ConnecteDNA
@ConnecteDNA
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Donor conception in the age of direct-to-consumer genetic testing. Research led by @officialUoM with @dmuleicester @unibirmingham @warwickuni and @LivUni
Joined July 2021
Welcome to our twitter account for the ConnecteDNA project. Our @ESRC-funded, inter-disciplinary research will explore the impact of direct-to-consumer genetic testing for people involved in donor conception and the implications for law and policy.
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How at-home DNA testing kits let people skirt donor anonymity laws. Our new @ConversationUK article available here https://t.co/7ncyQ4W2NG
@cabr88 @LucyFrith
theconversation.com
The laws around donor anonymity could change as at-home DNA testing gets more popular.
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Join our new research network exploring the impact of commercial DNA testing services.
Calling all humanities/soc sci researchers interested in commercial DNA testing. Join our new research network with a first meeting on 8 March. More info: https://t.co/CLk6eds1dp and sign up here: https://t.co/WSKZvhXw7R
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Here's our latest newsletter - with a snapshot of what we have been doing. As ever, we are grateful to everyone who has participated in or supported our research. It's been an exciting year! @BioethicsUoM @lucy_frith @cabr88 @Leahgilman84
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🚨 Donor-conceived people in the UK have significantly different rights to information depending on their date of conception. 🗃️ New proposals would increase inconsistency and arguably unfairness, say @cabr88 & @lucy_frith. 👇
Proposed changes to donor anonymity laws risk increasing unfairness
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Proposed changes to donor anonymity laws risk increasing unfairness
lep.co.uk
New proposals to change the law protecting the anonymity of sperm and egg donors in the UK “would increase inconsistency and arguably unfairness” for many donor-conceived people, two experts in the...
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Great presentation from Dr Rachel Gregoire at the #PETconf23 raising the issue of the number of families that should be created from one donor @ARCScientists @DrMotility @cabr88 @PET_BioNews
Dr Rachel Gregoire presents 'Donation Law Reform: Less Is More'. Rachel is deputy chair of the @ARCScientists and Scientific Director of the Hewitt Fertility Centre. She was previously an Embryologist at Glasgow Royal Infirmary and at Ninewells Hospital. #PETconf23
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@lucy_frith and I reflect on the @ConnecteDNA findings in light of the @HFEA consultation report in our new @UoMPolicy article. @Leahgilman84 @NordqvistPetra @nicky_hudson @DrMotility
@UoMPolicy article Reforming UK fertility legislation: the effects of online DNA testing @cabr88 @ConnecteDNA @HFEA #fertility #donation
https://t.co/lqY27to7j6
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Interesting to note that the decision 'retroactively overrides the previously agreed anonymity of a sperm donor, show[ing] that the recognition of human rights cannot be made conditional on historic practices and agreements.
Landmark ruling for donor-conceived people regarding DNA-testing of gamete donors • PET
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These informative leaflets are worth a read - the result of a very successful collaboration. Great illustrations too - with thanks to @burograph! @ConnecteDNA @BioethicsUoM @lucy_frith @Leahgilman84 @nicky_hudson @DrMotility @NordqvistPetra
Results of a project with Seed Trust, @ConnecteDNA @BritFertSoc @ARCScientists @BICAuk @D_C_Network @UK_DCR @BioethicsUoM our leaflets for gamete (egg & sperm) on 'Preparing for contact' with donor conceived people, download here 👇 https://t.co/ERrfFQVnw1
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It’s been a pleasure to work with Rafal and @lucy_frith on this paper
New paper out with @cabr88 & Rafał Łukasiewicz on facial recognition and its potential impact on gamete donor conception
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I'm looking to hire a PT Research Assistant for the @DigitalDCstudy. Would suit a PGR interested in repro, digital or family sociology. Lots of flexibility on hours. And I want to make sure it's a career development opportunity for the post holder. https://t.co/vqomJ6PTZn
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If you work in education or healthcare and would like to come along we would be pleased to see you! https://t.co/JISPg1WEtD
This event about a fascinating study should be of great interest to professionals and parents alike, as the topic touches so many lives.
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A short video summary of our new @ConnecteDNA paper is available at the link below - as is the open access paper. Please read and share!
New paper out now from the @connectedna team in @RBMOnline. We show the many ways commercial DNA testing (e.g. AncestryDNA, 23andme) is changing the landscape of donor conception. Nb. It's about more than donor anonymity. Open access at: https://t.co/loRpsdH1Zg
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Read about our findings to date in our new article, available as a pre-print now
Direct-to-consumer genetic testing and the changing landscape of gamete donation @ConnecteDNA
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Pleased to share our new article, Direct-to-consumer genetic testing and the changing landscape of gamete donor conception: key issues for practitioners and stakeholders. Read the pre-print here: https://t.co/gqPS8nt21R
@lucy_frith @Leahgilman84 @cabr88 @nicky_hudson
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🧬🧬🧬One day to go! Tomorrow eve @Leahgilman84 will be talking about findings from our study at this free online event. She'll focus on the implications of DNA testing for parents through donor conception. Sign up here:
This week, Leah Gillman will share findings from the ConnecteDNA study which explores the implications of commercial DNA testing for donor families. Please sign up to this free, online event here: https://t.co/j00heL3KJ1
@GraceHalden @D_C_Network @Leahgilman84
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Thank you @ProfRanjanaDas @SurreySociology for inviting us to present #DatafiedFamily @cabr88 @lucy_frith @Leahgilman84 @BioethicsUoM
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Really interesting keynote at #DatafiedFamily @SurreySociology from Sonia Livingstone talking about "Families today - mediated, platformed, datafied, digital: scoping the challenges ahead" @Livingstone_S @ProfRanjanaDas @IAS_SurreyUni
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Looking forward to showcasing our ConnecteDNA research today at the @surreysociology #DatafiedFamily online conference @lucy_frith @cabr88 @ProfRanjanaDas
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