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How can policy makers, health & social care students and service providers improve the lived experience of people with dementia? ⤵️ https://t.co/8yzgUFTVtN
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Great Event 👍I Love the title : Reimagining Ageing 👏
The GSA 2022 Annual Scientific Meeting starts today! We are excited to be back together in person. The theme is Embracing Our Diversity. Enriching Our Discovery. Reimagining Aging. Watch for more posts on various #GSA2022 activities. Visit https://t.co/aCRjRcOLol
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Beachtlich und wichtig: WAS und WIE geht post diagnostic support?!Danke für diese top SPECIAL Edition 👏
Alzheimer Europe Konferenz 2022: Hier geht's zur ersten Ausgabe unserer kleinen, aber feinen SPECIAL EDITION-Reihe unseres digiDEM Bayern Science Watch Newsletters mit Beiträgen von Anne Keefer und Florian Weidinger. https://t.co/kThc3w7v9D
@UniFAU @AlzheimerEurope
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Ricordo l‘inizio👏Congratulazione 👍
Secondi all’Anti-stigma Award di @AlzheimerEurope! Il nostro sito https://t.co/jx8yUVbYtu e la campagna #nontiscordaredivolermibene riconosciuti come iniziative che puntano all’abbattimento dello stigma e alla promozione di un’immagine positiva delle persone con demenza. #32AEC
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