Cleft Otolaryngology Forum @CleftNotes X Profile

Cleft Otolaryngology Forum

@CleftNotes

Followers

39

Following

16

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1

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24

A group of otolaryngology clinicians and research professionals committed to sharing ongoing research in cleft palate and craniofacial differences.

United States

Joined April 2018

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Cleft Otolaryngology Forum

@CleftNotes

4 years

Very excited to hear this important panel IN PERSON #sentac2021 @JS_Peds_OTO

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Cleft Otolaryngology Forum

@CleftNotes

4 years

Enjoyed the impressive talk at ACPA2021 by Dr. Kamalakar on the role of JAGGED1 in osteoblast commitment and bone regeneration through stimulation of non-canonical NOTCH signaling in cranial neural crest cells. @GoudyLab

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Cleft Otolaryngology Forum

@CleftNotes

4 years

Fantastic panels and presentations at ACPA 2021 addressing VPI and nasal considerations for airway management. @JS_Peds_OTO @tttollefsonmd @GoudyLab

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Cleft Otolaryngology Forum

@CleftNotes

5 years

“Our data show an increased risk of VPI diagnosis and increased surgical burden among patients receiving 2-stage CP repair.” @JSkirkoMD

journals.sagepub.com

Objective: To evaluate the association of 2-stage cleft palate (CP) surgery on velopharyngeal insufficiency (VPI) incidence, speech surgeries, and cleft-related...

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Cleft Otolaryngology Forum

@CleftNotes

6 years

Case report of extremely rare arhinia, with a discussion of treatment and reconstructive options.

Jonathan Skirko, MD, MHPA, MPH

@JS_Peds_OTO

6 years

I don't often do case reports but when I do, they are super unusual. This cutie was born with no nasal passage. Nasal anatomy was undescribed in the literature. It will be interesting to see how his maxilla and nose develops #Arhinia https://t.co/NgRPkOjEgz

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Jonathan Skirko, MD, MHPA, MPH

@JS_Peds_OTO

6 years

Measuring Quality of Life is just as important in Nepal as it is in the US. Check out the Nepalese translation and linguistic validation of our VELO #Cleft Speech #QOL instrument https://t.co/L1uamBbiJK

journals.sagepub.com

Objective: To translate and validate the velopharyngeal insufficiency (VPI) effects on life outcomes (VELO) instrument into Nepali, and test its internal consis...

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Cleft Otolaryngology Forum

@CleftNotes

6 years

Congratulations!!

Jonathan Skirko, MD, MHPA, MPH

@JS_Peds_OTO

6 years

Good news of the week! #noticeofaward #Funded #qualityoflife #nowigottadothework

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Cleft Otolaryngology Forum

@CleftNotes

6 years

Congrats Dr. Skirko!

Jonathan Skirko, MD, MHPA, MPH

@JS_Peds_OTO

6 years

Studying rare diseases is challenging. My recent PCORI award was funded, so we can continue build our consortium of sites managing children with Pierre Robin Sequence and develop clinical research questions that are important to patients and their parents. #Funded #PRS

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Cleft Otolaryngology Forum

@CleftNotes

6 years

Congrats Hilary McCrary, Jonathan Skirko, and team for the Best Clinical Research Project ASPO #COSM2019 #cleftpalate

Jonathan Skirko, MD, MHPA, MPH

@JS_Peds_OTO

6 years

Congrats to Hilary McCrary on receiving the Charles Fergeson Award for the Best Clinical Research Project ASPO for our project "Increased Risk of Velopharyngeal Dysfunction in Patients Undergoing Staged‐Palate Repair." Well deserved #mentorship #Winning #PedsOTO #2019COSM

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Cleft Otolaryngology Forum

@CleftNotes

6 years

Fantastic research on #TeamCare for children with #cleftpalate at #COSM2019

Jonathan Skirko, MD, MHPA, MPH

@JS_Peds_OTO

6 years

More great work shared at #cosm2019 by Dr Torrecillas! Shockingly, there is almost no studies on the benefits of #TeamCare in managing kids with #cleft palate. That changes now. More VPI diagnosis, VPI surgery and earlier treatment in those seen by the team.

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Cleft Otolaryngology Forum

@CleftNotes

6 years

Great work by Dr. Skirko and colleagues at #COSM2019

Jonathan Skirko, MD, MHPA, MPH

@JS_Peds_OTO

6 years

Closing out #COSM2019 with our talk on the translation and validation of the Ecuadorian Dialect of #Spanish VPI #qualityoflife instrument, the VELO. Thanks to @tttollefsonmd, @UCDavis_OTOHNS and @globalsmile for making it possible. More to come!

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Cleft Otolaryngology Forum

@CleftNotes

6 years

Fantastic presentations during the Otolaryngology and Airway session at #ACPAMeeting

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Jonathan Skirko, MD, MHPA, MPH

@JS_Peds_OTO

6 years

I love 3D reconstructions in planning craniofacial surgery. It also makes cool pics. A - is pyriform aperture stenosis; B - Aperts Syndrome; C - Pierre Robin Sequence (PRS). Check out the paper to learn more! https://t.co/DxRGR2bh0x

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Jonathan Skirko, MD, MHPA, MPH

@JS_Peds_OTO

6 years

https://t.co/KbxpfghDtf

onlinelibrary.wiley.com

Objectives/Hypothesis To translate the Velopharyngeal Insufficiency Effects on Life Outcomes (VELO) instrument into Chinese and test its psychometric properties. Study Design Quality of life instr...

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Jonathan Skirko, MD, MHPA, MPH

@JS_Peds_OTO

6 years

How reliable are measurements of baby noses? And are they different between #craniofacial abnormalities? (Very and Yes) Read one of my latest papers to find out more! Gotta have a good measurement to know Who would most benefit from my new surgery... https://t.co/DxRGR2bh0x

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Cleft Palate News

@CleftPalate_Bio

7 years

Exercises for Improving Soft Palate and Eustachian Tube Function in Children With Ear Tubes With or Without Cleft Palate: Elevation of the soft palate the soft part of the roof of the mouth during swallowing helps the Eustachian tube to open and keep the… https://t.co/Assm86w4dc

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Gregory Allen

@GregoryAllenMD

7 years

Very proud to be part of this work. Psychometric findings and normative values for the CLEFT-Q based on 2434 children and young adult patients with cleft lip and/or palate from 12 countries