Cardiomyopathy UK
@Cardiomyopathy
Followers
5K
Following
3K
Media
2K
Statuses
9K
UK charity supporting families affected by heart muscle disease. For free specialist advice, freephone 0800 018 1024 or email [email protected].
Joined March 2009
We are no longer active on X and our account will no longer be monitored. To keep up to date, follow us on Facebook, Instagram or LinkedIn. Alternatively, our website is full of useful information: 📲
1
2
7
Research reveals why hypertrophic #cardiomyopathy may be underdiagnosed in women. https://t.co/ZtHvQiQm6u Learn more: https://t.co/cLPYVeXl35
#HCM
theguardian.com
Research finds hypertrophic cardiomyopathy testing that overlooks sex differences and body size is inadequate
0
7
12
From all of us here at Cardiomyopathy UK, we want to wish you and your loved ones a safe and happy Christmas! ❤️🎄
0
0
16
❤January Support Group Meetings💚 🌐 https://t.co/XOXjFf9u2p 📩services@cardiomyopathy.org (PLUS Coffee & Catch Up Fridays at 2pm!)☕️💌 #cardiomyopathy
0
0
3
We have a new podcast called ‘Cardiomyopathy Conversations’ with Cardiomyopathy UK Trustee Libby Jarman! 🎙️❤️ In the opening episode, Libby talks to Professor Perry Elliott about all things cardiomyopathy. 🩷💬 Follow the link below to listen: 📲 https://t.co/Q7rdcyZ0mJ
0
4
10
Exciting news! 🎉 In 2025, we’ll begin funding research into cardiomyopathy to create a future where everyone with the condition can live a long, fulfilling life. ❤️ Learn more about this milestone and how you can get involved: 📲
1
9
14
❤ Cardiomyopathy UK December Support Group Meetings ❤️ --- For more information : 🌐 https://t.co/u00o4tzRoz 📨services@cardiomyopathy.org (PLUS Coffee & Catch Up every Friday at 2pm!) #cardiomyopathy 💌
0
1
7
UK study shows that dilated #cardiomyopathy can be caused by the cumulative influence of hundreds or thousands of genes, not just by a single faulty gene 🧬 https://t.co/xtkRLIT8S1
#DCM
news-medical.net
A potentially life-changing heart condition, dilated cardiomyopathy, can be caused by the cumulative influence of hundreds or thousands of genes and not just by a single "aberrant" genetic variant,...
0
5
19
We hosted our #CardioConference 2024 on Saturday, and what an incredible day it was!❤️ We want to say a huge thank you to everyone who attended, volunteered, and spoke.🌟 The talks will be on YouTube in early 2025. Join our mailing list for updates: 📲 https://t.co/eQBnOV2NKh
0
2
15
Such a great day of talks at the @Cardiomyopathy conf in London. I talked about how #ACT can help people with cardiomyopathy & shared the progress we've made together this year. Looking forward to more of this in 2025 ♥️
0
1
24
Thank you @Cardiomyopathy for asking myself & @Emma_OMalley to speak at the National Conference 2024 on Genetics & Family Planning. It was an honour & fantastic opportunity to touch base with patients & colleagues; bring on 2025 & further collaboration #cardiogen @theAGNC @RBandH
0
2
17
We are working together to improve lives of Cardiomyopathy patients!!
Just great to meet @stephanie2453 at @Cardiomyopathy and to be invited to talk about cardiac tests. A super opportunity to meet and discuss with patients and professionals and about all we do… so nice to see some of my ☺️ patients in the audience looking great 😁
0
1
13
if you have cardiomyopathy or myocarditis (or have a family member with cardiomyopathy) and you're interested in joining the Heart Hive - https://t.co/1g5R4WDvOK Just give us some basic details and we'll connect you with research. It's up to you which you take part in!
0
3
3
Back to this platform after years of forgetting I have an account ☺️ I was in London today and am so proud to have been awarded the Carolyn Biro award with @Cardiomyopathy 💖 Mum, Tilda and I have had the best day 💖 I am so thankful x
1
2
10
A fantastic day @Cardiomyopathy conference raising awareness of #PPCM to help save mothers’ lives. ✨Please share to spread the word and encourage others to take the #PPCMPledge✨
@mwrebeccajarman is at the #CardioConference today giving a talk on peripartum cardiomyopathy (PPCM) and the #PPCMPledge Learn more: 📲 https://t.co/OgGXLswXwA
0
3
7
An excellent day at the Cardiomyopathy UK National Conference 2024! Lovely to see so many people interested in the Heart Hive’s mission to open up research to more people with #cardiomyopathy and #myocarditis
1
3
21
Another fantastic @Cardiomyopathy conference! 👏👏👏 Gr8 to learn & meet w/ fellow trustees, staff, volunteers, members & nurses ☺️ Pls never feel alone if you are impacted by #cardiomyopathy-we are here for you! 🤗
0
1
21
@Cardiomyopathy CEO @joel_d_rose closing a fantastic patient conference. Fantastic day meeting with people affected by the condition and sharing the work of the charity. 👇👇👇
0
3
9
Very honoured to have Dr Henry Savage (@savodoc) present on Devices & Surgery. A packed room for a really interesting and insightful session ❤️🩺 #cardiomyopathy #cardioconference
2
4
35
Our President Professor Perry Elliott & Trustee @libbyjarman perfectly positioned to promote their new ‘Cardiomyopathy Conversations’ podcast 🎙️❤️ Keep an 👁️ on our social media accounts for more details… #cardiomyopathy #cardioconference #ppcmpledge
0
4
25